I am going to cry

Posted by standinginfaith @standinginfaith, Jun 10 4:41am

I took an antibiotic 7 years ago and it blew a hemorrhage in my stomach and then .. doctors doctors.. now the rheumatologist says he can't treat fibromyalgia. A surprise diagnosis and I have to find a new one ..finally made it to the allergist.. I've been in and out of the hospital for several years..and she says it 's CSU Chronic Spontaneous Urticaria..I get so sick from anything..I might be able to get a Xolair shot.. the 2 months waiting have been agonizing.. and I'm a Christian and trying to keep my faith but it's getting hard.I used to be so active . sales rep for about 40 years 1000 miles a weak.. and haven't driven in over 3 years. Every dr has a new diagnosis..I live very rural.. have a great PC but .. I am in 3rd stage kidney failure and the nephrologist is condescending and wants me to take meds I react to.. and gets nasty with me.. can't get in to see another on til December..when my husband got cancer I cried and it upset him so I didn't cry from Nov 2 til June 16th when he passed 15 years ago. I wasn't able to see my Daddy before he passed at a month before his 99 th birthday and my Mommy passed in July of last year..I was passing a 10.7mm kidney stone and made it to the new gastro when I got a facebook message from my little sister ."Mom's not long for this world.". was on the phone arguing with the urologist later that day when my sister messaged me ..mom's dead.. (they lived over a 1000 miles away) ..I'm on my 3rd try for meds for an infection and they are making me sick. what is the point of going on.. no children.. 72 years old.. just wanted to tell someone.. can't tell my friends.. they are tired of hearing it. I see everyone else doing thing ..not me...I feel guilty for not trusting God more.. dread waking up every day..eating is so scary ..so ..I am positive for scleroderma.. I think I might be depressed..and I might just cry..Dave's not here so it won't hurt him..I know I should be grateful to be breathing but this medical battle is getting old..I am so grateful for this forum.. everyone is so supportive.. thank you for being here..!! God bless you all!

Interested in more discussions like this? Go to the Women's Health Support Group.

Hi...oh my goodness...BIG HUG!!! If you were my neighbor I would walk you to a chair and make you a cup of tea, my Dear! And give you another BIIIGGG HUG!! You feel so not even misunderstood...just NOT understood. And I am so sorry. It is disintegrating to feel that you have so much going on and there are so few answers for you...I know, I'm in the same place. And on top of that it seems like your world is coming unglued at the same time. But Honey, here we are, right? Here we sit having our tea, trying not to cry...but it's ok to cry, ya know? This is not fair what we are going through. Just let it out with someone who will just be there for you for a little while. (I cry with an favorite old pillow sometimes.) It's an "ugly cry." That's okay. Cry it all out...I won't care if you don't!
And now... can't cry all day! No, we know we can't! That's not us really, really it's not! One more BIG HUG!! Whew!! That seemed to help, a little anyway. But...now what? We have to get ON WITH LIVING... I need to get in for a blood test I've been putting off. Don't you owe your little sister a call? How long has it been? Then I can help you Google your meds and see why they are making you sick and maybe what other ones you can tell your NEW Likeable Doctor to give to you instead.

Turn things a little bit Honey, just a little! There is some good out there if you look for it!!

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Thank you so much for the hugs.they really helped!! I appreciate you very much!! I googled and googled.. zolair is my big hope..wellJesus is our big hope..He is the healer!! My little sister and I have communicated..(settling parents estate..and ..poor sister.. her husband passed in September . he was only 70 and had had back surgery and was in the hospital for 4 days ..she went to pick him up and just went down to the pharmacy to get his meds and they said.."we can't sell them to you..she didnt know why. they someone called down and said he had had a massive heart attack..and died.. they worked on him for 7 hrs and she got to talk to him some.. she has really been thru it.so..yes we've talked and I never said anything about how she told me about my Mom.. I didn't want her to feel worse..she has a bad autoimmune disease that came on suddenly probably due to the stress of taking care of my parents) please get your bloodwork done!! I'll be praying for you!!

