Small Vessel Disease in the Brain & Cavernous Malformation

Posted by sue60 @sue60, Apr 11, 2016

I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and ir is so much easier to do that. The sad part is I don’t really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?

@maria7521

I had a cavernoma removed from my brainstem 4 weeks ago. I’m wondering how long it took you to recover? I still have extreme heaviness and tingling as well as numbness in the right side. Will this eventually go away? How about your Bell’s palsy symptoms? I loved being at the Mayo Clinic and if I knew it would be this hard at home I would have tried to stay in rehab longer! Thanks for the replies.

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Thank you Nancy….I appreciate your words very much!

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I was recently diagnosed with small vessel disease in the brain. There doesn't appear to be much self help regarding this disease on the internet.

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@dorac

I was recently diagnosed with small vessel disease in the brain. There doesn't appear to be much self help regarding this disease on the internet.

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Welcome to Connect, @dorac
You are not alone. I'd like to introduce to you other members who are also living with small vessel disease in the brain, like @niquinon @lhopper123 @nancywootten @brenda68 @venki and @smilesyourway.

Dorac, while we wait for others to join the conversation, can you tell us a bit more about yourself. You mention that you were recently diagnosed with small vessel disease. That can be hard to hear. I love reading Nancy's posts about actions she is taking in both activities and attitude to keep her mind active and the condition at bay for as long as possible. Do you have activities that you enjoy to keep you mind stimulated?

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@dorac

I was recently diagnosed with small vessel disease in the brain. There doesn't appear to be much self help regarding this disease on the internet.

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@dorac I also have this disease at age 42, apart from aspirin and trying to eat healthy and exercise I have not been advised on anything else, not sure how the disease progresses, I hope you find some Answers! Live my life day to day! I have also been taking CBD oil which is helping my symptoms

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