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Patient Resources for Long Covid

Posted by diverdown1 @diverdown1, 6 days ago

I do not remember if I have posted this site before for LC: I may have already posted this site. The last email I got from them had a lot of resources.

Here is the site.
- Long Covid Alliance: Patient Resources https://longcovidalliance.org/resources/patients/

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Colleen Young, Connect Director | @colleenyoung | 5 days ago

Thanks, @diverdown1. Do you know if the Long Covid Alliance is still active? It looks like it hasn't been updated since 2023. The latest reports, media, webinars, resources are dated 2023 or earlier.

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diverdown1 | @diverdown1 | 5 days ago
In reply to @colleenyoung "Thanks, @diverdown1. Do you know if the Long Covid Alliance is still active? It looks like..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

Thanks, @diverdown1. Do you know if the Long Covid Alliance is still active? It looks like it hasn't been updated since 2023. The latest reports, media, webinars, resources are dated 2023 or earlier.

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@colleenyoung Good morning, they are still active. My suggestion is to reach out to them, if anyone is interested. Their website is copyrighted for 2026, however I do not know if the research funding is cut or if they have not published since 2023. I reached out to them and they sent me a list of resources, however as I said in an earlier comment, a lot has changed since 2024.
https://longcovidalliance.org/
https://solvecfs.org/
Already posted these folks, but just in case...

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altilla | @altilla | 5 days ago
In reply to @diverdown1 "@colleenyoung Good morning, they are still active. My suggestion is to reach out to them, if..." + (show)
Profile picture for diverdown1 @diverdown1

@colleenyoung Good morning, they are still active. My suggestion is to reach out to them, if anyone is interested. Their website is copyrighted for 2026, however I do not know if the research funding is cut or if they have not published since 2023. I reached out to them and they sent me a list of resources, however as I said in an earlier comment, a lot has changed since 2024.
https://longcovidalliance.org/
https://solvecfs.org/
Already posted these folks, but just in case...

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@diverdown1 I appreciate this. Resources that are still active can be hard to find. Thanks!

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