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I have Interstitial Lung disease

Autoimmune Diseases | Last Active: Sep 20, 2025 | Replies (3)

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I have IlD & sleep with 4 liters of oxygen. During thr day I am ok but night time I have problems coughing & weakness.

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Replies to "I have IlD & sleep with 4 liters of oxygen. During thr day I am ok..."

I also have Hemochromatosis and get blood draw when Ferritin is over 50, unfortunately my blood is so thick and sticking that it always clots and they have to use 35 10cc syringes and flush after every 5 . To further complicate things I have Porphyria which is a disease that I am lacking enzymes to transport oxygen blood to my lungs where it sticks to my lung scars and makes it hard to breathe. I have been every where including MAYO Clinic but no one has an answer