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punkin53
@punkin53

Posts: 2
Joined: Jan 22, 2016

I was diagnosed with Mitral Valve Regurgitation and Pulmonary Arterial Hypertension

Posted by @punkin53, Jan 22, 2016

I was diagnosed with Mitral Valve Regurgitation and Pulmonary Arterial Hypertension 2 years ago and of course high blood pressure. I am taking Losartan 100mg and Amlodipine Besylate 5mg. I have periods where my face (both sides or one side) is flushed and feels hot. I have periods of light headed, tingling on my face and head. They do not happen all at the same time. I have not been able to find anything that explains these symptoms and my Cardiologist and Pulmonary doctor do not know. Can anyone shed some light on this.

REPLY

I have a friend who was recently told that she has a “collapsed heart valve.” Is Mitral Valve Prolapse the only medical term generally used for this (what I’m guessing is a laymen’s term) condition? I’m hoping to learn as much as I can about this, so I can possibly be helpful. Thanks! -b

Hi @punkin53, welcome to Connect.

@vdouglas @cyndiblaw @skooter27 might you have any thoughts on this?

Colleen
Connect Community Director

@colleenyoung

Hi @punkin53, welcome to Connect.

@vdouglas @cyndiblaw @skooter27 might you have any thoughts on this?

Colleen
Connect Community Director

Jump to this post

I also have been diagnosed with Mitral Valve Regurgitation/Mitral Valve Prolapse (2011), with a recent left cath showing that I would soon need to have my mitral valve replaced, as well as Primary Pulmonary Hypertension (2011). I do not, however, suffer from high blood pressure, but extreme low blood pressure (last cardiologist visit was 80/56).

I’m only on one medication, which no longer works (right cath showed this in July of last year) and the side effect from that medication resulted in a lowered blood pressure, but I have not had any other side effects, not like you’re having. As I stated, my previous medication is no longer working, and the other ones prescribed since, had horrific side effects i.e. extreme heart burn for 4-5 hours at a time with chest pressure likened to that of 200 lbs on my chest, so right now I remain on the one that is no longer working, as it won’t hurt anything, according to my cardiologist who is also my PH specialist…hoping for a new drug soon, otherwise, my PH will just get progressively worse 🙁

In my own personal opinion, if you are experiencing hot flashes, a flushed face, tingling and lightheadedness, they could possibly be a result of the medication you are taking, even if none of those side effects you are having are listed on the medication/paperwork itself…many meds are “pushed” through before FDA approval, and all of the side effects are not known, therefore, not listed on the bottle or paperwork associated with those meds…I’ve experienced this.

It concerns me that both your cardiologist and Pulmonary doctor can’t explain your symptoms, yet aren’t trying to do more to find out why you are experiencing them…I’m not a trusting soul when it comes to medications or medical devices, and definitely not where the FDA is concerned…too many “kickbacks” and helpful, at least for them not us, unnecessary referrals to other physicians.

I cannot give you anything that resembles “medical advice,” other than to help you advocate better for yourself, in regard to unexplained symptoms. I research everything, and I do mean everything…I ask lots of questions, and if I’m not satisfied with an answer, then I move on until I find a physician who at the very least wants to try and find out the “whys.”

I am extremely fortunate however, having both a cardiologist/PH specialist, and primary care giver, who I have been with for years, and who I trust and respect…we may not always agree, but we communicate, resulting in trust and respect on both sides of the fence….this is VERY important, so if you don’t have it, move on until you do!!! I fired four cardiologists in the beginning of attempting to be diagnosed properly, who just wanted to place me on paxil for anxiety and panic, which I DID NOT have…very frustrating and time-consuming to say the least 🙁

I also utilize both the WomenHeart and PHA websites, to help guide me in my diagnoses…I have many other heart issues that I won’t go into now, as it’s a moot point…I just want to help you as much as I can 🙂

Stand Up For Yourself…don’t stop until you get answers…this is your life we’re talking about, not a car problem…you ARE worth the fight!!!

