I am being constantly stared at: Shadowing

Posted by sandyar @sandyar, Apr 27 4:25pm

My husband has Alzheimer's. He is able to do less and less and can no longer handle his business or our finances. I do all of it and that is fine. I am a retired teacher and I have enjoyed learning how to manage all of this. It is a lot, however, because he also no longer drives so I have all the responsibilities now that we once shared . I am very busy but try to find things for him to do during the day. He cannot focus on any paperwork but will fold laundry, accompany me on errands, if they require little walking, so no grocery shopping, take out the garbage but often takes it out on the wrong days and I have to bring it back in, and will still go to dinner and to see the kids. He cannot be left alone for more than an hour or so or he starts calling me every 5 minutes and can never be alone at night due to sundowning.

My issue is that he shadows me but it is really simply standing in front of me or at the table with me while I am working and staring at me. If I am doing things around the house he is shadowing me, standing in my way and staring at me with what seems to be an anticipation of me telling him something or directing him. I try to engage him in things to keep him occupied for short periods of time but often he is back shadowing and staring at me within a few minutes and if I suggest something more than once he gets agitated. When we are socializing with family or friends he is usually sitting quietly and staring at me the whole time while I am in the room or comes looking for me and does the same. I know this is not knew to those of you in this group but I was wondering if anyone has any ideas on the constant staring. I realize that I am his safe place but it is so unnerving. I feel like I never have a moment in my own home.

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Gosh, you are his safe place, but what you describe is tiring; I haven't dealt with that yet. I know others on this site have talked about taking their loved one to a local day care during the day for socialization. I don't know if that's possible in your area, and whether your husband would do it. The only other option is some type of companion care a few hours a day, to give you some privacy during the day, and help reorient him, to someone else who's helping you.
Best, Karla

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Oh my, I could have written this exact post almost word for word. I definitely have the same frustrations. I am looking for suggestions also on any tips how this could be handled. I wish I could offer help to you but I am sending my support and understanding. It is so tough. 🤗

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Profile picture for kjc48 @kjc48

Gosh, you are his safe place, but what you describe is tiring; I haven't dealt with that yet. I know others on this site have talked about taking their loved one to a local day care during the day for socialization. I don't know if that's possible in your area, and whether your husband would do it. The only other option is some type of companion care a few hours a day, to give you some privacy during the day, and help reorient him, to someone else who's helping you.
Best, Karla

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@kjc48 There must something wrong with me. Instead of thinking of a safe place for a loved one, my first thought is that would creep me out to have anyone staring at me all the time... Reminder that my mind set needs a bit of a shift still...

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I think in dealing with this disease, it's understanding their mindset and not ours. I don't think they are starting to "creep" us out; I think it's because their brain can't navigate what they are thinking so they just stand there near someone they know and trust.
I don't know, I'm no doctor, but I think that might be what's going on. Best, Karla

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I know this may be an odd reply, but I learned when reading up about dog behavior, they stare at you when they are ready for you to tell them what to do next. They want their next job or assignment. They need guidance.
Perhaps there are some things that would engage your husband, photo albums, puzzles, some activity he will like and hopefully enjoy.
Good luck!

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with a deck (or maybe 2-3 decks) I would place ace of each suit on table (top, left, right, bottom) and I would ask my brother to sort the rest of the cards......easy, but gave him a sense of purpose......or just a sketch pad with craypas (vivid crayon/pastels), and I would ask him to draw how he felt.....he would choose color and design....could be circles or straight up and down, doesn't need to be anything special

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Profile picture for cyds @cyds

@kjc48 There must something wrong with me. Instead of thinking of a safe place for a loved one, my first thought is that would creep me out to have anyone staring at me all the time... Reminder that my mind set needs a bit of a shift still...

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@cyds No, you are right. It is very unnerving.

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sandyar, during my six years of caring for my wife, who was suffering with a form of dementia, not Alzheimer's, I was not aware of this cite -so was not able to avail myself of all of the good advice that many, who have traveled this path are willing to share. And...there is much good advice and suggestions for dealing with what you are contending with currently from those who respond here.
However, someone gave me a book, "The 36 Hour Day" which I depended on and found helped immensely in my understanding of what my wife was going through and how best to respond. In addition, I would contact my hospice team and the Alzheimer's hotlines for advice when a specific situation arose. So, in addition to all of the firsthand knowledge from those who have been there, such as you will get here, try other sources as well - there is nothing like have many sources of information from which to draw on when you need it.
All the best to you, stay strong, give your husband all the love and attention possible during this journey - you will never regret it.

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Would your loved one enjoy having some books at hand? Or going out to a local performance? My husband was diagnosed with cognitive impairment about 3 years ago. His gerontologist talked to us about skills and activities that promote brain health. Reading was high on the list (along with word puzzles and other things my husband never liked). Though my husband may not remember the details of a book the way he used to, he still enjoys good books about topics of interest to him. He also likes to attend plays, musicals and concerts. High school plays, church plays, and local music recitals are enjoyable for us even though we’re not close to any of the students now. I’m amazed at what he DOES remember from reading or attending a performance.

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@sandyar Fred was right about gathering information from as many sources as you can. One source is through Dementia society of America, Tami Anastasia has a webinar every Monday that you can register to listen in or ask questions. Tami is an expert on many aspects of dementia behaviors and caregiving. She also has written books on caregiving. Look into local organizations in your area for caregiving boot camps.
Best of luck to you.

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