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I feel like Physical Therapy is making small fiber neuropathy worse
Hello everyone, I have been doing PT for the past three weeks for SFN. I don’t have numbness just tons of pain in both feet. I have been given stretching exercises to help with the pain and flexibility. The therapist wants me to do these exercises three to four times a day, 15 reps each and also increase my walking. My pain level has gone up significantly and I feel very frustrated because nerve pain seems to have a mind of its own. I am getting more searing pain on top of feet and more fasciculations. I feel as if I’m damned if I do and damned if I don’t move enough as well. I am asking the group if anyone has gone down this same road with PT. I really hate to stop it completely but sometimes I feel like I just have to listen to what the pain is telling me. Thanks for any advice.
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I would not stop taking statin medication without talking to your doctor. There is another discussion on the topic you may want to read through.
-- Statins and peripheral neuropathy: https://connect.mayoclinic.org/discussion/statins-and-peripheral-neuropathy/
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1 ReactionMy pharmacist told me you have to stop when taking antibiotics. No weaning time. Felt better when I stopped taking statins. They are neurotoxic, made my neuropathy 10x worse.
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2 ReactionsI can relate. I noticed it when I started the rowing machine, so I thought maybe it was the motions I was making.
I haven't read the entire thread, but I noticed people talk about statins. Everything got worse when I started Lipitor, I was even telling people that it made it feel like I had Parkinson's. I did quit before I started therapy, and like I mentioned the rowing machine. But I don't know if that was it. But I can assure you that statins are neurotoxic medications, I was diagnosed with hereditary neuropathy and small fiber. My hereditary disease actually has a full list of neurotoxic medications, and I know there are more. And Lipitor made the list.
Now its gotten so bad every time I stand my legs start shaking, showers are the worst. I can't even lay on my left side it's so inflamed. And the fasciculations that started in my lower limbs are now widespread. I hate to lose strength in my limbs, but exercise kills me,I get so tired so quickly, and I was very physically active before the neuropathy.
I still believe there is an underlying condition they are missing and not treating. Everyone experiences neuropathy in different degrees and with different causes, so I believe exercise can make it worse, as well as lack of restful sleep.