I was recently diagnosed (yesterday) with Apical HCM

Welcome to Mayo Clinic Connect @raulm .
You must have a lot of thoughts swirling around in your head now that you just found out you have HCM.
And apical HCM at that.
Apical HCM is the more rare form of HCM and you would do well to make sure the specialist you choose to treat you has experience not only in HCM but apHCM (apical HCM). If that means more than one, two or three opinions that would be my advice! As many as it takes to feel confident.
The Mayo Clinic in Rochester, MN is the world's leading expert in treatment of both kinds of HCM, just to let you know.
Here is a link to Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/care-at-mayo-clinic/mac-20350208
Have you had a chance to read some of the apical hypertrophic cardiomyopathy posts here on Connect?
If you type apical hypertrophic cardiomyopathy in the search area at the top of the page, it will take you to any conversations with that topic.
Since this is so new to you, you must have a lot of questions. It is in your best interest to be as educated as you can be about what you have.
Research and learn as much as you can so you will be able to participate along with your doctor in decisions about treatment options.
It can be overwhelming to learn you have this condition. It will take some time to process all this new information.
Fear can be a common first instinct when just starting this unwelcome journey.
But don't let fear be your driving force. Learn as much as you can process overtime so you can take this challenge head on.
Are you healthy and active otherwise?
Do you have a good support system in your life?

Hello @raulm
I was diagnosed with Apical Hypertrophic Cardiomyopathy at the age of 78, so I know how scary it is to hear you have a genetic disease you have never heard of. I guess I was fortunate that an appointment with a cardiologist in my health system was not available for several months. Doning my own research, I learned that often, seeing a cardiologist who is not experienced treating Apical HCM, one can actually receive the wrong treatment or medication. So, after doing research regarding ApHcm, I was able to get an appointment at the Mayo Clinic in Rochester. It is a wonderful experience to be treated at Mayo. Everyone is pleasant and caring and I always feel uplifted when I leave. In fact, I just had an appointment and testing this week for my yearly visit and to address ongoing Afib and heart rate issues. You should definitely try to visit a Center of Excellence with an HCM Clinic. I would suggest you visit the Hypertrophic Cardiomyopathy Association web page. They have a listing of all the COEs and if you join, they will also help you get an appointment. https://www.4hcm.org.
I don't know where you live, but if at all possible my reccomendation would be Mayo Clinic, Rochester. I feel I can reach out to my cardiologist with a message when I have a concern and he always gets back to me with either reassurance, a virtual appointment, or as in my most recent concern with an appointment and testing.
I am now 82, and live an active, normal life, and find my initial fears were unfounded.