normal pressure hydrocephalus research

Posted by awilst @awilst, 3 days ago

I am interested in info about NPH , normal pressure hydrocephalus From what I read on web, the diagnosis is is based on certain general symptoms (gait/balance/brain fog etc) , & mri reading. From what I can tell , they tap your spinal fluid, potentially lower pressure, & observe if it reduces symptoms.

My questions concern the amount of research & understanding at the molecular level of whats going on. Is or has anyone got a handle (or currently looking at) what the cellular/protein activities causing hydrocephalus are? Is surgery/shunts the only approach?
I have a hearing problem & my reading tells me there are many studies going on to correct hearing loss thru neuro cellular protein solutions.
Seems the same approach should be happening with NPH.
So, my question is who, & where might that kind of research be going on, & where might I find info about it on web.

@awilst hello and thank you for your questions on NPH to see if other members have information they can share on the research aspect you are seeking.

You will notice that I updated the title of your post to include "research" to allow for more members to join this conversation. Member @catharbert may have some more to share with you.

In the meantime, I'd like to share the following resources in case you haven't found them already in your search:

-"The Adult Hydrocephalus Clinical Research Network (AHCRN) is a network of hospitals that conduct clinical research on hydrocephalus to improve treatment for the adult forms of hydrocephalus, including transitional patients who were diagnosed as children, those who acquire hydrocephalus as adults, and patients with normal pressure hydrocephalus."
http://www.ahcrn.org
-Sharing Mayo Clinic – Two Neurosurgeries Drive Dramatic Recovery: https://sharing.mayoclinic.org/2018/09/26/two-neurosurgeries-drive-dramatic-recovery/

Can I ask if you suffer from NPH or someone close to you?

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wife has symptomsthat she may have it. she is exhibiting several issues that may indicate condition.
she had an MRi that suggested NPH.
she also has had 2 previous prior MRIs, that did not show any indication of NPH.
I would think that this MRI data (before & after??) may provide very useful research material to someone who is
looking at NPH. development.
So if you know of any researchers who might be interested in taking a look. I would appreciate the info. Or have them email me.
thanks for reply

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Hello @awilst. What are the symptoms your wife is exhibiting and what is she being treated for/with currently that may help others provide more support?

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currently , with covid 19 problem, she is not seeing anybody. she has been trying to avoid contact until she gets the vaccine (which she finally got recently).
so, she is living with :
1. MRI that says she has NPH
2. symptoms , memory loss (she is 85 ys old) so could be normal age decline, walking balance problems, other potential cognitive issues

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