Mayo Clinic Connect
I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?
Liked by coquimti, Molly MIller, farmgirl1556, kathyomaha55
My oncologist wanted me to go BACK on Femura. I said no due to the bone pain. And I also said no to Arimidex after reading all these posts. We'll see what happens with Aromosin. I am hoping to hear some comments from ladies who have been on Aromosin.
You may recall me posting a few weeks ago that a member of my Cancer Support Group noted that her oncologist recommended turmeric for the bone/joint pain of AIs, and that I was going to give it a try. I chose Bio Schwartz Turmeric Curcumin 1500 mg, if taken 3 times a day. I've been taking it twice a day (so getting more like 1,000 mg). These things are all very subjective, I know, but my experience so far is that I'm not having the bone/joint pain previously experienced! Thought you might want to know.
Liked by farmgirl1556, trixie1313
I just started taking Tumeric. We will see what happens on Aromosin.
Liked by trixie1313
I've used it over the years for arthritis and spine pain and it does bring the pain level down a notch. Be sure to drink lots of water when you take it – you might get some "burpees."
Liked by elizm
What is your dosage of Tumeric?
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@francine6829 how is the aramosin going? Turmeric?
Feeling some aches but not as bad as Femura. It’s only been a week tho. I am taking Tumeric
How much turmeric?
@gwinter– This is interesting to me, too. I just did a two week trial of going off Arimidex for 2 weeks. I started back on it today. I have been taking it for 14 months with all the side effects we've been reading about on this post. I wanted to see if it was responsible for unbearable leg and knee pain I was having, or if that was being caused by my spinal stenosis. The leg pain did go away after about a week off of Arimidex. I'm waiting to see if it comes back now that I'm back on it To be continued…
@gwinter– Good morning everyone. I wrote several weeks ago to say that I've been on Arimidex for 15 months now and the side effects for me, anyway, are hard to tolerate. Bone and joint pain, weakness in my knees, a general feeling that I've aged about 100 years. (I'm 74 now!) I just wrote a pretty lengthy email to my Oncologist enumerating all these symptoms and more, and asking for her experience and feedback about other choices of AI's. she said other people have fewer side effects from Letrozole and/or Tomoxifen (not an AI)). I know that Arimidex is said to be the most effective in preventing a recurrence, so I am conflicted! I'd love to hear feedback from anyone who has switched from Arimidex to another AI to see if you found relief from side effects.
I was on Femura/Letrozole for 6 weeks and had all the symptoms your described for Arimidex. Horrible. My oncologist told me to take a break for 2 weeks, which I did. I am now on Aromosin for 3 weeks and the jury is still out. Have some aches, but I think the worse kicks in about 5-6 weeks. I would love to try Tomoxifen but my Oncologist wanted me to try Aromosin first.
Liked by sparklegram
@francine6829 – I've read online about the comparative side effects of Arimidex, Letrozole and Tamoxifen, and it seems to me they are almost identical. I don't know about Aromosin.
Liked by kathyomaha55
I was on anastrozole (Arimidex) for about a month and had headaches 25 days and then none for 5 days. Then….Boom…horrendous headaches, nausea, sweats,, fevers, extreme weakness, etc. but found out that it was from a bacterial infection and diverticulitis. My oncologist has told me to go off of anastrozole for 2 weeks and we'll talk again then. I probably had the infection for about 2 weeks before seeing my doctor while blaming the anastrozole for all the side effects! Now that I'm off of it, I've noticed more bone and joint pain and sweats which I think must be withdrawal from it. The joint pain I had from the AI had been managed by 5,000 U of vitamin D3. So I guess I'll find out what's really what once I get put back on whatever it is I have to go on.
Liked by kathyomaha55, sparklegram
I've been on anastrozole for about 6 months now. I'm only taking 1,000 U of D3 oil. I will try your dosage. My doctor said EXERCISE, Exercise & Exercise! Of course I do not feel like exercise but have been trying and – it really does make me feel better! The YMCA has a program called Livestrong, a free 12 week program for cancer survivors. It is worth looking into if you have a Y nearby. I have arthritis in my knees, so it was hard to tell if the pain was from that or from the drug. I'm going to try to keep up the exercise & my best wishes for you. Yeah – 5 years seems like a long time (I'm 63) and 10 years seems like forever. I'm at least going to try for the 5 years. 🙂
Liked by Colleen Young, Connect Director, trixie1313, sparklegram
Trixie, I'm sorry to hear about all of these issues you've had to deal with. Please do let us know how you respond to your next bout with an AI. It's all so confusing. I'm 74 and it's difficult to discern what is being caused by age or the AI. All I know is I never felt this fatique and weakness before I began taking Arimidex. Of course, I won't stop taking the meds because I don't want a recurrence of cancer.
Kathy – check with your oncologist first on D3 dosage. I went from 1,000 to 2,000 and then got the okay for the 5,000. Thanks for the info on the "Y"…I'll check into it. I was walking once to twice a week before I got hit with all that extra stuff. Am just now starting to get my bearings again. Have been working in my garden and plan to start walking up and down my street again when the groin pain eases off.
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