Relief from nausea

Posted by clutch @clutch, Dec 4, 2019

I have been tapering klonopin,switched to valium, for a year now. Have come a ways but still have a way to go. Nausea was one of the biggest issues, with resultant appetite and weight loss.
Tried the usual Rx (zofran, phenegran, compazine), and also ginger and CBS tincture. None worked over time. So I was lucky to get myself referred to a Symptom Specialist at Duke. He prescribed 15 remeron and 2.5 mg zyprexa. This was too sedating, so I cut these back to a tolerable dose, taken at night. The combination works better than anything I've tried.
If I have episodes during the day, I take .625 mg. zyprexa. Appetite and weight have improved.
Hope this will help someone else who is in "nausea hell".
Would like any feedback. Thanks!

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Profile picture for mikejjb123 @mikejjb123

I have taken pepcid over the counter as well as about 10 different prescribed medications. None work. Thanks. Any more ideas?

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Have you tried Zyprexia, a psychiatric drug that is used off-label for nausea? And how about Ativan, in small doses, also off-label use? Both have worked for me at a time when the other anti-nausea meds did not. Let me know.

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Profile picture for mikejjb123 @mikejjb123

I have taken pepcid over the counter as well as about 10 different prescribed medications. None work. Thanks. Any more ideas?

Jump to this post

@mikejjb123

Keeping a journal of what you eat and note when nausea happens .. after meals or medication.. may help you figure out triggers. Sometimes eating greasy foods, sweets or eating too much at one time can trigger nausea, You might try eating small frequent meals… just eat part of your regular meal and eat the rest later.

My husband bought a Reliefband over a year and a half ago for me and I have had great success with it. You wear it like an upside down watch on your wrist and it works much like a TENs machine. I was very surprised when it worked. My husband had nausea a while back an he borrowed it and he said .. who would have thunk that would work. He buys them on Amazon for me and buys the one with replaceable batteries. I don't want to wait for something to charge when I have nausea. I also use it when I have a migraine headache or vertigo. I wasn't a believer to start with .. TENs machines never helped me much in PT.

ZeeGee

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Profile picture for mikejjb123 @mikejjb123

I have chronic daily nausea. Seen a Gastro and had all possible tests which came back negative. Now told nausea not related to the GERD. Not sure of next steps. Even had my gallbladder tested. I have colitis but it is under control. What kind of dr should I see next? Internist? Neurologist? Thanks. I am lost and confused.

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Mirtazapine is also off label for nausea. Also, what about odansetron fur nausea is current med making you worse.

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Profile picture for mikejjb123 @mikejjb123

I have chronic daily nausea. Seen a Gastro and had all possible tests which came back negative. Now told nausea not related to the GERD. Not sure of next steps. Even had my gallbladder tested. I have colitis but it is under control. What kind of dr should I see next? Internist? Neurologist? Thanks. I am lost and confused.

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I’m struggling with daily nausea too. I have to take zofran every single day.

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Profile picture for ZeeGee @fourof5zs

@mikejjb123

Keeping a journal of what you eat and note when nausea happens .. after meals or medication.. may help you figure out triggers. Sometimes eating greasy foods, sweets or eating too much at one time can trigger nausea, You might try eating small frequent meals… just eat part of your regular meal and eat the rest later.

My husband bought a Reliefband over a year and a half ago for me and I have had great success with it. You wear it like an upside down watch on your wrist and it works much like a TENs machine. I was very surprised when it worked. My husband had nausea a while back an he borrowed it and he said .. who would have thunk that would work. He buys them on Amazon for me and buys the one with replaceable batteries. I don't want to wait for something to charge when I have nausea. I also use it when I have a migraine headache or vertigo. I wasn't a believer to start with .. TENs machines never helped me much in PT.

ZeeGee

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Thanks so much. Nausea for years on a daily basis. Every test done and no idea what is the problem. Really discouraged. Be well.

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Profile picture for clutch @clutch

Have you tried Zyprexia, a psychiatric drug that is used off-label for nausea? And how about Ativan, in small doses, also off-label use? Both have worked for me at a time when the other anti-nausea meds did not. Let me know.

Jump to this post

Thanks so much. Have to look into these drugs. Nausea for 3 and 1/2 years with no relief. Really feel awful.

REPLY
Profile picture for mikejjb123 @mikejjb123

I have chronic daily nausea. Seen a Gastro and had all possible tests which came back negative. Now told nausea not related to the GERD. Not sure of next steps. Even had my gallbladder tested. I have colitis but it is under control. What kind of dr should I see next? Internist? Neurologist? Thanks. I am lost and confused.

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Hi all had my gallbladder out 20 years ago. In the last year and half have had Common bile duct stones x2 with hospital stays. Now nausea, bloating belching all the time. Never had this issue before ERCP X2 TO remove stones. Anyone else have this issue?

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Profile picture for mikejjb123 @mikejjb123

Thanks so much. Have to look into these drugs. Nausea for 3 and 1/2 years with no relief. Really feel awful.

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@mikejjb123
I know the feeling of chronic nausea….awful! I had it 2.5 years and lost 70 lbs. before turning it around.

Talk with your PCP about the medicines I mentioned. You. could also pair the Zyprexia with mirtazapine. Mirtazapine also has off-label anti-nausea properties and it will boost your appetite, which helped me.

Also, there is discussion on this forum and thread about the Relief Band. I used this too, with some success. Buy the one with replaceable batteries…much better, if you go that route.

Let me know how it goes after talking with your provider. BTW, what medicines/supplements have you tried so far?

REPLY
Profile picture for clutch @clutch

@mikejjb123
I know the feeling of chronic nausea….awful! I had it 2.5 years and lost 70 lbs. before turning it around.

Talk with your PCP about the medicines I mentioned. You. could also pair the Zyprexia with mirtazapine. Mirtazapine also has off-label anti-nausea properties and it will boost your appetite, which helped me.

Also, there is discussion on this forum and thread about the Relief Band. I used this too, with some success. Buy the one with replaceable batteries…much better, if you go that route.

Let me know how it goes after talking with your provider. BTW, what medicines/supplements have you tried so far?

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thank you so much. Currently on dexlanscoprazole. Prior taken promethiazine,zofran, pantoprozole and Ondansetron Hydro with no luck.

REPLY
Profile picture for mikejjb123 @mikejjb123

I have chronic daily nausea. Seen a Gastro and had all possible tests which came back negative. Now told nausea not related to the GERD. Not sure of next steps. Even had my gallbladder tested. I have colitis but it is under control. What kind of dr should I see next? Internist? Neurologist? Thanks. I am lost and confused.

Jump to this post

Has your gastro Dr done an endoscope? Have you been tested for Hpylori. He can order stool test with lab or biopsy during endoscopy if need be.

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