1. < Post-COVID Recovery & COVID-19

Thought I was over, but I'm back with PostCovid

Posted by lolaemma @lolaemma, May 10, 2023

I thought that I was over all the leftovers. Now is it possible that it didn't leave me? Fatigue is dragging me down just as breathing heavy is taking hold. I thought I was just depressed about personal matters but falling asleep everyday as well as 8-9 hrs seems excessive. My asthma was in control until January when I tried to decide if my fatigue was asthma, fatigue or depression or wait could it be age? My new Dr is recently back from an eight month maternity leave and doesn't seem engaged.
I have asked another Dr to take me on. I just slump through the days.
I have started to make small do lists and follow through before starting another. I'm kind of tired just putting this together and practicing deep breathing. Is it long haul for life?

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covidstinks2023 | @covidstinks2023 | May 10, 2023

God Bless You! I am 9 months out from Covid and was diagnosed with long Covid last week. I already had inflammation...that became worse after Covid, along with reflux getting worse and excessive sticky saliva. How long ago did you have Covid? Hugs & Prayers...

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 24, 2023

@lolaemma, I'm sure you are discouraged. I think you might appreciate the encouragement shared by members in these 2 related discussions that @ldropps started:

- Anyone have long term recovery? https://connect.mayoclinic.org/discussion/anyone-have-long-term-recovery/

- Stalled Long COVID Recovery: What helps you get back on track? https://connect.mayoclinic.org/discussion/stalled-recovery/

Remember 2 steps forward a 1 step back is still moving forward even when the step backwards seem insurmountable. Are you pacing yourself and finding things that help?

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1 reply
Laura Dropps | @ldropps | May 24, 2023

@lolaemma Hugs. Personally, I believe it's post Covid for life. Although I just got diagnosed with fibromyalgia as well so maybe it's easier for others. I wish I had the answer to make everything better. All I know is I have to do the Mayo Clinic exercises or I won't be able to get out of bed.

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2 replies
lolaemma | @lolaemma | May 28, 2023
In reply to @ldropps "@lolaemma Hugs. Personally, I believe it's post Covid for life. Although I just got diagnosed with..." + (show)
@ldropps

@lolaemma Hugs. Personally, I believe it's post Covid for life. Although I just got diagnosed with fibromyalgia as well so maybe it's easier for others. I wish I had the answer to make everything better. All I know is I have to do the Mayo Clinic exercises or I won't be able to get out of bed.

Jump to this post

I'm sorry to hear that and hope you will be able to heal going forward.

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lolaemma | @lolaemma | May 28, 2023
In reply to @colleenyoung "@lolaemma, I'm sure you are discouraged. I think you might appreciate the encouragement shared by members..." + (show)
@colleenyoung

@lolaemma, I'm sure you are discouraged. I think you might appreciate the encouragement shared by members in these 2 related discussions that @ldropps started:

- Anyone have long term recovery? https://connect.mayoclinic.org/discussion/anyone-have-long-term-recovery/

- Stalled Long COVID Recovery: What helps you get back on track? https://connect.mayoclinic.org/discussion/stalled-recovery/

Remember 2 steps forward a 1 step back is still moving forward even when the step backwards seem insurmountable. Are you pacing yourself and finding things that help?

Jump to this post

After being in a fog for way too
long the fog has lifted and memories are returning. Sometimes as a surprise. I even have some energy. I don't crash until 3 pm currently. A two year stretch over finally. Now to fight
the rigor of age.

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cornelligan | @cornelligan | May 29, 2023
In reply to @ldropps "@lolaemma Hugs. Personally, I believe it's post Covid for life. Although I just got diagnosed with..." + (show)
@ldropps

@lolaemma Hugs. Personally, I believe it's post Covid for life. Although I just got diagnosed with fibromyalgia as well so maybe it's easier for others. I wish I had the answer to make everything better. All I know is I have to do the Mayo Clinic exercises or I won't be able to get out of bed.

Jump to this post

I had Fibromyalgia for years before Long Covid-which is now like having Fibromyalgia to the 10th power. You have my great sympathy because at least I can say I have experience dealing with a debilitating illness that affects multiple body systems, has no cure, most of the medical diagnostic test results are negative, only symptoms can be treated & most treatments don’t work, make me sicker or offer a short respite before symptoms start up again. There’s an LC clinic-the only one in the state of Arkansas -is 3 hours away (still can’t drive that long/far) I’m trying to get in. 1st available appointments-if I’m accepted- is in Feb 2024. Prayers & fingers crossed for us all.

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2 replies
Laura Dropps | @ldropps | May 29, 2023
In reply to @cornelligan "I had Fibromyalgia for years before Long Covid-which is now like having Fibromyalgia to the 10th..." + (show)
@cornelligan

I had Fibromyalgia for years before Long Covid-which is now like having Fibromyalgia to the 10th power. You have my great sympathy because at least I can say I have experience dealing with a debilitating illness that affects multiple body systems, has no cure, most of the medical diagnostic test results are negative, only symptoms can be treated & most treatments don’t work, make me sicker or offer a short respite before symptoms start up again. There’s an LC clinic-the only one in the state of Arkansas -is 3 hours away (still can’t drive that long/far) I’m trying to get in. 1st available appointments-if I’m accepted- is in Feb 2024. Prayers & fingers crossed for us all.

Jump to this post

@cornelligan I think I probably had fibromyalgia long before Covid, but Covid made it that much worse. I hope you are able to get a sooner appointment. Hugs.

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covidstinks2023 | @covidstinks2023 | May 29, 2023
In reply to @cornelligan "I had Fibromyalgia for years before Long Covid-which is now like having Fibromyalgia to the 10th..." + (show)
@cornelligan

I had Fibromyalgia for years before Long Covid-which is now like having Fibromyalgia to the 10th power. You have my great sympathy because at least I can say I have experience dealing with a debilitating illness that affects multiple body systems, has no cure, most of the medical diagnostic test results are negative, only symptoms can be treated & most treatments don’t work, make me sicker or offer a short respite before symptoms start up again. There’s an LC clinic-the only one in the state of Arkansas -is 3 hours away (still can’t drive that long/far) I’m trying to get in. 1st available appointments-if I’m accepted- is in Feb 2024. Prayers & fingers crossed for us all.

Jump to this post

I know some people disagree with me on this, and that's ok. My Fibro ramped up after a rough case of Covid and then I am now being treated for Lupus. I truly believe Covid attacks your weak areas, causes more inflammation and may even cause new autoimmune issues. I'm so sorry you all are going through this. Prayers and hope to all....

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1 reply
cornelligan | @cornelligan | May 29, 2023
In reply to @covidstinks2023 "I know some people disagree with me on this, and that's ok. My Fibro ramped up..." + (show)
@covidstinks2023

I know some people disagree with me on this, and that's ok. My Fibro ramped up after a rough case of Covid and then I am now being treated for Lupus. I truly believe Covid attacks your weak areas, causes more inflammation and may even cause new autoimmune issues. I'm so sorry you all are going through this. Prayers and hope to all....

Jump to this post

💯Agree

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frouke | @frouke | Jun 2, 2023

I think this question has come up before…I’m due for a booster shot, it’s been six months since I had covid and I too am dealing with ongoing problems…my concern is that will the booster make my symptoms worse.. I can’t get much info on this subject. I’m high risk for covid and I took Paxlovid to help me but as much as it helped I did have a rebound from it. I would like to hear from anyone that had to make this decision about getting a vaccine after long covid

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