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I don't really know where we are medically or how to finding out
I'm 2017 husband had leukemia. Treatment left severe "brain fog" and doctor started him on a moderate dementia medication. About 2020 he developed Adult Onset Hydrocephelys (sp) and had a shunt put in. Since then because of memory decline he has been put on a memory medication by his neurologist, and most recently she doubled it. I just don't know what I'm dealing with but it is getting very stressful. I brought up issues in a neurology appointment and it crushed him. Then it crushed me. We downsized and put everything in storage 3 years ago and he is just now accepting that. He is short with me. Nothing is ever his fault, makes such stupid excuses like a little kid, is very forgetful but in good spirits for the most part of his days. He is also 85 y.o. I took driving from him a year ago because all 4 quarter panels were smashed, the front of the garage had to be replaced, and he got lost in his home town wandering for over an hour.
He has a neurology appt coming up. I'm wondering if I could send ahead some details to the doctor so I don't have to bring them up in the appt.
Sorry for this being so long. It's only the part of what is going on but if questions arise I'll be happy to answer. And I've kept all these situations to myself for so long.
Bless you all for the care you provide to those that desperately need us caregiversš
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@judimahoney
I guess it all got fuzzy when he was referred to the neurologist by his family physician, her thinking it may be Parkinson's. Lots of tests and time to discover the hydrocephalus.
I think any other diagnosis may have gotten lost in the mix.
Ha, I just remembered that the neurologist said depending on how long the spinal fluid was sitting on top of the brain affects how much cognitive recovery there would be.
But he got better and the last year and a half he had been degrading. All they can do is medications I guess.
I think I need to bite the bullet and all at the next appointment what is going on.
Recently I asked my husband if he's noticed the decline and he got pretty upset. Said he was just fine. I said, do you realize you are watching the same shows over and over again. He told me eventually he realizes he seen it before. š¤·
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2 Reactions@labrown
Yes, this is what I need to do.
For my sanity, if nothing else. Thank you!!!
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2 ReactionsBecause this horrible disease called dementia is more and more prevalent, I'm just wondering why we can't choose in our health directive while we are healthy and of sound mind to choose end of life medical assistance if we ourselves ever get to what I would call a "terminal" state of dementia - because we've all seen the progression and it is so sad to see someone go on and on for years not being able to function at the most basic levels and not knowing who they are or their family, and as we all know, it ain't gonna ever get better. Then, ending up in a wheelchair in a total daze for months, or years before they pass on. I'm wondering if maybe somewhere inside all that blankness they just want to move on... this may sound harsh but I'm talking for myself here.
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3 Reactions@oneputt
I understand your thoughts totally.
My husband and I have discussed this as we donāt want to be in a āterminal state of dementiaā for years.
In researching states where āend of life careā is available, a doctor has to access that you have an illness where you will pass away in 6-12 months. Well, with dementia/AD, how long someone will live is not easily determined. When the person is at that stage, moving them to a state where this is available would also be a challenge.
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