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Hysterectomy 4 months after FIGO1 Endometrial Cancer Diagnosis
I am 61. Had spotting on 2/4/25. Saw GP on 2/5/25 for PAP. Transvaginal ultrasound results 1.6 CM thickness the following week. D&C on 3/4/25. Pathology report received following week Endometrial cancer FIGO 1. There is only one Gynecological Oncologist in my area & had to wait 3 was for appt. CAT scan & EKG on 4/22/25. Found out today my hysterectomy is not scheduled until 7/10/25. Waiting 4 months for surgery after the pathology report seems too long to me. I am going to try to get in another gynecological oncologists practice 1 hour from my home for 2nd opinion & hopefully get surgery sooner. What are your thoughts on a 4 month wait?
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So glad your surgery is coming up soon. I’m 63 and had the same surgery on 5/29. I’m recovering well. I did note a fever of 101.4 the evening following surgery. I called the after hours line and was told it was most likely a reaction from anesthesia so I took a Motrin 600 and fever subsided. Keep in mind you will need to take the Tylenol or Motrin according to Dr.’s orders. I was also prescribed OxyContin but took only one dose for pain after I arrived home. The incisions are really small which is great. Get rest but also walk and move to prevent blood clots. Gasx (after meals) is useful because you will be gassy for a week or two. Take the stool softeners as recommended. Follow your orders provided by your Dr. 3 weeks out and I’m feeling much better. Awaiting final pathology results as my Dr. did not agree with the pathology report (stage 1A and 1C different rare endometrial cancers) and she has sent my slides to a special molecular testing lab to confirm diagnosis.
All of this is not easy that’s for sure. I’m also a breast cancer survivor (DCIS) and had unilateral mastectomy in 2024. I take each day as a blessing and try to keep my thoughts in a positive place.
Prayers are lifted for your successful surgery and healing.🙏🏽
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2 ReactionsI went through the same surgery 4 weeks ago. My fear was more painful than the surgery. I promise it will be ok. Obviously it will suck trying to get in and out of bed and sit up, etc. I had zero lower abdomen pain from where they removed the organs and lymph nodes. Most of my discomfort was in my incisions, the one above the belly button and the one to the right of it, totally bearable. I only took Tylenol and Advil the first few days be honest with your care team about how you’re feeling and they will do everything possible to make you comfortable.
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2 ReactionsThank you for sharing your story. Wishing you the best results from the additional testing. Did you have any issues with pain from the gas used to inflate abdomen for surgery? I have been reading that can be painful afterwards.
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1 ReactionThank you for sharing your experience. It is helpful to know how others did with the surgery. I am hopeful I will also only need Tylenol and Advil. Have you returned to work yet (if you are working)?
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1 ReactionThanks for the reassurance. I think I am as prepared as I can be from my research, YouTube videos, etc. It's always good to get the firsthand knowledge from those who have experienced the same surgery. I have lots of support from my spouse, family and friends so I feel extremely lucky. I understand the importance of moving around in between resting and not to overdue activities. I have a pile of books, a Netflix watch list compiled, and I was given two Lego sets from my work colleagues to keep me occupied during my recuperation. Maybe I will post photos of the completed projects 🙂
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2 ReactionsI’m a Barber, I came back to work at 3 weeks PO
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1 ReactionThere was some discomfort/pressure but walking around helped to alleviate that. The pain relievers also help. GasX is very effective for that as well. There will be a LOT of gas for several days. I forgot to mention: Keep a thermometer handy to check your temperature for first week. I purchased an ear thermometer and kept it at bedside. Hope this info helps!
@sbryant I appreciate your way with words "My fear was more painful than the surgery".
It’s so true🤦🏻♀️
Having never had anything medically done before not even my wisdom teeth out and then hearing I had Cancer was just horrifying
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1 ReactionWhen I was first diagnosed I developed anxiety and asked my GP for anti-anxiety medication. I used it very rarely, but it helped take the edge off of going into surgeries, scans, etc. I asked if it was ok to take beforehand and was never told no, but if anesthesia was involved I always told the staff involved as well.
I hope that your surgery on Monday goes as smoothly as mine did. I couldn’t believe that I went home the same day and that I was not in major pain. I’ll be thinking of you.
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