Good Luck & God Bless…

@colleenyoung

Hi @punkin53, welcome to Connect.

@vdouglas @cyndiblaw @skooter27 might you have any thoughts on this?

Colleen
Connect Community Director

Jump to this post

Hi @punkin53

I have had MVP/MVP Syndrome most of my life but only diagnosed for about 30 years. I have mild Hypertension. I am not a Doctor nor do I have medical training but I will try to help you with your question.

MVP and sometimes "Mitral Valve Prolapse Syndrome" can be associated with other conditions such as irregular heartbeat (various types), panic disorder and many other conditions. Most of these can be dealt with and controlled but each have symptoms, or are a symptom, that are disturbing and sometimes frightening. Flushing of the face and a warm feeling as well as light headednes, tingling sensation are all symptoms I deal with or have dealt with. I have many symptoms and I won't list them because the more aware you are of them the more they can bother you. I would not be alarmed by the symptoms you have described. You have discussed them with your doctor and he/she cannot see an underlying problem. If your symptoms become worse in frequency or severity definitely be more persistent with your doctor.

I will say that if you experience panic disorder regularly it is best to treat it as soon as possible. Be proactive but not overactive with your illness.

I am taking 120mg Inderal extended release. This helps with my symptoms of arrhthmia and panic (adrenaline sensitivity). I also take .5 mg Xanax as needed for sleep. I also take Lisinopril for my blood pressure.

Wishing you well
Von

Von That’s a phrase worth repeating…
– “Be proactive but not overactive with your illness.”
Well said.

Thank you both @cyndiblaw and @vdouglas for your replies!

@colleenyoung

Hi @punkin53, welcome to Connect.

@vdouglas @cyndiblaw @skooter27 might you have any thoughts on this?

Colleen
Connect Community Director

Jump to this post

Hello Punkin & Von,

I just read your post Von, and I wish you well, in spite of all of the medical issues you have to deal with on a daily basis. I know how hard that has to be.

I just felt the need to clarify several things…

MVP and Mitral Valave Regurgitation or two separate diagnoses, and I believe, correct me if I’m wrong Punkin, but what you stated in your initial message was that you were diagnosed with Mitral Valve Regurgitation, not MVP? There is a distinct difference.

Although you, Punkin, suffer from both Pulmonary Hypertension, as well as Hypertension, I just wanted to point out that there is a huge difference between Pulmonary Hypertension and Hypertension, as well as those medications prescribed for each one. Hypertension is high systolic blood pressure, where Pulmonary Hypertension is a result of high blood pressure “in” the lungs. If you have’t done so already, go to the Mayo Clinic website, the only one I utilize, and compare the side effects of medications for both diagnoses.

Von…Punkin stated in her message that “my Cardiologist and Pulmonary doctor do not know,” not that they can’t see an underlying problem. Again, not sure Punkin if your physicians addressed your symptoms with testing and found nothing, or maybe suggested any “possibilities” as to why you were having these symptoms, but if they haven’t, which they should have, you need to do some checking yourself.

I can’t end this message without stating that Punkin never mentioned, not once, having a panic disorder, or suffering from panic attacks. Too many physicians today are quick, especially if you are a woman, to blame all heart attack/disease symptoms on anxiety, panic attacks, or even hormonal issues…trust me, I know. If I ever had any anxiety, it was due to cardiologist after cardiologist mis-diagnosing me with one of these three disorders, when all along I had these heart/lung issues:

Primary Pulmonary Hypertension
Hypotension (NOT Hypertension; low blood pressure, not high)
AVNRT (AV nodal re-entry tachycardia)
Atrial septal aneurysm
Paroxysmal Supraventricular Tachycardia
MVP
Mitral Valve Regurgitation
Palpitations
SOB (shortness of breath)
Chest Pain
Abnormal Stress Echos
Abnormal ECG’s (my “new norm”)

I only listed these issues to prove that after firing four cardiologists who tried to diagnose me with anxiety, panic, or hormonal issues, I was right…it was my heart…didn’t really want to be right, and have all of these issues, but I was.

