Hypogammaglobulinemia

Posted by sassykitten93 @sassykitten93, Dec 12, 2018

What is hypogammaglobulinemia? I cant tell you much because I have not found much myself on this topic except that my body has quit making antibodies I think. if any one has insight please add to this

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@becsbuddy

@autumn12575 I haven’t heard from you and wondered if you’ve learned anything about what’s going on with your health. If you wish, please check in with us. Becky

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Hi hun!! I would love to talk more in person if u can pm me I can give u my ph #, I can roll out more questions as they come to mind! This is a disease that u have to advocate for urself for unfortunately…I just got off of my 105 antibiotics in just 4 yrs! Have an appointment with Ortho surgeon here in an hr but pls get back with me! I will do my best to answer n help u figure this out!! Xo 😘. Lisa

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@ldestella

Hi hun!! I would love to talk more in person if u can pm me I can give u my ph #, I can roll out more questions as they come to mind! This is a disease that u have to advocate for urself for unfortunately…I just got off of my 105 antibiotics in just 4 yrs! Have an appointment with Ortho surgeon here in an hr but pls get back with me! I will do my best to answer n help u figure this out!! Xo 😘. Lisa

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Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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@becsbuddy

@autumn12575 I haven’t heard from you and wondered if you’ve learned anything about what’s going on with your health. If you wish, please check in with us. Becky

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Hi, I haven’t heard anything yet. I’m still waiting on one test result that still is not back yet since Feb 19th. It’s getting a bit irritating that my Doc appointment has been changed twice now because of it. I really wish I knew why it’s taking so long.

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@becsbuddy

Good morning @autumn12575 . You do sound like you’re on a merry-go-round going nowhere! All the different symptoms and odd occurrences but no answers. My sister and I went thru the same things as you. My sister finally went to Univ of Michigan and was diagnosed with an autoimmune disease. She really liked her care at U of M. I, finally, went to U of Colorado and have been happy with my care. You mentioned that you were thinking of U of Michigan. I say, go for it! But, first, do your homework. Write down the issues that bother you the most, how long you’ve had the symptoms, and the doctors you have seen. And go with an open mind. Take a friend or family member with you—to take notes and to be extra ears
Does this sound reasonable? Can you do this and then let me know what happens?

You might want to read this discussion also:
https://connect.mayoclinic.org/discussion/tips-for-getting-a-proper-diagnosis-of-an-autoimmune-disease/

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Hi, I’ve been to U of M before a couple times for myself for some issues. I’ve also been there many times with my dad for the issues he had. I know how they work. I have a lot of things wrote down already which is what brought all these blood tests in the first place. So now I’m just waiting. I don’t even know what my next move would be!

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@autumn12575

Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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Morning hun! U could hit me up on fb…my last name is DeStella n we can go from there! Yes, pick ur moms mind on things also xo 😘

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@autumn12575

Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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Yes! That’s me but pls friend request me so we can use messenger lol

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@autumn12575

Hi, I haven’t heard anything yet. I’m still waiting on one test result that still is not back yet since Feb 19th. It’s getting a bit irritating that my Doc appointment has been changed twice now because of it. I really wish I knew why it’s taking so long.

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@autumn12575 Just wondering if you’ve ever gotten your test result and been able to see the doctor? Waiting is always the hardest part, isn’t it? Will you let me know what you’ve been able to find out? Becky

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@autumn12575

Hello,
Sorry I haven’t replied right away just had other things in life going on. I would be fine with Pm then I would be fine with phone numbers there. It would be nice to pick ur brain as well. I haven’t kept track over the years with antibiotics or anything like that because I didn’t know any of this. When I sit back & think about it I was sick a lot as a kid growing up. I should probably pick my mothers brain a little about how much & often. I’m not sure how Pm works but I did see it here somewhere. It would be great to have instant convo instead of having to wait to get responses to questions or even answer someone’s else’s. I’ll keep an eye out for anything from you. Right now I’m still waiting on one blood test they had me do on Feb 19th. The results still are not back & im very confused on why it’s taking so long. It’s driving me nuts. My doctors appointment has been changed twice now because of. Please let me know what I gotta do to get in touch with you. Thanks

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@autumn12575 I’ve been thinking of you and wondering if you’ve gotten any answers yet? Waiting is just so difficult. Can you maybe share how things are going for you?

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