How is MAC not contagious to another person with lung disease?

Posted by marycronin @marycronin, Jan 12 11:12am

I am concerned about getting MAC with my recent diagnosis with Bronchiectasis. How can this not be contagious being around someone who has MAC?

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Profile picture for ddoran9233 @ddoran9233

@sueinmn Thank you for your reply and sharing your experience. What you went through sounds difficult and exhausting and I wish you did not have to go through that.
I am considering antibiotics 3x per week prescribed by the ID dr and will review with the new pulmonologist but it is concerning and no, at this time, I do not fully trust my care team. Specifically because I do not have all the disciplines. Allergies and asthma are at the root of my condition and thankfully, my allergist is phenomenal. I do need a way to reduce the inflammation and prevent re-occurring infections and airway clearance may not be enough. I do like the thought of the monitoring approach but I need to discuss this with the new pulmonologist as I cannot assess the risk on my own. My diagnosis is very new (Nov 2025) so it will take some time to find the right team and develop a care plan. This site, all the feedback, has been tremendously helpful especially learning about airway clearance techniques and I have already seen an improvement. I appreciate you insights and experience.

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@ddoran9233 I don't have time to reread the entire thread, but if asthma and allergies are a big concern, as they are for me, sometimes getting those under control can be a game-changer. I use a nasal spray & oral antihistamine for the allergies, a combination inhaler for the asthma, and "environmental control" - HEPA air purifiers - throughout my house, keeping it closed up when windy or when pollen is high.
I am choosing not to share the names of my medications because everybody is different - you and your docs need to figure out the correct combination for you.
Good luck building your "team" - if you like your allergist, have them point you to docs they rerspect, that's what I did.

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Profile picture for Sue, Volunteer Mentor @sueinmn

Side effects are a common experience with long-term antibiotic therapy. I had several issues, including early nausea & diarrhea - resolved by taking a probiotic and timing the medication so I slept through the worst discomfort. I also had serious fatigue, but whether it was from the drugs or the infection is hard to say. I also had to switch one antibiotic early on due to intolerable nausea - long time ago, so I don't remember which one.

As for serious side effects, I avoided all alcohol and NSAIDs to protect my liver, since some of the meds are hard on it. I have had tinnitus for years - but whether the drugs made it worse, or aging or something else, I cannot say. My hearing was never great, but didn't get any worse with the meds; it is still monitored every year and seems to be in a slow downward slide, more related to age and heredity than the drugs. I had my eyes checked every 6 months based on my ophthalmologist's recommendation and had no eye issues.

All that said, the infection was severe - it would not have gone away by itself. I couldn't walk one block without coughing and having to rest. I had severe fatigue, a constant low-grade fever and was losing weight.

My diagnosis was MAC & Pseudomonas with Nodular Bronchiectasis & ground glass opacities, but no cavities. Knowing what I do now, if I had been less ill, I would have asked to try airway clearance with 7% saline for 6 months to see if I could knock the infection back.

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@sueinmn Sue...I must have missed this on the 13th. WOW....how did and do you manage it all. I know there are others with different and multiple health concerns and my thoughts are with 'you all' as I read these things.
I feel so spoiled but so thankful that my problem at this time is just the BE and low load count of MAI. So far no cavities, ground glass, so shortness of breath etc. etc. and I think, hope, I cleared the mucus plug that the pulmonologists said showed a worsening. Brought up what looked like a plug attached to a plug....really. The total size looked like nearly an inch long. So maybe it is cleared. C Scan scheduled for next late fall.
Hope all those you have on your mind in MN are O.K.
Barbara

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