If a patient truly does suffer from any of these “three” issues, they should admit it, and receive medication for it, but if they truly believe that they don’t suffer from anxiety, panic or hormonal issues, they should never settle for any of these as being a diagnosis.

Good Luck to both of you, and God Bless…

@colleenyoung

Hi @punkin53, welcome to Connect.

@vdouglas @cyndiblaw @skooter27 might you have any thoughts on this?

Colleen
Connect Community Director

Jump to this post

Thank you for this information. I struggle with knowing when a symptom is
something I need to bring to my cardiologist attention and when I do not
need to say anything. I am doing acupuncture for anxiety and it seems to
help.

Punkin

Hi Punkin
Glad to hear the acupuncture is working for you. No or less meds is a good thing.
Just want to say; In my previous post I did not read Cynthia’s comments before I responded to you so It appeared as though I was disagreeing with her. I have very little time in the day so I just respond before reading the whole thread.I do not disagree with what she said at all nor was I responding to what she said in any way, but I agree with all that I said “in my situation”.
Regurgitation is leakage through the valve for whatever reason. “My reason” is Prolapse of the Mitral Valve.It can happen with every beat or just once in a while.Your body may respond to that with symptoms; anxiety, trouble sleeping, flush/hot/warm feeling, tingling, a little adrenaline release or whatever.My anxiety gradually got worse over time. It was disabling until I got it under control with minimal medication. That is why I mentioned it. It literally saved my life.
You should “Always” talk to your Doctor nothing is unimportant. Wishing you well,Von
 

Im new to the pulmonary hypertension thing can some help me figure it all out

Welcome to Connect @charbaby40!
I moved your message to this discussion thread in the Heart & Blood Health group so you can meet @cyndiblaw @punkin53 @vdouglas who are also talking about pulmonary hypertension. I’m confident that they will share their experiences and help you figure things out.

Tell us a bit more about yourself. I assume you were just recently diagnosed. What led to your diagnosis of pulmonary hypertension?

After a regular check up my family doctor suggested an EKG. Many years I have dealt with high blood pressure and a little high stats on the cholesterol.I have suffered with panic attacks for more than 30 years and currently valium has helped the pulse rate. There has been MUCH stress over the last 4 years with my young daughter,now 20 years old, having an addiction to drugs and thirteen times in the ER for her condition. The stress has been overwhelming but have never had any effects on the heart, except for the pulse rate. Anyway, after the EKG my doctor suggested I see a cardiologist . No recommendations, so I looked on line for a cardiologist that was nearby. I saw him July 21st, 2017…I did not have any symptoms nor did I feel “bad”. I had a series of tests and on August 18th he diagnosed me with mitral regurgitation murmur.He scared the heck out of me and said I was between severe and critical and would start to pass out and have severe chest pains, etc. I am sure my pressure sky-rocketed after his visit. He wanted me to go a surgeon connected to his “heart group” and suggested a new procedure called TAVR. This same cardiologist, despite being on 20 mg. of Lisinopril twice a day added 25 mg of metoprolol succinate. The doctor he was sending me to planned to schedule a battery of more tests. I did not go to HIS chosen doctor. On August 29th I saw a cardiologist from Northwestern Hospital. He diagnosed me with nonrheumatic aortic valve stenosis and scheduled a return visit in three months after another echo gram. He told me that I at one point I will need surgery to replace the valve but I was too young for that TAVR procedure and that TAVR is still being tested ! He calmed me down some but the stress caused by the first cardiologist can not get out of my mind. I had another echo gram and on December 7th I saw the doc and he said that the test showed a slight change. He also said I do not have the symptoms I should have from the tests. He said my pressure was too low and suggested to cut the blood pressure meds…….I told him for 30 plus years I have been on 40 mg. of Lisinopril and maybe cutting that metopolol to 12.5 gm would be better. After the LOW pressure continued I removed myself from that pill completely….I suffered all the negative side effects from that pill including vision problems. It is hard for him to determine any real physical symptoms to match the test results because I have spent most of the last 3 months doing NOTHING…..he suggested I start to live and do things I did before so we can see the true damage. I do not have to return to him for 6 months unless I have “problems”. I still do not have a normal life because the mental images from the first cardiologist has caused me many physical issues…worrying constantly. I have been told by two of my friends that chelation therapy might help me since it is calcification of the valve. Has anyone tried that ? I know it is not covered by insurance and expensive. I also thought that there was medication that would help with calcification .Needless to say I am scared and my life has been turned upside down. I wish I lived near Mayo Clinic. On a brighter note my daughter has been “clean” for awhile but she moved out of state this past Monday so I am alone and that scares me too . Although I have a young daughter I will be 68 this month. Any advice would be appreciated. Sorry for the long post…. I wish all of you the happiest of holidays and a healthy and happy 2018.

