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HRT for daughter who is nonverbal autistic, epileptic?

Posted by minajo @minajo, Nov 17, 2025

I have a 49 year old daughter non verbal , epileptic who underwent sigmoidectomy last year and hasn't had good post op period.. On med for epilepsy, Lamictal, Seroquel for behavior, Buspar added years ago for anxiety, hypothyroid, Progestin as we had to dc estrogen pill dues to high BP but last year in hospital bp too low and taken off her BP medication
Now with recent news about estrogen im wondering if Dr should add estrogen back as her behavior has become very unmanageable and we have done many tests to rule out other issues, no UTI, CT scan of abdomen ok,
We can't test hormones while she's on progestin ( she was originally put on the bc pills to stop periods as with her autism her self care wasn't happening..
Just curious if any opinions about the estrogen during her , 50's? Maybe help?
Thank you

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Profile picture for Chris Gautier, Volunteer Mentor
Mentor
Chris Gautier, Volunteer Mentor | @santosha | May 14 8:45pm
In reply to @minajo "Daughter, 50, nonverbal profound autism, epileptic, lamoctil xr, for that, Seroquel 150 bid for several years,..." + (show)
Profile picture for minajo @minajo

Daughter, 50, nonverbal profound autism, epileptic, lamoctil xr, for that, Seroquel 150 bid for several years, buspar 40 mg bid, been on progesterone for years but just started Estrace 0.5 mg 6 weeks ago
NEVER have I seen my daughter eat so voraciously, I have to take plate away, make sure she chews, then give it back with only small amount on plate, cut up tiny pieces, make sure she sips water, tho she's dropping weight,
Her behavior is very " edgy" stressed, tears up books etc, tosses things, removes clothing and scratches herself
So VERY BIZARRE, I'm used to autistic behavior but should I stop the estrogen? Wean her off? Increase dose? So sad just watching her, how she'll get thru menopause ??
Thanks

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Hi @minajo
I'm sorry to hear about your daughter's behavioral changes after the estrogen introduction.
I agree with @louissc — please don't stop the estrogen or any other medication before speaking with the prescribing doctor first.
Who prescribed the estrogen — her gynecologist or her neurologist? If it was her gynecologist, has he or she consulted with her neurologist beforehand? In my own experience, every time my gynecologist wants to prescribe me a new medication, he checks with my neurologist first. That kind of coordination between specialists really matters, especially when a neurological condition is part of the picture.
Please keep us posted!
Chris

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