@hs60marg I am very glad to read that you are receiving care at the U of Penn in Philadelphia, a COE (Center of Excellence) listed on the website of the Hypertrophic Cardiomyopathy Association. They are thorough with all that testing, aren't they? Please ask your doctors about why a sleep study is recommended, we cannot give medical advice, there must be a reason if it is suggested. How is your sleep? Sleep apnea is considered dangerous. For many of us, sleep patterns change as we age. As with HCM, if you ask 100 people about their experiences with that disease, there will be 100 unique stories, I'll bet we all have our unique sleep tales.
Debra @karukgirl noted an important link to read. Here is an additional link which explains the different kinds of hcm along with possible treatments: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/diagnosis-treatment/drc-20350204
Yes, what an inconvenience to need to go there, park your car overnight, and all the rest for a sleep study! I have a couple of suggestions. Would it be possible to find out if there is a reputable sleep study place closer to your home that would work with your doctor? Do you know someone (relative, friend) that lives near U of Penn where you could park your car overnight? Your relative or friend may be able to drop you off/pick you up or you can take a taxi, Uber or Lyft to the sleep study site.
I am glad @emo44 had so many suggestions for you and was able to describe his experience with Apical HCM. On the 4hcm.org website one can sign up for Zoom discussions/informational meetings which you may find helpful in learning all you can.
Knowing as much as possible helps you understand what the doctors explain as much as possible. Knowledge also helps you generate questions to ask.
@walkinggir Thanks, Appreciate all the support you guys are so good at. Yes getting in and out of Philadelphia is not fun. The sleep test unfortunately has to be done in one of three or four locations in the city itself so you want to get in and out without getting caught in a rush-hour. Pretty sure the university will supply parking for overnight. Right now my Main agenda is getting myself and my portal moved to the Hypertrophic Cardiomyopathy group. It’s taking some time and effort to accomplish that.