@hazelnut

After a regular check up my family doctor suggested an EKG. Many years I have dealt with high blood pressure and a little high stats on the cholesterol.I have suffered with panic attacks for more than 30 years and currently valium has helped the pulse rate. There has been MUCH stress over the last 4 years with my young daughter,now 20 years old, having an addiction to drugs and thirteen times in the ER for her condition. The stress has been overwhelming but have never had any effects on the heart, except for the pulse rate. Anyway, after the EKG my doctor suggested I see a cardiologist . No recommendations, so I looked on line for a cardiologist that was nearby. I saw him July 21st, 2017…I did not have any symptoms nor did I feel “bad”. I had a series of tests and on August 18th he diagnosed me with mitral regurgitation murmur.He scared the heck out of me and said I was between severe and critical and would start to pass out and have severe chest pains, etc. I am sure my pressure sky-rocketed after his visit. He wanted me to go a surgeon connected to his “heart group” and suggested a new procedure called TAVR. This same cardiologist, despite being on 20 mg. of Lisinopril twice a day added 25 mg of metoprolol succinate. The doctor he was sending me to planned to schedule a battery of more tests. I did not go to HIS chosen doctor. On August 29th I saw a cardiologist from Northwestern Hospital. He diagnosed me with nonrheumatic aortic valve stenosis and scheduled a return visit in three months after another echo gram. He told me that I at one point I will need surgery to replace the valve but I was too young for that TAVR procedure and that TAVR is still being tested ! He calmed me down some but the stress caused by the first cardiologist can not get out of my mind. I had another echo gram and on December 7th I saw the doc and he said that the test showed a slight change. He also said I do not have the symptoms I should have from the tests. He said my pressure was too low and suggested to cut the blood pressure meds…….I told him for 30 plus years I have been on 40 mg. of Lisinopril and maybe cutting that metopolol to 12.5 gm would be better. After the LOW pressure continued I removed myself from that pill completely….I suffered all the negative side effects from that pill including vision problems. It is hard for him to determine any real physical symptoms to match the test results because I have spent most of the last 3 months doing NOTHING…..he suggested I start to live and do things I did before so we can see the true damage. I do not have to return to him for 6 months unless I have “problems”. I still do not have a normal life because the mental images from the first cardiologist has caused me many physical issues…worrying constantly. I have been told by two of my friends that chelation therapy might help me since it is calcification of the valve. Has anyone tried that ? I know it is not covered by insurance and expensive. I also thought that there was medication that would help with calcification .Needless to say I am scared and my life has been turned upside down. I wish I lived near Mayo Clinic. On a brighter note my daughter has been “clean” for awhile but she moved out of state this past Monday so I am alone and that scares me too . Although I have a young daughter I will be 68 this month. Any advice would be appreciated. Sorry for the long post…. I wish all of you the happiest of holidays and a healthy and happy 2018.