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Thank you so much!! Great info..and prayers!! Prayers are the best!! God has healed me from alot of things..oyloric stenosis , scurvy (I got down to 98 lbs..now I'm overweight.oh..have to work on that) but anyway..We know who the real Healer is!! I watch alot of Christian TV every night..not feeling well enough to get out after 6 rounds of reactions to meds and food.. the allergist told me. eat anything.. I did.no good..we have to really listen to the Holy Spirit. and I'm so grateful to be a child of God thru Christ Jesus. so glad you are to!! I've done the elimination diet and well I just found out the shot they say I need will be $1000 a month (my cost share) ..Meds by Mail has it free but dosage to low (husband was 100% DAV Vietnam vet).. in any event. we will be healed..and Heaven is a glorious place!! ..I'll be praying for you and your loved one going thru breast cancer treatment (I have a "spot" they are "watching.. claiming they will watch it disappear..Trina Hankins brain tumor disappeared and God is no respecter of persons!!) Be blessed you wonderful child of the most High..!!

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Profile picture for standinginfaith @standinginfaith

Thank you so much!! Great info..and prayers!! Prayers are the best!! God has healed me from alot of things..oyloric stenosis , scurvy (I got down to 98 lbs..now I'm overweight.oh..have to work on that) but anyway..We know who the real Healer is!! I watch alot of Christian TV every night..not feeling well enough to get out after 6 rounds of reactions to meds and food.. the allergist told me. eat anything.. I did.no good..we have to really listen to the Holy Spirit. and I'm so grateful to be a child of God thru Christ Jesus. so glad you are to!! I've done the elimination diet and well I just found out the shot they say I need will be $1000 a month (my cost share) ..Meds by Mail has it free but dosage to low (husband was 100% DAV Vietnam vet).. in any event. we will be healed..and Heaven is a glorious place!! ..I'll be praying for you and your loved one going thru breast cancer treatment (I have a "spot" they are "watching.. claiming they will watch it disappear..Trina Hankins brain tumor disappeared and God is no respecter of persons!!) Be blessed you wonderful child of the most High..!!

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@standinginfaith do you watch David Jeremiah? He is on various TV stations on Sunday nights and his current talks are on the Holy Spirit.

My daughter, who has been walking through an anaphylactic allergy landmine since a teenager (she is 45 now), has been taking Xolair injections every month for the past few years and they have helped her with some of her food allergies. She still carries two EpiPens at all times.

I would be wary of buying any medications online these days, considering AI scams abound and it is difficult to determine if a website is the real one. Better to go through a known local pharmacy for any medications!

In the meantime … hope this hymn brings you some comfort - praying for you!
https://m.youtube.com/watch

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Yes I do watch David Jeremiah!! He is spot on!! Love him!! Thank you so much for your prayers!!I appreciate you so much!! and I don't buy meds on line..prayers for your daughter!! The hymn is beautiful!! God bless you!!

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Profile picture for Judyinjeans.        @judyingenes

Hi...oh my goodness...BIG HUG!!! If you were my neighbor I would walk you to a chair and make you a cup of tea, my Dear! And give you another BIIIGGG HUG!! You feel so not even misunderstood...just NOT understood. And I am so sorry. It is disintegrating to feel that you have so much going on and there are so few answers for you...I know, I'm in the same place. And on top of that it seems like your world is coming unglued at the same time. But Honey, here we are, right? Here we sit having our tea, trying not to cry...but it's ok to cry, ya know? This is not fair what we are going through. Just let it out with someone who will just be there for you for a little while. (I cry with an favorite old pillow sometimes.) It's an "ugly cry." That's okay. Cry it all out...I won't care if you don't!
And now... can't cry all day! No, we know we can't! That's not us really, really it's not! One more BIG HUG!! Whew!! That seemed to help, a little anyway. But...now what? We have to get ON WITH LIVING... I need to get in for a blood test I've been putting off. Don't you owe your little sister a call? How long has it been? Then I can help you Google your meds and see why they are making you sick and maybe what other ones you can tell your NEW Likeable Doctor to give to you instead.

Turn things a little bit Honey, just a little! There is some good out there if you look for it!!

