1. < Chronic Pain

How to deal with constant pain for years

Posted by kathyclickner53 @kathyclickner53, Apr 22 11:20pm

I have dealt with severe pain for years it’s hard to do things I used to do pain in my hands my back. My eyes legs I take pain meds tynol I use cream patches. I have been kinda discouraged lately I keep hoping soon i could be delivered of pain I have to depend on walkers canes wheelchair I loose my balance a lot this pain has changed my ability to work visit go places It’s been very discouraging.

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heisenberg34 | @heisenberg34 | May 21 9:51am
In reply to @dlydailyhope "@bebold I so feel everything you said and you are not alone! Some days I want..." + (show)
@dlydailyhope

@bebold
I so feel everything you said and you are not alone! Some days I want to scream out loud “I am not Okay!” because it is hard for people to empathize with pain if they are not experiencing it because it is invisible to them. I also focus on the small, simple things since I am very limited. I am 54 and a single parent of a 14 year old son. He gives me a purpose to push myself through the pain. I lost my job and unable to work now. Hard to afford health insurance and not sure if I will get approved for disability. I am just taking one day at a time and asking God to give me His strength because I am hanging on by a thread most days.

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So very sorry that this has happened to you at such a relatively young age. Keep searching, become your own, best advocate, Don't let anyone, especially doctors, tell you, "Just learn to deal with it". No! For every effect there is a cause. YOU know the effect...pain. Now, keep searching for someone who can be willing to put in the time and effort to lacate the cause, and then treat it, even if it is a bandaid that masks the pain. Do you know what brought about your presnt condition?

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1 reply
dlydailyhope | @dlydailyhope | May 21 12:18pm
In reply to @heisenberg34 "So very sorry that this has happened to you at such a relatively young age. Keep..." + (show)
@heisenberg34

So very sorry that this has happened to you at such a relatively young age. Keep searching, become your own, best advocate, Don't let anyone, especially doctors, tell you, "Just learn to deal with it". No! For every effect there is a cause. YOU know the effect...pain. Now, keep searching for someone who can be willing to put in the time and effort to lacate the cause, and then treat it, even if it is a bandaid that masks the pain. Do you know what brought about your presnt condition?

Jump to this post

@heisenberg34
I have congenital spinal stenosis in my cervical and lumbar spine plus believe ai have autoimmune inflammation that may have started with breast implants (breast implant illness due to silicone liners) and also may have been triggered by pregnancy at 39. Things started when I had pain in my lower back, hip and buttock and an orthopedic doctors said my spine looked like someone 20-25 years older than I was (when I was 42). I have tried to get answers from many doctors and it has been an expensive and depressing process. It feels like you go in circles and get nowhere and wast so much time/$$ while your quality of life goes downhill. I had to get my implants removed myself because my insurance company would not cover the cost of explant but I was desperate to get to the bottom of my systemic inflammation. I have gained 75 pounds in 11 years which makes pain, ability to exercise and energy levels worse. I feel like I am in a hamster wheel going nowhere when I want desperately to recover some quality of life.

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2 replies
afklasen2024 | @afklasen2024 | May 22 6:04pm
In reply to @dlydailyhope "@heisenberg34 I have congenital spinal stenosis in my cervical and lumbar spine plus believe ai have..." + (show)
@dlydailyhope

@heisenberg34
I have congenital spinal stenosis in my cervical and lumbar spine plus believe ai have autoimmune inflammation that may have started with breast implants (breast implant illness due to silicone liners) and also may have been triggered by pregnancy at 39. Things started when I had pain in my lower back, hip and buttock and an orthopedic doctors said my spine looked like someone 20-25 years older than I was (when I was 42). I have tried to get answers from many doctors and it has been an expensive and depressing process. It feels like you go in circles and get nowhere and wast so much time/$$ while your quality of life goes downhill. I had to get my implants removed myself because my insurance company would not cover the cost of explant but I was desperate to get to the bottom of my systemic inflammation. I have gained 75 pounds in 11 years which makes pain, ability to exercise and energy levels worse. I feel like I am in a hamster wheel going nowhere when I want desperately to recover some quality of life.

