I feel like Physical Therapy is making me worse.

Posted by laura @lauraj155, Apr 15, 2019

Hello everyone, I have been doing PT for the past three weeks for SFN. I don’t have numbness just tons of pain in both feet. I have been given stretching exercises to help with the pain and flexibility. The therapist wants me to do these exercises three to four times a day, 15 reps each and also increase my walking. My pain level has gone up significantly and I feel very frustrated because nerve pain seems to have a mind of its own. I am getting more searing pain on top of feet and more fasciculations. I feel as if I’m damned if I do and damned if I don’t move enough as well. I am asking the group if anyone has gone down this same road with PT. I really hate to stop it completely but sometimes I feel like I just have to listen to what the pain is telling me. Thanks for any advice.

@debjay

Hello @kklopfen I just want to say that I also live in the Houston area, have been bounced around to doctors for several years and still do not have a diagnosis after much genetic testing. My Neuromuscular doc has suggested Mayo in Rochester. Message me if you want to compare notes – perhaps we have both been tossed around among the same doctors.

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Hi @debjay, welcome to Connect. Thank you for posting and joining the discussion. It really helps when members with similar symptoms and conditions can share their personal experience. Have you also been diagnosed with small fiber neuropathy?

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@dancermurphy

Have you had a brain MRI ? Mine is tomorrow and it will be my last test after EMG , neck and lumbar MRI ‘s and many blood test . They have to rules out MS and if it is not they will link it back to my neck surgery . I am doing PT , massage , Reiki to calm me down which has helped. I have it all over my body and makes me very sad as I am very fit 61 year old . I had my first cbd brownie and it helped me go to sleep . I was taking a few muscle relaxer ‘s and did not want to get addicted to those as they are addicting . I am on gabapentin time release called Horizant . One pill at night helps me not forget all day because it is not a good time if I do . I wish you peace and know there are a lot of us searching for answers!!

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@dancermurphy, I’m so sorry for everything you have been through and it sounds like you are working very hard to find relief. You said that your pain may have been caused by your neck surgery. I had a lumbar herniated disk when I was in my late twenties and after that ordeal I hurt in many areas and was told later that it was Fibromyalgia. That condition is helped very much by massage for me and swimming, especially in a warm pool. I wish you the very best and so hope your pain will calm down soon!! -Laura

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@lauraj155

@lorirenee1, I looked up the fatty acid that you are taking and it looks like you can take it with ala, an antioxidant, together for a synergistic effect. Alpha Lipoic acid is targeted for neuropathy caused by diabetes, which I don’t have but thinking it may be good for the pain. I am interested in finding anything I can consume naturally. That is great news that PEA may be helping you. It does take a bit of time to notice the effects with both of them. I will keep in touch! Laura

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Laura, Not having a good foot day at all today, so God knows what works and what does not. Feeling very discouraged. Maybe tomorrow will be better again. Thank God for my CBD drops. This is not an easy things. Just not easy. Later….Lori Renee

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@lorirenee1

Laura, Not having a good foot day at all today, so God knows what works and what does not. Feeling very discouraged. Maybe tomorrow will be better again. Thank God for my CBD drops. This is not an easy things. Just not easy. Later….Lori Renee

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@lorirenee1, how are you doing? I hope today is much better! I still think it sounded like you were doing better overall. I think the bad days are to be expected but it’s tough when it hits us like a ton of bricks! A little like one step forward and two steps back at times…Hope to here what your NEURO says to you this week. Hang in there!!! -Laura

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Hi Laura, Hi! I am much better today. There is utterly no rhyme or reason to these feet. How are yours today? Would you have ever imagined a life revolved around feet of all things? More specifically with me, toes? And with you, it sounds like the tops of the feet, where I have utterly no pain. It all depends where the nerve damage and death is. A real crap shoot. I wish you the best day you could have. My toes don't hurt, aren't feeling pulled out of their sockets; it's a good day! Lori Renee

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