1. < Chronic Pain

How to deal with constant pain for years

Posted by kathyclickner53 @kathyclickner53, Apr 22 11:20pm

I have dealt with severe pain for years it’s hard to do things I used to do pain in my hands my back. My eyes legs I take pain meds tynol I use cream patches. I have been kinda discouraged lately I keep hoping soon i could be delivered of pain I have to depend on walkers canes wheelchair I loose my balance a lot this pain has changed my ability to work visit go places It’s been very discouraging.

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kathyclickner53 | @kathyclickner53 | May 7 1:19am
In reply to @jilli7 "I can relate. You are not alone. Have you been checked for Fibromyalgia or some type..." + (show)
@jilli7

I can relate. You are not alone.
Have you been checked for Fibromyalgia or some type of autoimmune condition?
I understand your pain. It is different for me now, once so very active, I can barely work. I also rely on a cane at times as walking is so very difficult.

Hang in there. You will get answers. Sometimes blood work doesn't show everything and it is a process of ruling out.

Edit:

I want to add, any chance you can, try aqua therapy. Water helps. Massage also helps. It takes the edge off.

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It's been very hard on my social life it's hard to do my work at my house. U get uo with pain and go to bed with pain
I do get depressed a lot.

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1 reply
kathyclickner53 | @kathyclickner53 | May 7 1:22am
In reply to @kjofmd "There is a good group on Facebook—the Low Dose Naltrexone Research Trust—that has excellent materials and..." + (show)
@kjofmd

There is a good group on Facebook—the Low Dose Naltrexone Research Trust—that has excellent materials and support.

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I would love to be in that group in face book for constant pain

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marquis113 | @marquis113 | May 7 10:10am
In reply to @heisenberg34 "It is so sad to see so many of you who are in constant pain, like..." + (show)
@heisenberg34

It is so sad to see so many of you who are in constant pain, like me. But, I am still mobile and able to do some work around the house. This will be kind of a stretch, but here goes. Has anyone discovered that they have long term Lymes disease? I have had Lymes several times. When all my pain symptoms suddenly reappeared three years ago after being under good conrol, I had a Lymes test. It was presumptively positive. The Western Blot test showed a negative due to there not being enough bands in the positive range. I keep wondering if my Lymes has been lurking in the background just out of detectable range but still actively causing many of my chronic symptoms. Anyone else out there discover this, or, am I grasping at straws. Thanks and hope you all have a less painful day..

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Once you have lines your test will always be positive.

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harley22 | @harley22 | May 17 10:07am
In reply to @evelynjc "My cane and on different occasions my walker are my friends! I’m able to do many..." + (show)
@evelynjc

My cane and on different occasions my walker are my friends! I’m able to do many things and they keep me safer from falling. I try to focus on what I can do!

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I agree, same with me.
Can’t go anywhere anymore without my walker or my cane since my balance is so bad.
Last thing I want to do is fall and break my hip.
That would do me in for sure.

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harley22 | @harley22 | May 17 10:10am
In reply to @kathyclickner53 "It's been very hard on my social life it's hard to do my work at my..." + (show)
@kathyclickner53

It's been very hard on my social life it's hard to do my work at my house. U get uo with pain and go to bed with pain
I do get depressed a lot.

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I’m with you!
I do get depressed at times, but then I read what others are going thru,and I realize,it could be far more worse for me.
It’s horrible when you can’t do what you used to.
I would like just one day without any pain!

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1 reply
heisenberg34 | @heisenberg34 | May 18 9:48am
In reply to @harley22 "I’m with you! I do get depressed at times, but then I read what others are..." + (show)
@harley22

I’m with you!
I do get depressed at times, but then I read what others are going thru,and I realize,it could be far more worse for me.
It’s horrible when you can’t do what you used to.
I would like just one day without any pain!

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I know exactly how you feel! My pain pump was supposed to be the solution to my reoccurring pain. 87% said to have good to excellent pain mitigation. Looks like I am unlucky to be in the lower 15% who get little to no pain relief. Yes, I also get depressed at times. My pain level has increased over the past two to three months. It is currently a constant seven to eight. Lying down on the bed used to be my "refuge" from pain, but, no more. However, as you mentioned. it could be worse. My prayers and the the prayers of many brothers and sisters seem to go up and evaporate. Very discouraging. I not only am not able to do most of the things that I used to do, but the pain makes it very difficult to find joy in much of anything. Not how I envisioned retirement.

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1 reply
harley22 | @harley22 | May 18 11:36am
In reply to @heisenberg34 "I know exactly how you feel! My pain pump was supposed to be the solution to..." + (show)
@heisenberg34

I know exactly how you feel! My pain pump was supposed to be the solution to my reoccurring pain. 87% said to have good to excellent pain mitigation. Looks like I am unlucky to be in the lower 15% who get little to no pain relief. Yes, I also get depressed at times. My pain level has increased over the past two to three months. It is currently a constant seven to eight. Lying down on the bed used to be my "refuge" from pain, but, no more. However, as you mentioned. it could be worse. My prayers and the the prayers of many brothers and sisters seem to go up and evaporate. Very discouraging. I not only am not able to do most of the things that I used to do, but the pain makes it very difficult to find joy in much of anything. Not how I envisioned retirement.

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Not how i envisioned retirement or my golden years either!
I often wonder what I did wrong to deserve this.

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1 reply
heisenberg34 | @heisenberg34 | May 18 11:54am
In reply to @harley22 "Not how i envisioned retirement or my golden years either! I often wonder what I did..." + (show)
@harley22

Not how i envisioned retirement or my golden years either!
I often wonder what I did wrong to deserve this.

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Nothing. God’s Word tells us that the rain falls both on the just and the unjust. Trust me, I have had some pretty heated discussions with God. Do rejoice only when we are in good times, or, like Paul, rejoice in whatever circumstances we find ourselves.

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2 replies
harley22 | @harley22 | May 18 12:18pm
In reply to @heisenberg34 "Nothing. God’s Word tells us that the rain falls both on the just and the unjust...." + (show)
@heisenberg34

Nothing. God’s Word tells us that the rain falls both on the just and the unjust. Trust me, I have had some pretty heated discussions with God. Do rejoice only when we are in good times, or, like Paul, rejoice in whatever circumstances we find ourselves.

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Amen

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afklasen2024 | @afklasen2024 | May 18 1:24pm

Decide to just live do what you can, use ice, take breaks, keep going, many are worse off then you, be thankful!

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