Mayo Clinic Connect
I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?
Liked by Dee, coquimti, Molly MIller, farmgirl1556 ... see all
@gwinter I drink 3-4 bottles of water daily, 16.9 oz each. I'm not overly dry anywhere else. So I don't think it is dehydration.
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I started out on Tamoxifen. I was on it for 2 years. It damaged my Liver. So my Dr. put me on
Letrazole. The pain in my joints was terrible. I am now on Anastrozole. The insomnia and fatigue and constipation has been bad. Not sleeping has been the hardest for me. I am taking a break from it for a couple of months. I have been on it for over a year.
@appaloosagal – Enjoy the break from the meds. Sometimes I feel as though the cure is worse than the disease.
Liked by trixie1313
I so agree.
I also have insomnia. When mentioned to my doctor – she said it was an unusual side effect. She suggested taking a benadryl before bedtime. Yes – it does suck all the water out of you – I seem to drink water all day long, like 6 to 8 bottles. I also had the constipation – starting taking like 4 dried prunes a day – I buy the ones packaged singly. That really helped with that problem. I think the fatigue has lessened – but I starting going to the gym regularly, as my Dr. said EXERCISE. And I do feel much better. I'm on anastrozole – Starting my 6th month on it.
Just switched to it two days ago from Tamoxifen. We'll see how it goes. I am already suffering from CIPN in my feet ( feels like electricity 24 hours a day) so I hope no more pain with this med!
I, too, have CIPN… it's a bear, isn't it? I have found remarkable relief (from the burning and electrical shocks) with an all natural fatty acid amide called Palmitoylethanolamide (PEA) — no side effects, AND, you can buy it on Amazon. Look for the unadulterated kind (without B vitamins and such). It normally takes about 3 weeks to notice a considerable difference.
Liked by kathyomaha55
What dosage do you use? I have PN – got it before I had cancer. Not from Diabetes.
What I've been buying comes in 400mg capsules (ultramicronized PEA from The Netherlands). On good days, I take two, 12-hours apart. On bad days, sometimes up to four. I noticed that one study used up to 2000 mg/day for people with CIPN, and another used 600 mg/day. [I also take Alpha Lipoic Acid twice a day which is reportedly good for nerve health, but alone, it did nothing for the pain.]
sadfeet – you switched from Tamoxifen to another pill? Which one? and why did you switch from Tamoxifen?
When I first got PN – My neurologist gave me Gabapentin (generic Lyrica) which is for nerve pain. It does work, I take it before bedtime (200 mg). I was wondering if this PEA will work to remove it long term. I've struggled with this for like 9 years.
I don't know. My situation is that I am unable to tolerate gabapentin, venlafaxine, and other such drugs… they all give me brain fog (worse than chemo did). I had to search for something natural, with no side effects, and came upon PEA which has been a godsend. Before it, I also had relief from a Chinese herbal pill called Zhi Bai Du Huang Wan which I got from my acupuncturist. From what I read, no one seems to know why some people evolve out of CIPN and others don't.
Something which you may want to explore: on the Mayo website, an employee tried the Calmare Strambler Therapy. She had had CIPN for ten years, and found relief after one treatment; a pain specialist at Johns Hopkins also has had some success with it. See http://calmarett.com/ for doctors who provide this treatment. It is not covered by insurance, however. I tried it anyway… (unsuccessfully).
I was switched to anastrozole. I was premenopausal prior to chemo. Chemo put me into menopause but they were not sure if it would be permanent so started me on Tamoxifen. I took that for three years and now have been switched to the AI because they are sure I am i permanent menopause and there are some studies that show it may be more effective for post menopausal women.
All, I was taking Femura for 6 weeks and had terrible bone/joint pain. My oncologist gave me a two week break which is now over. Today, my oncologist recommended I try Aromosin. I would like to know your experience with Aromosin, specifically regarding side effects. Thank you
@francine6829 I want to follow because I start soon, also!!
@gwinter– This is interesting to me, too. I just did a two week trial of going off Arimidex for 2 weeks. I started back on it today. I have been taking it for 14 months with all the side effects we've been reading about on this post. I wanted to see if it was responsible for unbearable leg and knee pain I was having, or if that was being caused by my spinal stenosis. The leg pain did go away after about a week off of Arimidex. I'm waiting to see if it comes back now that I'm back on it To be continued…
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