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Easy for me, but, you know to take control of your pain. Doctors can tell you what to do, but its you life, your choice on how you want to live it in spit of the pain. I practice hypnosis, it helps me more then pain pills which are limited.

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afklasen2024 | @afklasen2024 | May 23 8:40am

Never give up, continue to look for what will work for you.
This is a great site, information might help you.

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judithlynne | @judithlynne | May 25 9:47am
In reply to @barbbielor "Everyone needs a break from pain. I am fortunate to have a marvelous pain management doctor...." + (show)
@barbbielor

Everyone needs a break from pain. I am fortunate to have a marvelous pain management doctor. If Workers Comp was more cooperative, my pain would be less! There are many procedures that have helped my pain and given me relief for long periods of time. I find radio frequency ablations most helpful. My low back and cervical area are messed up with degenerative disc disease and stenosis. I also have CRPS and SFN in both feet and up left leg. May you find a pain management doctor as great as mine is.

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I have horrible SFN in my feet as well as peripheral neuropathy and other painful issues. Can you share with us what has worked for you with your wonderful doctor? Thank you please be specific as it will help others

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barbbielor | @barbbielor | May 25 10:47am

I have had a Bston Scientific stimulator implanted in 2012 and another in 2018. Unfortunately the second implant was not well done. In Jan of 2023 my pain management doc did a trial implant to cover my feet. I could only have it for two days but for two days my feet were pain free. Due to many oter things going on, no further steps were taken about a new stim. Just this past week I saw a spine surgeon workng with my pain management doc. I have ct scans scheduled next week of spine. After he sees the results he will have a better idea as to whether he can take out the two old stims and put in a brand new one. I use a power chair to get around where I live but use a walker for appts and such. Even in the power chair my feet are painful. I am looking forward to results.

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annette1960 | @annette1960 | May 26 6:29pm
In reply to @barbbielor "Everyone needs a break from pain. I am fortunate to have a marvelous pain management doctor...." + (show)
@barbbielor

Everyone needs a break from pain. I am fortunate to have a marvelous pain management doctor. If Workers Comp was more cooperative, my pain would be less! There are many procedures that have helped my pain and given me relief for long periods of time. I find radio frequency ablations most helpful. My low back and cervical area are messed up with degenerative disc disease and stenosis. I also have CRPS and SFN in both feet and up left leg. May you find a pain management doctor as great as mine is.

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Who is your pain management I am dealing with spinal stenosis and arthritis in my neck bad especially if ut snows or rains

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barbbielor | @barbbielor | May 26 6:34pm

I live in the Capital District of NY. Albany Saratoga Pain Management is led by Martin Ferrillo, DO.

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gmcjensen | @gmcjensen | May 26 9:58pm
In reply to @dlydailyhope "@heisenberg34 I have congenital spinal stenosis in my cervical and lumbar spine plus believe ai have..." + (show)
@dlydailyhope

@heisenberg34
I have congenital spinal stenosis in my cervical and lumbar spine plus believe ai have autoimmune inflammation that may have started with breast implants (breast implant illness due to silicone liners) and also may have been triggered by pregnancy at 39. Things started when I had pain in my lower back, hip and buttock and an orthopedic doctors said my spine looked like someone 20-25 years older than I was (when I was 42). I have tried to get answers from many doctors and it has been an expensive and depressing process. It feels like you go in circles and get nowhere and wast so much time/$$ while your quality of life goes downhill. I had to get my implants removed myself because my insurance company would not cover the cost of explant but I was desperate to get to the bottom of my systemic inflammation. I have gained 75 pounds in 11 years which makes pain, ability to exercise and energy levels worse. I feel like I am in a hamster wheel going nowhere when I want desperately to recover some quality of life.

Jump to this post

Research spinal cord stimulators. There are pros and cons about them. Only had mine for six weeks and have a bit of pain relief but have been told it may take months to tweak the program for me (a remote) . Sorry to hear you suffer so. I understand about the weight as it has happened to me as I have sat so much for over a year. Stay positive and keep searching

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