1. < Kidney Conditions
Profile picture for mrainne

How does GFR move up and down so dramatically?

Posted by mrainne @mrainne, Jun 1, 2023

Hello! I've been reading many posts saying GFR has improved pretty dramatically. I was told kidneys do not repair themselves or get better. I have a good diet (for almost 10 years), being healthy, and exercising. My weight is 133 lbs. Other bloodwork is normal, sodium, potassium, CO2, cholesterol...all normal. But my GFR continues to go down. I drink tons of plain water as well. I am grateful to have an appointment at Mayo this month. Hopefully, I'll get some answers :))

Interested in more discussions like this? Go to the Kidney Conditions Support Group.

Profile picture for mrainne
mrainne | @mrainne | 4 days ago
In reply to @gingerw "@mrainne One big thing going into a major surgery like this, is that you have advance..." + (show)
Profile picture for Ginger, Volunteer Mentor @gingerw

@mrainne One big thing going into a major surgery like this, is that you have advance notice! Always a good thing, and it allows you to get yourself in the best physical, emotional, mental, and spiritual states that you can. Take advantage of any services your transplant team may be able to offer, like their social worker. If you have a faith community, check with your fellow members or leaders there.

Please let me know how your appointment goes!
Ginger

Jump to this post

@gingerw
Following up on my appointment. It went well and the appointment nurse called to set up testing. I decided to put that on hold since I only have one more test at Northwestern and my potential live donor is getting tested there in May. So many unknowns. My B- blood type is good with her O but so many factors have to click! I’m on the inactive list as of Feb. 5 at NW.

REPLY
1 reply
Profile picture for Ginger, Volunteer Mentor
Mentor
Ginger, Volunteer Mentor | @gingerw | 4 days ago
In reply to @mrainne "@gingerw Following up on my appointment. It went well and the appointment nurse called to set..." + (show)
Profile picture for mrainne @mrainne

@gingerw
Following up on my appointment. It went well and the appointment nurse called to set up testing. I decided to put that on hold since I only have one more test at Northwestern and my potential live donor is getting tested there in May. So many unknowns. My B- blood type is good with her O but so many factors have to click! I’m on the inactive list as of Feb. 5 at NW.

Jump to this post

@mrainne Thanks for letting me know. That was another thing complicating my quest for kidney transplant. I am O+ blood type, which means a donor kidney would have to be the same type.

You're right, so many unknowns. But you're making sound decisions.
Ginger

REPLY
View MoreView Less
Please sign in or register to post a reply.