← Return to Hypersensitivity pneumonitis interstitial lung disease (HSID)

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@vic83

Is there a permanent thread on Connect for Multifocal? We have this chronic form of lung cancer and information is limited so it would be interesting to get an idea of how various cases are playing out. Like how many years since diagnosis, how many nodules do they have, various treatments and complications. I am two years since diagnosis with 2 VAT surgeries and one SBRT with Radiation Induced Pneumonitis. My oxygen levels fall with exertion, could be several reasons.
With which SBRT did you have your flareup? Not with all of them?
Now that tests are posted and one tries to understand them, I looked at my pulmonary function tests. During my pneumonitis, I was almost qualifying for portable oxygen. After Prednisone, my test results came back up but not to the level they were in April - only half way.

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Replies to "Is there a permanent thread on Connect for Multifocal? We have this chronic form of lung..."

Yes! https://connect.mayoclinic.org/discussion/multifocal-adenocarcinoma-of-the-lung-continual-recurrences/

While I was taking care of my husband and after Liz, @lls8000, became a much needed Mentor for the Lung Cancer groups. I am so grateful for this!