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How to live after you stop. Meds

Posted by lilianna @lilianna, Mar 3 8:16am

This is my last week of azithro, ethambutol and clofazimine after total of 23 months of antibiotics( with stops at the beginning- allergic to rifabutin) and 18 months after converting. I am happy and scared both. How do you proceed after stoping the meds. How do you strengthen your gut system? Do you increase the lung clearing techniques or you just keep going the same way as usually just without meds? When I asked my doctor she said just stop. But I know that then I am without that extra protection of azithro. So how did you organize your life after taking the antibiotics?

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kimba78 | @kimba78 | Mar 8 12:02pm
In reply to @tammy780 "Hi Kimba, what do you mean by making your mucus bad (from the Amikacin)…did you produce..." + (show)
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Hi Kimba, what do you mean by making your mucus bad (from the Amikacin)…did you produce a lot more mucus and was it coloured?
I’m producing a lot of thick yellow mucus with the Amikacin and it makes me worried that treatment isn’t working (or is it working?).

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Hi Tammy,
Is it not a weird illness to get it from soil, water, or in the air? And it is so brutal on the body. How the heck are you supose to stay clear of getting it? Or getting it back? If you don't know where you got it from?

I think I had insomnia because I was afraid of choking. I don't know if it was some from the med? I was actually extremely tired after the infusions.

So do you think it's the med that's keeping you awake?
Did you ask your doctor about it?

Yes, the Amikacin inhaier made me have way too much fleam. Sometimes, it would scare me when I couldn't break the flem to breathe.

They took me off of it within a few weeks. Allergic reaction? They wanted to put in a picline in my arm. I got a blood clot and than than put in a tunneled line right side of chest.

I was pretty fatigued but over all I felt much better than I was on the inhalation. I am done with the infusions now but I still have fatigued, but I can breathe!

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carriebeth | @carriebeth | 1 day ago
In reply to @becleartoday "I have mentioned this in the past, but it is worth repeating— I strongly believe there’s..." + (show)
Profile picture for becleartoday @becleartoday

I have mentioned this in the past, but it is worth repeating— I strongly believe there’s nothing more important than being in a healthy weight zone. Also, being mindful about consuming enough protein, healthy fats and carbohydrates. They all serve multiple roles and they are all needed, especially the protein. Your body needs protein to repair from inflammation.

If you are not consuming enough protein, the body prioritizes essential functions by breaking down muscle tissue to release amino acids. This leads to muscle wasting and weakened immunity (due to reduced antibody production).

So please, make it a point to put on weight over time. Meet with a nutritionist, preferably one who specializes in lung health. I know of someone who works at National Jewish Health and has a consulting business. Please reach out directly to me if you would like this information.

It is important to our healing to think of food as medicine. Years ago, I was able to get rid of an MAC infection and I believe changes I made to my nutrition were a key factor in my healing. ❤️‍🩹

BE well,
Linda Esposito

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@becleartoday
Can you please send me the info on the nutritionist? Thanks very much!

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