@colleenyoung Good morning, they are still active. My suggestion is to reach out to them, if anyone is interested. Their website is copyrighted for 2026, however I do not know if the research funding is cut or if they have not published since 2023. I reached out to them and they sent me a list of resources, however as I said in an earlier comment, a lot has changed since 2024.
https://longcovidalliance.org/
https://solvecfs.org/
Already posted these folks, but just in case...