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@hazelnut . Although I to am a bit of a worrier, I wanted to chime in to thank you for your transparency on your life. I to have had to deal with panic attacks for many years and after going on a small dose of klonopin many years back I have regained much of that ground lost to fear and live a pretty normal life these days. Back in may of 2014 I had a major heart attack without any prior symptoms and fortunately only needed a single stent to correct and the cardiologist has told me that I am doing well enough that he does not need to see me for another year. I feel really great about that, but I would never had realized how taking a hit like that plays upon my emotions. It is hard to shake the reality that my health has taken a big hit and I had to fight through the mental images of not being “damaged goods”. I make an effort each day to exercise and go for long walks and try to be thankful for so much.
Your worries or concerns are part of the life we have here and I want to encourage you today to not try to internalize them, but rather control the things you can control about your life and be thankful for the lives we share in. My hope is that your daughter stays clean and gets the help she needs to take her life back and release you of your worries.

I have been doing some research on Chelation Therapy and was recently wondering what the Mayo Connect group would offer on this subject? From my research it sounds like the medical community for the most part has been supposedly down on this due to the great results (and therefore decrease in revenue) to them as a whole? There is a MD named Dr. Gary Gordon MD, DO who is called “the father of Chelation Therapy” who is involved with the American College of Advancement in Medicine (ACAM) who has written extensively on this therapy and has a lot to say of its efficacy as it relates to so many health issues. There seems to be more of a push on this therapy and the use of EDTA as a oral supplement has been gaining quite a bit of attention. I would love to hear more from the Mayo Connect group on this subject.

@hazelnut

After a regular check up my family doctor suggested an EKG. Many years I have dealt with high blood pressure and a little high stats on the cholesterol.I have suffered with panic attacks for more than 30 years and currently valium has helped the pulse rate. There has been MUCH stress over the last 4 years with my young daughter,now 20 years old, having an addiction to drugs and thirteen times in the ER for her condition. The stress has been overwhelming but have never had any effects on the heart, except for the pulse rate. Anyway, after the EKG my doctor suggested I see a cardiologist . No recommendations, so I looked on line for a cardiologist that was nearby. I saw him July 21st, 2017…I did not have any symptoms nor did I feel “bad”. I had a series of tests and on August 18th he diagnosed me with mitral regurgitation murmur.He scared the heck out of me and said I was between severe and critical and would start to pass out and have severe chest pains, etc. I am sure my pressure sky-rocketed after his visit. He wanted me to go a surgeon connected to his “heart group” and suggested a new procedure called TAVR. This same cardiologist, despite being on 20 mg. of Lisinopril twice a day added 25 mg of metoprolol succinate. The doctor he was sending me to planned to schedule a battery of more tests. I did not go to HIS chosen doctor. On August 29th I saw a cardiologist from Northwestern Hospital. He diagnosed me with nonrheumatic aortic valve stenosis and scheduled a return visit in three months after another echo gram. He told me that I at one point I will need surgery to replace the valve but I was too young for that TAVR procedure and that TAVR is still being tested ! He calmed me down some but the stress caused by the first cardiologist can not get out of my mind. I had another echo gram and on December 7th I saw the doc and he said that the test showed a slight change. He also said I do not have the symptoms I should have from the tests. He said my pressure was too low and suggested to cut the blood pressure meds…….I told him for 30 plus years I have been on 40 mg. of Lisinopril and maybe cutting that metopolol to 12.5 gm would be better. After the LOW pressure continued I removed myself from that pill completely….I suffered all the negative side effects from that pill including vision problems. It is hard for him to determine any real physical symptoms to match the test results because I have spent most of the last 3 months doing NOTHING…..he suggested I start to live and do things I did before so we can see the true damage. I do not have to return to him for 6 months unless I have “problems”. I still do not have a normal life because the mental images from the first cardiologist has caused me many physical issues…worrying constantly. I have been told by two of my friends that chelation therapy might help me since it is calcification of the valve. Has anyone tried that ? I know it is not covered by insurance and expensive. I also thought that there was medication that would help with calcification .Needless to say I am scared and my life has been turned upside down. I wish I lived near Mayo Clinic. On a brighter note my daughter has been “clean” for awhile but she moved out of state this past Monday so I am alone and that scares me too . Although I have a young daughter I will be 68 this month. Any advice would be appreciated. Sorry for the long post…. I wish all of you the happiest of holidays and a healthy and happy 2018.

