Patient Resources for Long Covid

Posted by diverdown1 @diverdown1, 5 days ago

I do not remember if I have posted this site before for LC: I may have already posted this site. The last email I got from them had a lot of resources.

Here is the site.
- Long Covid Alliance: Patient Resources https://longcovidalliance.org/resources/patients/

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Colleen Young, Connect Director | @colleenyoung | 5 days ago

Thanks, @diverdown1. Do you know if the Long Covid Alliance is still active? It looks like it hasn't been updated since 2023. The latest reports, media, webinars, resources are dated 2023 or earlier.

diverdown1 | @diverdown1 | 4 days ago

In reply to @colleenyoung "Thanks, @diverdown1. Do you know if the Long Covid Alliance is still active? It looks like..." + (show)

@colleenyoung Good morning, they are still active. My suggestion is to reach out to them, if anyone is interested. Their website is copyrighted for 2026, however I do not know if the research funding is cut or if they have not published since 2023. I reached out to them and they sent me a list of resources, however as I said in an earlier comment, a lot has changed since 2024.
https://longcovidalliance.org/
https://solvecfs.org/
Already posted these folks, but just in case...

altilla | @altilla | 4 days ago

In reply to @diverdown1 "@colleenyoung Good morning, they are still active. My suggestion is to reach out to them, if..." + (show)

@diverdown1 I appreciate this. Resources that are still active can be hard to find. Thanks!

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