Infections while on Camzyos?

Posted by soonerfan @soonerfan, Feb 8, 2024

Has anyone on Camzyos had repeated UTI infections?
Thank you

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Profile picture for cash298 @cash298

Wanted to add this from a simple 2 sec google search, I fully intend to send to my Heart Failure NP and my cardiologist. ugh. They will end up killing me before I ever make it to Cleveland. I soooo dont trust them.

Yes, a urinary tract infection (UTI) is a possible side effect of mavacamten (brand name Camzyos).
While the most common side effects are dizziness and fainting, UTIs have been reported both as a common side effect in some sources and as a potential new adverse event signal in real-world studies.
Common Side Effects
In clinical trial data and general information, UTIs are listed among other non-serious, but common, side effects that may not require immediate medical attention unless they become bothersome or do not go away.
Other common side effects include:
Headache
Dizziness
Nausea
Fatigue
Upper respiratory tract infections
When to Seek Medical Attention
It is important to contact your healthcare provider if you experience symptoms of a UTI, which may include:
Burning or stinging when urinating
Painful or frequent/urgent urination
Pink or bloody urine

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@cash298 I am also going to figure out how to report this to the FDA as they are currently investigating UTI as a possible side effect of Mavacamten and I don’t think enough people pit it together. I would love to hear from others with this symptom and know how your medical team has responded. Happy Monday.

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This is the web site to report to the FDA of infections or any adverse or side effects you think may be related to Mavacamten.
https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
Please report so everything can be investigated, this is a fairly new drug.

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I am so sorry to hear you are struggling with UTI. I have been on Camzyos two years and never had a UTI. I hope you heal soon,.

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