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Thank you for your kind words. Congrats on a successful recovery! Regarding chelation therapy : I too am most interested in answers or info from the group. I do know that Medicare will not cover this treatment and I called Blue Cross that is my secondary insurer, but they are not familiar with the treatment either but said I could gather the info from the cardiologists and the doctor involved with the chelation and they will review what if any amount would be covered. I called my cardiologist’s office earlier today regarding all the negative side effects from stopping metoprolol and also asked about taking K2 vitamins which is suppose to help coronary issues. I purchased the vitamins but it was suggested to have doctor approve adding K2 . There is a center 5 minutes from me that offers chelation therapy but without some help from insurance the cost for me would be impossible. Have a great afternoon and hope to hear from you again.

@hazelnut

After a regular check up my family doctor suggested an EKG. Many years I have dealt with high blood pressure and a little high stats on the cholesterol.I have suffered with panic attacks for more than 30 years and currently valium has helped the pulse rate. There has been MUCH stress over the last 4 years with my young daughter,now 20 years old, having an addiction to drugs and thirteen times in the ER for her condition. The stress has been overwhelming but have never had any effects on the heart, except for the pulse rate. Anyway, after the EKG my doctor suggested I see a cardiologist . No recommendations, so I looked on line for a cardiologist that was nearby. I saw him July 21st, 2017…I did not have any symptoms nor did I feel “bad”. I had a series of tests and on August 18th he diagnosed me with mitral regurgitation murmur.He scared the heck out of me and said I was between severe and critical and would start to pass out and have severe chest pains, etc. I am sure my pressure sky-rocketed after his visit. He wanted me to go a surgeon connected to his “heart group” and suggested a new procedure called TAVR. This same cardiologist, despite being on 20 mg. of Lisinopril twice a day added 25 mg of metoprolol succinate. The doctor he was sending me to planned to schedule a battery of more tests. I did not go to HIS chosen doctor. On August 29th I saw a cardiologist from Northwestern Hospital. He diagnosed me with nonrheumatic aortic valve stenosis and scheduled a return visit in three months after another echo gram. He told me that I at one point I will need surgery to replace the valve but I was too young for that TAVR procedure and that TAVR is still being tested ! He calmed me down some but the stress caused by the first cardiologist can not get out of my mind. I had another echo gram and on December 7th I saw the doc and he said that the test showed a slight change. He also said I do not have the symptoms I should have from the tests. He said my pressure was too low and suggested to cut the blood pressure meds…….I told him for 30 plus years I have been on 40 mg. of Lisinopril and maybe cutting that metopolol to 12.5 gm would be better. After the LOW pressure continued I removed myself from that pill completely….I suffered all the negative side effects from that pill including vision problems. It is hard for him to determine any real physical symptoms to match the test results because I have spent most of the last 3 months doing NOTHING…..he suggested I start to live and do things I did before so we can see the true damage. I do not have to return to him for 6 months unless I have “problems”. I still do not have a normal life because the mental images from the first cardiologist has caused me many physical issues…worrying constantly. I have been told by two of my friends that chelation therapy might help me since it is calcification of the valve. Has anyone tried that ? I know it is not covered by insurance and expensive. I also thought that there was medication that would help with calcification .Needless to say I am scared and my life has been turned upside down. I wish I lived near Mayo Clinic. On a brighter note my daughter has been “clean” for awhile but she moved out of state this past Monday so I am alone and that scares me too . Although I have a young daughter I will be 68 this month. Any advice would be appreciated. Sorry for the long post…. I wish all of you the happiest of holidays and a healthy and happy 2018.

