I found out I had stage 1 breast cancer last April. My former oncologist (this was my second time around…first BC in 2007) had retired. When I called the number for the group he belonged to, another group had started and was using that number. They said the former group no longer existed. I went with an oncologist with the new group/cancer center. It was later that I found out that not all the doctors from the old group had gone over to the new group. Well, the doctor I chose in the new group was a real jerk…we had words and I left and went to another practice. Well, I am wondering if I have again made a mistake. I have been with the new doctor since the end of January and in that amount of time I have been sent for a nuclear bone scan based on the alp and calcium readings on my bloodwork…these levels were just over the top limit for each. Well, I just went for bloodwork and my ca27.29 tumor marker was 49. The doctor called me and said she wanted a chest, abdomen and pelvic CT scan. I told her I wanted a second tumor marker test done which she grudgingly agreed to and 3 days later the level was 41.9. She still wanted the CT scan which I am having tomorrow. I am pretty scared. In addition the nurse that called to instruct me on the CT scan told me vague and missing info and when I called to make sure I had it right, she insisted she told all the right stuff to do. Then I went to pick up the barium yesterday and they asked me about blood work which I thought they had at the hospital associated with the cancer center as the doctors office had set it up. They did not have the blood info at the hospital but said I could have it done right then. I just had a CMP last Monday so the doctor should have known if I needed more blood work. Right then I told the person doing the paperwork with me that if they did not have the right bloodwork I was not getting it done and I would not be having the chest CT scan. I took the barium and left. The hospital person called me on my way home and told me the blood stuff was in order. Then tonite I was reading the instructions for the barium and the paper with that said to preregistration to call this number. I did and was told they do not do that anymore. They also told me I had to go to admitting when I get there tomorrow. WTH?! In Feb when I went for the bone scan I went right to radiology. Well apparently not this time. There are just too many inconsistencies and lack of communication. Also, I am wondering if I am going to continually have to go for tests. My cancer was simple stage 1 IDC, lumpectomy, radiation and anastrozole. There are too many “mistakes” already and I am wondering if I should move on. Has anyone had similar experiences and changed oncologists more than once. This probably does not app to people who have moved.
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