Mayo Clinic Connect
I just had a lvad placed last month, i was wondering if anyone else has experience with one?i also have an icd which was turned off during surgery because the lvad runs my heart now.
Hi @chipmunk16666, and welcome to Connect. I’m searching for other members who have recently had an LVAD placed, but in the meantime I wanted to connect you with @fr0ggie who recently had an ICD implanted. I hope you both are able to share experiences, as well as provide support, tips and advice to each other.
How has the first month been with your LVAD?
I have an icd but when they installed the lvad=heart pump they turned it off. But i can share experience about icds the lvad is new to me
I was in icu for 5 weeks then moved to a step down floor. I just got home wed. Im really sore the battery backs weigh like 10lbs that you have to be on. Its been rough cause you have to learn to walk again get up and down. It takes time to recover
It’s been a year since you had the left ventricular assist device (LVAD) placed. How are you doing? What has the road to recovery been like?
We look forward to hearing from you.
I am a recent LVAD recipient, and I am looking for people that are in a similar position as me to chat with. I got the HeartMateIII, and I really struggled with my new life and how complicated it would be (things are different). This computer that I have to carry around really made me self-cautious and made me stay home because of my insecurity (does anyone else struggle with this?). My hospital made a recommendation to me, and I am so glad that they did. I was referred to the carewmedicalwear I tried many different ways to help me feel more confident, but this was well worth the money spent. I now feel a lot more comfortable in public and in cardiac rehab. As a LVAD patient, I thought it would be nice to share this for people that are like me and struggle. My hospital did say that they have a non-profit that is going to stock this LVAD vest in the hospital to give to the patients. So cool! Well, hope all of my other lvad friends are living life to the fullest and getting around the best we can. Stay Strong! Bryan
Liked by Teresa, Volunteer Mentor
Welcome. I moved your message to this existing discussion about LVAD so you can meet @chipmunk16666. Chipmunk had an LVAD placed last year.
Bryan, when did you get your LVAD?
Hi Bryan, I have a right VAD and left VAD (Bi VAD) I have a heartmate lll and a Heartware ll. I find it very difficult getting around. I have seen the vests, but I don’t think they have invented anything for Bi VADs. I seen your post was written awhile ago, so I hope you are doing well and have gotten your confidence back! Would love to chat with you!
Liked by Kanaaz Pereira, Connect Moderator
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