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I have Interstitial Lung disease
Figure I got from construction dust and such. Wondering about treatments others have tried? Heard methotrexate not good for the RA in my lungs. I take 4 pills a week for severe RA. 10 mg total
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@lady25 Welcome to Mayo Clinic Connect! I’m so glad you found this site and I know that members will want to help. To get you started, here is a discussion that you might find interesting.
https://connect.mayoclinic.org/discussion/interstitial-lung-disease-1/
By the way, how did you find MCC?
I have IlD & sleep with 4 liters of oxygen. During thr day I am ok but night time I have problems coughing & weakness.
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1 ReactionI also have Hemochromatosis and get blood draw when Ferritin is over 50, unfortunately my blood is so thick and sticking that it always clots and they have to use 35 10cc syringes and flush after every 5 . To further complicate things I have Porphyria which is a disease that I am lacking enzymes to transport oxygen blood to my lungs where it sticks to my lung scars and makes it hard to breathe. I have been every where including MAYO Clinic but no one has an answer
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