Involuntary jerking and spasms (Myoclonus) are keeping him awake

Does anybody have any experience with Myoclonus?

Background: My husband had a seizure in February. The neurologist prescribed Keppra, to prevent future seizures. It knocked my husband out and so we weaned him off that. Shortly after that he suddenly had a surge of involuntary small movements. It is called Myoclonus and the neurologist said that it is hard to treat; often it is not treated unless it is disrupting the person's ability to do things. The movements died down and I attributed them to him having tried the anti-seizure medication. My husband had another seizure two weeks ago. Now, the myoclonus is back in a big way. The movements are happening in different parts of his body very frequently. It is affecting him particularly at night: He senses them -- frequently they are strong enough to make him exclaim "oh!" --- and they are waking him up. I think that that loss of good sleep may be contributing to his very recent unusual tiredness and decline in concentration during walking.

I have written to our neurologist, but, you know, the real experience of living with a condition is so different from their view as doctors. Any inputs from you will be appreciated.

We've entered a new phase this year. Up to now, my husband has not had medical issues (not including a heart attack in 2020). These new medical issues are neurological it seems that the medicines can have big effects on his energy. I am loath to trade off his quality of life for uncertain benefits. But here we are, I hate to see him so uncomfortable.