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Immunoglobulin infusion--when it's given.

Posted by fdixon63 @fdixon63, Mar 16, 2023

I've been seeing immunoglobulin infusion mentioned in different groups. I'm curious, at what point would a physician determine this is something to be done for the patient. Appreciate any input.

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penn | @penn | Jun 23 12:39pm
In reply to @ddowacter "I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is..." + (show)
Profile picture for ddowacter @ddowacter

I have MS and have acquired steroid Induced Osteoporsis. My Neurologist said that having this is a contraindication for using steroids anymore and has told me that IVIG q 3 months ongoing as a treatment to decrease flare ups. Is this a common replacement for steroids?

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better!!!

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catartist | @catartist | Jun 24 10:51am
In reply to @richardab "My IgG and IgM are really low (my IgA is high but not dangerously so). In..." + (show)
Profile picture for richardab @richardab

My IgG and IgM are really low (my IgA is high but not dangerously so). In discussions with my heme/onc, she said she would consider IgG infusions if I start regularly getting respiratory infections, which I haven't to this point.

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Same - but I was getting repeat lung and UTI infections - IGi was 45! But after a year of infusions its bottom of ‘normal range’. I have Mgus too and A is still high but guess ok. No infections! But will need it rest of life (78 now). It’s been a rare good practice.

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esther589 | @esther589 | Jun 24 3:31pm

I was initially given IVIG infusions at Mayo Clinic for Autoimmune encephalopathy. It was eight years ago and I still need infusions from time to time. I now live in Spain and my neurologist has written a letter that I can present at any ER to receive infusions when I need them. This is the only treatment that helps me improve and recover. I am steroid resistant so where steroid treatment may be effective for others, it does not help me.

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karencodiga1969 | @karencodiga1969 | Jun 29 12:23pm

I have generalized myasthenia gravis . Tried different drugs. IVIG infusions of Gammagard once a month seem to work best for me with no side effects. Took mestinon when first diagnosed October 2024 but it has a lot of terrible side effects.

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