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Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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sheeva888 | @sheeva888 | Sep 20, 2023
In reply to @l8ydrgn "No because while i have a low amount of GAD65 in considered a Sero Neg which..." + (show)
Profile picture for l8ydrgn @l8ydrgn

No because while i have a low amount of GAD65 in considered a Sero Neg which are not considered for the current testing. No one is testing the Sero Negs, which in our opinion might hold a better answer to the dias as we don't babe the same blood that they're testing

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I have “atypical” SPS as I am GAD negative. I never qualify for any studies either. It’s quite frustrating. I see Dr. Marinos Dalakas in Philadelphia. He has been studying SPS for a very long time and still conducts studies.

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l8ydrgn | @l8ydrgn | Sep 20, 2023
In reply to @sheeva888 "I have “atypical” SPS as I am GAD negative. I never qualify for any studies either...." + (show)
Profile picture for sheeva888 @sheeva888

I have “atypical” SPS as I am GAD negative. I never qualify for any studies either. It’s quite frustrating. I see Dr. Marinos Dalakas in Philadelphia. He has been studying SPS for a very long time and still conducts studies.

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And that's my problem there's no doctors on the west coast. I am excited that a new neuro is hung who is a movement disorder specialist.

Btw you bit having any GAD65 makes you a sero neg like me there's about 25-30% of us you'd think that would be a high enuf population to study. Many of us believe that number to be much higher due to mis dx

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Garygirl | @taftst1 | Sep 21, 2023

Internal shaking? Had that too. Saw 2,Nuero’s. EMG s. Nothing. Just lost. Then it’s cortisol, now that’s ok. Tachycardia?, now that med is nuts. No life. Seeing cardio pa this morning.

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lynn1957 | @lynn1957 | Sep 22, 2023
In reply to @suzette70 "Sounds like Parkinson’s disease" + (show)
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Sounds like Parkinson’s disease

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My husband has Parkinson's and this sounds a lot like his symptoms.

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sturner62 | @sturner62 | Sep 23, 2023
In reply to @lynn1957 "My husband has Parkinson's and this sounds a lot like his symptoms." + (show)
Profile picture for lynn1957 @lynn1957

My husband has Parkinson's and this sounds a lot like his symptoms.

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I call it resonating. I have peripheral neuropathy although I can’t get anybody to tell me that. I have all the symptoms. I got it three months ago .took a muscle relaxer because I hurt my back woke up the next morning with pins and needles from head to toe. I have the unbelievable crazy symptoms. It’s like a horror movie.

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Karen | @fue | Sep 24, 2023

I have polyneuropathy. I have started having internal vibrations in my pelvis. My bits ache and the tops of my legs too. I am scared.

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mitfit | @mitfit | Sep 25, 2023

Oh yes, I am experiencing the same thing, constantly. I was told it is anxiety, but I do not feel anxious. I wonder about Parkinson’s?

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Mamacita, Alumna Mentor | @mamacita | Sep 25, 2023

Definitely yes. I was told that it could be from having had COVID twice. I checked the Mayo site which assured me it was definitely a thing. If it gets worse I will pursue a diagnosis. Right now it is not a bother.

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jdallmon | @jdallmon | Sep 26, 2023
In reply to @mermaid1935 "Yes yes yes. My psych nurse said it could be my medication. I have not seen..." + (show)
Profile picture for mermaid1935 @mermaid1935

Yes yes yes. My psych nurse said it could be my medication. I have not seen the doctor yet but have a physical coming up. I call them internal tremors or quivers. Mine comes in spurts. I'll get them for a few weeks then go months without them then they come back again. I was worried it was a seizure thing. Because it happens so little I never think to ask my doctor when I see her. I hope you get it figured out.

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Probably food reaction. I have many different reactions. Buzzing in my ankle. Muscle spazm and headaches and brain fog. Try eating all natural, no process foods for awhile and see if you get better.

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Rachel, Volunteer Mentor | @rwinney | Sep 27, 2023
In reply to @jdallmon "Probably food reaction. I have many different reactions. Buzzing in my ankle. Muscle spazm and headaches..." + (show)
Profile picture for jdallmon @jdallmon

Probably food reaction. I have many different reactions. Buzzing in my ankle. Muscle spazm and headaches and brain fog. Try eating all natural, no process foods for awhile and see if you get better.

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Hello @jdallmon! Welcome to Connect. Thanks for joining the conversation. How has eating natural helped your symptoms? Have you been following any specific type of diet?

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