Is anyone familiar with Choroidal Melanoma?

I was diagnosed in March of 2024 with malignant melanoma of the choroid. My tumor is medium size and lobular. I had brachytherapy at MD Anderson in May. I had unusual complications afterward. My cornea is swollen (edema) and my pupil stayed dilated. It went down a little but is irregular shape and fixed. I have had extreme sensitivity to the light from both of this issues. My retina is also swollen. I have lost most of my vision in that eye. In January I had a partial cornea transplant to try and help the cornea swelling and get some sight back. It is minutely improved and my vision is not much if any better. Hoping time will help. I am also having a series of retina injections for the swollen retina. My doctor tells me that even after radiation, part of the tumor is still there. This tumor does not go away. I had the biopsy. It won't do anything to help me. It tells when I will most likely metastasize. It will also help for further study for the future. My tumor is a Class 2 which puts me at a high risk of metastasizing at 3 years. Immunotherapy is the only treatment and will buy 15 months they tell me. If I get in a trial with the new drug and immunotherapy they tell me it will give me 22 months. It's a lot. I try to 'carry on' but it is hard. I hope that research will find more information. In the meantime, I have faith, hope and love and live every minute to the fullest. I would be interested, for those you have had brachytherapy what kind of treatments followed. I want to be a part of the discussion. I hope I haven't said anything that would upset any one. I too am thankful for each day. At first it was hard to not be able to see with that eye. I'm getting better! And it is really okay, just learning to adapt and sometimes laugh at myself! One day at a time, always a good idea.

I was diagnosed in March of 2024 with malignant melanoma of the choroid. My tumor is medium size and lobular. I had brachytherapy at MD Anderson in May. I had unusual complications afterward. My cornea is swollen (edema) and my pupil stayed dilated. It went down a little but is irregular shape and fixed. I have had extreme sensitivity to the light from both of this issues. My retina is also swollen. I have lost most of my vision in that eye. In January I had a partial cornea transplant to try and help the cornea swelling and get some sight back. It is minutely improved and my vision is not much if any better. Hoping time will help. I am also having a series of retina injections for the swollen retina. My doctor tells me that even after radiation, part of the tumor is still there. This tumor does not go away. I had the biopsy. It won't do anything to help me. It tells when I will most likely metastasize. It will also help for further study for the future. My tumor is a Class 2 which puts me at a high risk of metastasizing at 3 years. Immunotherapy is the only treatment and will buy 15 months they tell me. If I get in a trial with the new drug and immunotherapy they tell me it will give me 22 months. It's a lot. I try to 'carry on' but it is hard. I hope that research will find more information. In the meantime, I have faith, hope and love and live every minute to the fullest. I would be interested, for those you have had brachytherapy what kind of treatments followed. I want to be a part of the discussion. I hope I haven't said anything that would upset any one. I too am thankful for each day. At first it was hard to not be able to see with that eye. I'm getting better! And it is really okay, just learning to adapt and sometimes laugh at myself! One day at a time, always a good idea.

Yes. I have been dealing with it for 16 years. Had Brachytherapy in my left eye. I have done well until the last few years when retinopathy caused my vision to decline. It's a different journey for everyone it seems.