Pituitary macroadenoma: Is anyone familiar with Apathy Syndrome?

Posted by medfordor @medfordor, Sep 14, 2020

I had a pituitary macro adenoma removed 10 years ago and I have developed a severe case of apathy, both in my personal and professional life. I cannot focus or concentrate at work and I have not motivation to either work or pursue my former leisure interests. I have seen some studies on this, but never met anyone that knows anything about it.

Hi @medfordor, welcome to Mayo Clinic Connect. You'll notice that I added your question to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) as well as the Endocrine System group. I think fellow members like @daphne2020 @astaingegerdm @rubyjane @gemttaz and others may have experience with the side effect of apathy after surgery. Here are some additional related discussions you may wish to review.

– Saying Hello! Just had surgery for a pituitary tumor https://connect.mayoclinic.org/discussion/saying-hello-1/
– Pituitary microadenoma causing hormonal issues https://connect.mayoclinic.org/discussion/pituitary-microadenoma/
– Pituitary macroadenoma tumor removal and short term memory loss https://connect.mayoclinic.org/discussion/pituitary-macroadenoma-and-short-term-memory-loss/

@medfordor, you said your surgery was 10 year ago. Has apathy always been a side effect since then or is it a more recent development?

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@colleenyoung

Hi @medfordor, welcome to Mayo Clinic Connect. You'll notice that I added your question to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) as well as the Endocrine System group. I think fellow members like @daphne2020 @astaingegerdm @rubyjane @gemttaz and others may have experience with the side effect of apathy after surgery. Here are some additional related discussions you may wish to review.

– Saying Hello! Just had surgery for a pituitary tumor https://connect.mayoclinic.org/discussion/saying-hello-1/
– Pituitary microadenoma causing hormonal issues https://connect.mayoclinic.org/discussion/pituitary-microadenoma/
– Pituitary macroadenoma tumor removal and short term memory loss https://connect.mayoclinic.org/discussion/pituitary-macroadenoma-and-short-term-memory-loss/

@medfordor, you said your surgery was 10 year ago. Has apathy always been a side effect since then or is it a more recent development?

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Thank you mod Colleen! My apathy has become more noticeable in the past five years. I though maybe I was just bored at work and at home – my doctors thought it was depression, but 4 years of varying antidepressants had no effect. It was only recently I read an article in the Journal of Neuropsychiatry about apathy in pituitary surgery patients that I recognized all my symptoms.

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I just joined this site and saw your post in apathy from 2 years ago. I had 4 surgeries since 2000 and radiation. I too struggle with this. Have you received more info or treatment for this?

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@limorris

I just joined this site and saw your post in apathy from 2 years ago. I had 4 surgeries since 2000 and radiation. I too struggle with this. Have you received more info or treatment for this?

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Hello @limorris and welcome to Mayo Clinic Connect. It looks like you may be attempting to respond to @medfordor in response to the last post that was made in 2020, is that right?

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@limorris

I just joined this site and saw your post in apathy from 2 years ago. I had 4 surgeries since 2000 and radiation. I too struggle with this. Have you received more info or treatment for this?

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After reading your initial comments about apathy syndrome I did some research and have nothing more but questions. Can I Be directed to anyone at Mayo who participated in multiple studies about apathy syndrome?

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@jrlynch

After reading your initial comments about apathy syndrome I did some research and have nothing more but questions. Can I Be directed to anyone at Mayo who participated in multiple studies about apathy syndrome?

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Mayo Connect is a community of people and their caregivers with a wide variety of conditions and diseases who share our stories and experiences and try to help one another along the way.

If you wish to learn about Apathy Syndrome and possible studies at Mayo Clinic, or make an appointment to be evaluated for it, contact: http://mayocl.in/1mtmR63

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@jrlynch

After reading your initial comments about apathy syndrome I did some research and have nothing more but questions. Can I Be directed to anyone at Mayo who participated in multiple studies about apathy syndrome?

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Hi @jrlynch, do you suspect that you may have apathy syndrome?

@limorris, what type of brain tumor did you have? How do you manage the side effect of apathy?

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@colleenyoung

Hi @jrlynch, do you suspect that you may have apathy syndrome?

@limorris, what type of brain tumor did you have? How do you manage the side effect of apathy?

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My research is for my brother. A Neurosurgeon placed a stent in his brain to alleviate pressure cause by excess cerebral fluid a condition called “normal pressure hydrocephalus”. Since then he has exhibited symptoms of Apathy including dizziness with nausea and vomiting, and constant sleeping. Doctors here cannot find any reasons for his condition. That’s why I am researching Apathy Syndrome.

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@jrlynch

My research is for my brother. A Neurosurgeon placed a stent in his brain to alleviate pressure cause by excess cerebral fluid a condition called “normal pressure hydrocephalus”. Since then he has exhibited symptoms of Apathy including dizziness with nausea and vomiting, and constant sleeping. Doctors here cannot find any reasons for his condition. That’s why I am researching Apathy Syndrome.

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It is definitely something to bring up with his neurologist. @jrlynch, you may also be interested in these NPH-related discussions:
– Normal Pressure Hydrocephalus https://connect.mayoclinic.org/discussion/normal-pressure-hydrocephalus/?pg=2
– normal pressure hydrocephalus research https://connect.mayoclinic.org/discussion/normal-pressure-hydrocephalus-2/
– Normal pressure hydrocephalus (NPH) and dealing with work https://connect.mayoclinic.org/discussion/nph-and-dealing-with-work/

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