Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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@cls1

When I was in my 20’s I had them in my head. No one knew what it was. Tuning fork is a perfect description. I now get what I describe as thrills in my chest and I’m having a brain mri this week. I have been prescribed gabapentin and was told the myelin is shredding around my nerves. I’m 73 now.

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Good luck with your MRI. I'll be interested to see what they determine is causing your issues. Does the gabapentin help? By thrills, I'm thinking maybe it comes and goes or a sensation that travels?

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@californiazebra

Good luck with your MRI. I'll be interested to see what they determine is causing your issues. Does the gabapentin help? By thrills, I'm thinking maybe it comes and goes or a sensation that travels?

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It’s always in my chest and comes and goes but lasts for long enough that it worries me. It’s more frequent at night when ai lie down but also happens at times during the day when I sit down.
I’ll post the mri results when I get them.

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@cls1

It’s always in my chest and comes and goes but lasts for long enough that it worries me. It’s more frequent at night when ai lie down but also happens at times during the day when I sit down.
I’ll post the mri results when I get them.

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Yes, I have them very bad in my head and body and raises my blood pressure that I started ta
King medicine for it which I don't like because I think this got to be with the vibrations, never have problems with my blood pressure.

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I have them come and go, and they seem isolated to my lower extremities. Sometimes it’s like a cell phone that I’m sitting on, other times it’s just a low constant sensation. I’m still struggling a little with anxiety, so I’m almost certain that’s part of it - but I’m suspecting that another part is simply just the joy of MS…

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@nightops

I have them come and go, and they seem isolated to my lower extremities. Sometimes it’s like a cell phone that I’m sitting on, other times it’s just a low constant sensation. I’m still struggling a little with anxiety, so I’m almost certain that’s part of it - but I’m suspecting that another part is simply just the joy of MS…

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I honestly think the vibrations trick your brain into thinking its anxiety causing the vibrations when it's really the other way around. It doesn't hurt, but it's a bit unsettling. Cell phone buzzing on silent is also a good analogy. Low constant sensation is also a good description. Hard to explain to someone that doesn't have it. Thanks for sharing.

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Mine is the exact description of what I tell people, it’s like my phone is in my back pocket on vibrate. So weird. I usually have that feeling in my legs and feet, like I’m walking on something moving.

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@cls1

It’s always in my chest and comes and goes but lasts for long enough that it worries me. It’s more frequent at night when ai lie down but also happens at times during the day when I sit down.
I’ll post the mri results when I get them.

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I have had these internal tremors on and off for many years. I feel it can be from Lyme disease as I was tested and found to be positive.
I also drink a lot of diet soda which contains a lot of caffeine. Sometimes I feel this could be contributing to
the tremors. I am trying to cut down and drink more water, to see if it helps.

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Yes, I have internal vibrations, like shaking, quite often. Doctor tells me it is central nervous system. When it gets overwhelming I take medicine for it which calms the throbbing heart and the shaking.

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@mitfit

Yes, I have internal vibrations, like shaking, quite often. Doctor tells me it is central nervous system. When it gets overwhelming I take medicine for it which calms the throbbing heart and the shaking.

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Hello @mitfit, @212joanie, @californiazebra and all -

Welcome to new members joining this conversation. I'm in the club too, with buzzing and vibrating and am so glad you have found each other to share your stories with. Comfort in numbers.

Periodically I post about Central Sensitization Syndrome (CSS) for members experiencing odd, annoying and somewhat unexplained symptoms caused by neuropathy, post-COVID, central sensitization syndrome, etc...

I'd like to share with you Dr. Sletten's video about chronic pain and the science behind central nervous system sensitization. It's quite interesting to learn about the why behind the what. Here you go:

Mayo Clinic's Dr. Sletten presents on Central Sensitization Syndrome:

I hope the video brings clarity as to how and why our body's CNS can upregulate and cause confusing, disruptive symptoms like internal vibrations. The good news is that there are ways of managing, coping and working through symptoms to help quell them over time. Things like healthy diet and reducing sugar - shout out to @212joanie for drinking more water and less caffeine! Exercise and mental health are huge. Move it or lose it, motion is lotion - to name a couple of Dr. Sletten's phrases, and stress-management through CBT, meditation and breathing. You all probably know these things already, but sometimes we need reminders or motivation. I need Mayo's Pain Rehab Center and boy did it help me.

I hope to have helped in some small way today. Will you let me know if you find the video interesting? Were you able to identify yourself in any part of it?

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@rwinney

Hello @mitfit, @212joanie, @californiazebra and all -

Welcome to new members joining this conversation. I'm in the club too, with buzzing and vibrating and am so glad you have found each other to share your stories with. Comfort in numbers.

Periodically I post about Central Sensitization Syndrome (CSS) for members experiencing odd, annoying and somewhat unexplained symptoms caused by neuropathy, post-COVID, central sensitization syndrome, etc...

I'd like to share with you Dr. Sletten's video about chronic pain and the science behind central nervous system sensitization. It's quite interesting to learn about the why behind the what. Here you go:

Mayo Clinic's Dr. Sletten presents on Central Sensitization Syndrome:

I hope the video brings clarity as to how and why our body's CNS can upregulate and cause confusing, disruptive symptoms like internal vibrations. The good news is that there are ways of managing, coping and working through symptoms to help quell them over time. Things like healthy diet and reducing sugar - shout out to @212joanie for drinking more water and less caffeine! Exercise and mental health are huge. Move it or lose it, motion is lotion - to name a couple of Dr. Sletten's phrases, and stress-management through CBT, meditation and breathing. You all probably know these things already, but sometimes we need reminders or motivation. I need Mayo's Pain Rehab Center and boy did it help me.

I hope to have helped in some small way today. Will you let me know if you find the video interesting? Were you able to identify yourself in any part of it?

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I found the video interesting and helpful. What is the three-week program he mentioned at the end? I do not use caffeine, tobacco or alcohol. I can’t imagine what my shaking would be like if I were still drinking caffeine! I have been prescribed 20 mg of cymbalta daily (on week #5) and 10 mg of propranolol for when symptoms are really, really bad (have taken it only once). I also see a psychiatrist and a therapist. I’m wondering if I am on the right path. Is this post-Covid syndrome or something else. It is so hard to know what to do. Like he mentioned, I am Type A and this has been debilitating to my life. Thank you again for the video. Please let us all know what next steps are for the program he mentioned.

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