Hypersensitivity pneumonitis interstitial lung disease (HSID)
I have been on prednisone as high as 60 mg and was weened down to 9 mg as a treatment for hypersensitivity pneumonitis interstitial lung disease. I would like to know if there is another medication to use in place of the prednisone that doesn’t have the side effects that prednisone does? How do you know as a patient when you can be taken off prednisone entirely and let your adrenal glands take over? What kind of physician would be able to determine if your adrenal glands were not functioning?
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Welcome @mec1944 to connect. I am so sorry that you have had to be on high doses of prednisone. I hate prednisone but it's the best there is for inflammation out there. We are not doctors so I can't recommend another medication but I can suggest that you ask your doctor if there are any others with less harsh side effects. I become a different person, mean and intolerant. Only your doctor should decide when you are well enough. "Hypersensitivity pneumonitis (HP) is an interstitial lung disease caused by repeated inhalation of certain fungal, bacterial, animal protein or reactive chemical particles, called antigens. … Hypersensitivity pneumonitis is subdivided into two forms: acute and chronic. Symptoms differ for each form." google. If this disease has caused a lot of scar tissue than taking prednisone can lower the inflammation. Do you know what antigen caused your disease? Are you breathing ok?
I had it for a while now I just my lungs are hurting me more than before when I was told that I have this disease
Way do you dislike Predrisone
I was told it has a number of side effects if you take it long term. It lowers your immune system and you get frequent infections. I've been getting repeated respiratory symptoms affecting the eyes, nose, breathing and I have a nonproductive cough most of the time during this past winter. The pulmonologist has suggested taking CellCept that has many other side effects. I read that Olev is also used
I have just been diagnosed with fibrotic hypersensitivity pneumonitis. I am quite certain it is from the reactive chemicals in my husband's 3d printing lab in our house. I just had the bronchial lavage and HRCT which both strongly suggest this diagnosis. My Dr will be meeting with other specialists next week to review my case. Not an easy diagnosis