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@judyingenes I just landed upon this thread. Your comment is so heartfelt and beautiful. The perfect example of one stranger uplifting another in an online community. You're an amazing person. I love your spirit and positivity. 🤗❤️

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I am so sorry your doctors are not finding the root causes of your ailments. It's not uncommon unfortunately. Lauracbaker posted some very important things. Please consider entertaining that some health care providers deal with the root causes of illnesses that allopathic doctors are not exposed to in medical school. God can put this info in your view to consider while you pray. Antibiotics are lifesaving and also obliterate our necessary flora that is part of our health. Most of us are low in vitamin D which affects our immunity and gut integrity which makes us reactive to foods that we aren't allergic to. This can lead to autoimmune conditions and one often leads to more. One more suggestion: There is a Christian doctor who has also been practicing functional medicine that addresses the root causes of illness. Every Tuesday night she does a live question and answer hour on youtube. Tustin Longevity, their website is tlcdoctors.com I believe. They are located in Tustin, CA and the live is at 7 pm. If you get on their email list you can write a question and submit it. They send a transcript a few days later.

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Profile picture for pamela35 @pamela35

I am so sorry your doctors are not finding the root causes of your ailments. It's not uncommon unfortunately. Lauracbaker posted some very important things. Please consider entertaining that some health care providers deal with the root causes of illnesses that allopathic doctors are not exposed to in medical school. God can put this info in your view to consider while you pray. Antibiotics are lifesaving and also obliterate our necessary flora that is part of our health. Most of us are low in vitamin D which affects our immunity and gut integrity which makes us reactive to foods that we aren't allergic to. This can lead to autoimmune conditions and one often leads to more. One more suggestion: There is a Christian doctor who has also been practicing functional medicine that addresses the root causes of illness. Every Tuesday night she does a live question and answer hour on youtube. Tustin Longevity, their website is tlcdoctors.com I believe. They are located in Tustin, CA and the live is at 7 pm. If you get on their email list you can write a question and submit it. They send a transcript a few days later.

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@pamela35 Thank you soo much for your helpful info!! And finding a Christina doctor is priority.. I'm blessed my primary car and urologist and psychologist and dentist one rheumatologist are praying out loud Christians!! I've head my Vitamin D checked ..all hormones all blood work.. thyroid stool .. comes back positive low schloeroderma .. parathyroid problems (elevated 3rd stage renal failure) and kidney stones.. I appreciate your advice and will try the doctor on you tube.. and keep researching..one way or another we are all healed.. by Jesus!! Wishing you many blessings!!

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Hello I'm a Christian and love the support I see here. God bless all! 🙌🏻

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Profile picture for standinginfaith @standinginfaith

Thank you so much!! Great info..and prayers!! Prayers are the best!! God has healed me from alot of things..oyloric stenosis , scurvy (I got down to 98 lbs..now I'm overweight.oh..have to work on that) but anyway..We know who the real Healer is!! I watch alot of Christian TV every night..not feeling well enough to get out after 6 rounds of reactions to meds and food.. the allergist told me. eat anything.. I did.no good..we have to really listen to the Holy Spirit. and I'm so grateful to be a child of God thru Christ Jesus. so glad you are to!! I've done the elimination diet and well I just found out the shot they say I need will be $1000 a month (my cost share) ..Meds by Mail has it free but dosage to low (husband was 100% DAV Vietnam vet).. in any event. we will be healed..and Heaven is a glorious place!! ..I'll be praying for you and your loved one going thru breast cancer treatment (I have a "spot" they are "watching.. claiming they will watch it disappear..Trina Hankins brain tumor disappeared and God is no respecter of persons!!) Be blessed you wonderful child of the most High..!!

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@standinginfaith
Hi It's me again : ) Remember me? I'm the BIG Hugger! And we had tea together and cried our eyes out...Yeah I'm that one! First of all I need a BIG hug from you!! I've been lookin' in on you through this window here on Connect and because of your reminder I did get my bloodwork done.. Thank you! I'm low in vitamin D. No surprise hmm? Also still low in iron and will need another iron infusion treatment. Enough about me.
How are YOU Honey? Did you finally get a new kidney specialist who isn't going to treat you in a condescending way? You mentioned your weight...I know, I know...we don't like to talk about it. You were trying to loose? Boy, I don't like the word try. Do or don't do, right? Not try... How's that coming along? I mainly watch portions of food. I was eating 2 or 3 portions not 1 and I don't eat until I'm full either now. Has been working for me
Wow, reading your discussion, you have been cured of some nasty things. God is good! We have lots of good things in our lives; some small and we forget about them.
But, beautiful sunsets count; that beautiful hymn from rashida counts. Count them all and find more little good things every day and we will talk about them next time we have tea, okay? BIG HUG!!

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