Has anyone experienced internal vibrations?

I have started with tremors in the back of my head. They start at rest and don’t stop. It feels like the occipital area, base of my skull. They are debilitating, and I wake up exhausted, with weak neck muscles. I have been suffering from occipital nerve pain for 6 months and now these tremors have started. I need to do something, I can’t sleep. Has anyone experienced this? Does Botox work? I have been waiting for a reply from a neurologist I saw at Mayo but no one has called me back. I’m basically terrified to go to sleep. Any advice appreciated.

Welcome @lisa2022, I know it has to be awful having the tremors on top of the occiptal nerve pain and not being able to sleep. You mentioned you have been waiting for a reply from a neurologist you saw at Mayo but no one has called you back. Another thing you might try if you are setup with a Mayo patient portal is to send your neurologist or care team a message and ask for a follow up. Here are the details on how to setup your portal -- https://www.mayoclinichealthsystem.org/hometown-health/featured-topic/connect-to-the-care-you-need-with-patient-online-services.

You might also be interested in the following discussion -- Occipital Neuralgia: https://connect.mayoclinic.org/discussion/occipital-neuralgia/

Have you tried calling your neurologist again to make sure they got your message?

I have emailed in the portal, how do I get a "direct" contact number for the doctors office, all I have is the main number.

Hi Rachael. I had covid in Jan last yr this is when it began. Under my feet into my arms chest stomach head. Now it's all over internally. Sometimes has like an electric feeling. I did see 3x neurologist who has done bloods, mri, nerve conduction since all was good they didn't do any biopsy though. Which is why I'm confused as the one neurologist says it's anxiety. What meds have helped u? I trier Lyrica and gabapentin, 5 antidepressants

Normally they tell you on the portal you will get a response within 48 to 72 hours since they don't want you to use if for medical emergencies. My Mayo doctors have always given me a business card with a phone number to contact their secretary for any followup questions. You might want to send another message on the portal to see if your care team has a number you can call during normal business hours for followup.

I'm early in the game... nothing has helped me. I'm doing another consult, mine is isolated to the back of my head only. I'm hoping to try botox to stop the muscles from moving.

Hi Rachael. I had covid in Jan last yr this is when it began. Under my feet into my arms chest stomach head. Now it's all over internally. Sometimes has like an electric feeling. I did see 3x neurologist who has done bloods, mri, nerve conduction since all was good they didn't do any biopsy though. Which is why I'm confused as the one neurologist says it's anxiety. What meds have helped u? I trier Lyrica and gabapentin, 5 antidepressants

@avash I disagree with anxiety being the initial cause (sometimes that's said when a doctor has no cause to provide). Sure having these vibrations attributes to anxiety which can be a normal response when experiencing an abnormal feeling inside the body and not knowing why. Yes, anxiety can upregulate more symptoms and around and around we go, but no, not the sole cause.

I understand the electrical feeling you describe. I only take Pregabalin (Lyrica), it has helped my nerve dysfunction. I am living with and managing Central Sensitization Syndrome (CSS) which is a chronic pain syndrome that produces louder messages to the brain from the body. Its an overreactive Central Nervous System (CNS) that gets upregulated and can produce nerve, muscle, joint, bone pain along with sensory issues. I am mentioning CSS because it has been able to explain some post-COVID symptoms and disorders. Do you mind taking a look at this video presented by Dr. Sletten of the Mayo Clinic?

Will you please let me know your thoughts on the video? What might your next step be?

@avash I disagree with anxiety being the initial cause (sometimes that's said when a doctor has no cause to provide). Sure having these vibrations attributes to anxiety which can be a normal response when experiencing an abnormal feeling inside the body and not knowing why. Yes, anxiety can upregulate more symptoms and around and around we go, but no, not the sole cause.

I understand the electrical feeling you describe. I only take Pregabalin (Lyrica), it has helped my nerve dysfunction. I am living with and managing Central Sensitization Syndrome (CSS) which is a chronic pain syndrome that produces louder messages to the brain from the body. Its an overreactive Central Nervous System (CNS) that gets upregulated and can produce nerve, muscle, joint, bone pain along with sensory issues. I am mentioning CSS because it has been able to explain some post-COVID symptoms and disorders. Do you mind taking a look at this video presented by Dr. Sletten of the Mayo Clinic?

Will you please let me know your thoughts on the video? What might your next step be?