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@thankful and @hazelnut
Here are a couple of Mayo Clinic articles written about the effectiveness of ethylenediaminetetraacetic acid (EDTA) chelation therapy.

– Chelation therapy for heart disease: Does it work? http://www.mayoclinic.org/diseases-conditions/heart-disease/expert-answers/chelation-therapy/faq-20157449
– Results of trial to assess chelation therapy (TACT) study presented http://www.mayoclinic.org/medical-professionals/clinical-updates/cardiovascular/results-trial-assess-chelation-therapy-tact-study-presented

The conclusions in these articles state that the effectiveness of chelation therapy for heart disease has not been established, even after a large clinical trial (TACT). Furthermore, there are serious concern about the safety of this treatment for patients with heart disease.

To date, there hasn’t been a discussion dedicated to chelation therapy on Connect. I encourage you to start a new discussion with chelation therapy in the title to get the conversation started.

@hazelnut

After a regular check up my family doctor suggested an EKG. Many years I have dealt with high blood pressure and a little high stats on the cholesterol.I have suffered with panic attacks for more than 30 years and currently valium has helped the pulse rate. There has been MUCH stress over the last 4 years with my young daughter,now 20 years old, having an addiction to drugs and thirteen times in the ER for her condition. The stress has been overwhelming but have never had any effects on the heart, except for the pulse rate. Anyway, after the EKG my doctor suggested I see a cardiologist . No recommendations, so I looked on line for a cardiologist that was nearby. I saw him July 21st, 2017…I did not have any symptoms nor did I feel “bad”. I had a series of tests and on August 18th he diagnosed me with mitral regurgitation murmur.He scared the heck out of me and said I was between severe and critical and would start to pass out and have severe chest pains, etc. I am sure my pressure sky-rocketed after his visit. He wanted me to go a surgeon connected to his “heart group” and suggested a new procedure called TAVR. This same cardiologist, despite being on 20 mg. of Lisinopril twice a day added 25 mg of metoprolol succinate. The doctor he was sending me to planned to schedule a battery of more tests. I did not go to HIS chosen doctor. On August 29th I saw a cardiologist from Northwestern Hospital. He diagnosed me with nonrheumatic aortic valve stenosis and scheduled a return visit in three months after another echo gram. He told me that I at one point I will need surgery to replace the valve but I was too young for that TAVR procedure and that TAVR is still being tested ! He calmed me down some but the stress caused by the first cardiologist can not get out of my mind. I had another echo gram and on December 7th I saw the doc and he said that the test showed a slight change. He also said I do not have the symptoms I should have from the tests. He said my pressure was too low and suggested to cut the blood pressure meds…….I told him for 30 plus years I have been on 40 mg. of Lisinopril and maybe cutting that metopolol to 12.5 gm would be better. After the LOW pressure continued I removed myself from that pill completely….I suffered all the negative side effects from that pill including vision problems. It is hard for him to determine any real physical symptoms to match the test results because I have spent most of the last 3 months doing NOTHING…..he suggested I start to live and do things I did before so we can see the true damage. I do not have to return to him for 6 months unless I have “problems”. I still do not have a normal life because the mental images from the first cardiologist has caused me many physical issues…worrying constantly. I have been told by two of my friends that chelation therapy might help me since it is calcification of the valve. Has anyone tried that ? I know it is not covered by insurance and expensive. I also thought that there was medication that would help with calcification .Needless to say I am scared and my life has been turned upside down. I wish I lived near Mayo Clinic. On a brighter note my daughter has been “clean” for awhile but she moved out of state this past Monday so I am alone and that scares me too . Although I have a young daughter I will be 68 this month. Any advice would be appreciated. Sorry for the long post…. I wish all of you the happiest of holidays and a healthy and happy 2018.

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Thank you! I appreciate the info.

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