How are you coping if you have long term brain fog from covid?

Posted by dh524 @dh524, May 30 7:39am

Brain fog has been persistent since I got Covid a year ago. I have to read everything 3 or 4 times and then forget what I read like for example instructions. Is anyone else dealing with this?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@whoesonfirst

@dloos I got covid January 2021 that rolled int LC to present. My eyes have been wacky. I don't see things right in front of me, salad dressing a coffee cup. things I just set down. It's like they magically disappeared... I am very light sensitive. Post covid I am extremely light sensitive., it physically hurts. I have had my eyes checked a few times there have been no significant changes. I mentioned something about to my neurologist. He said, oh yeah that is totally a cognitive defect from Covid. I drop things all the time, I spill a lot. Just odd things, My leges do a kick thing when I stand up. I grabbed the creamer this morning legit and was extremely close to filling my coffee cup up creamer and adding a spot of coffee.... you just never know what kind of fun the day will bring. I was in a Peer to Peer group - of LC and Oncology sufferers: It's was very enlightening in a lot of ways and a little scary too. I did learn a lot. Be kind yourself! You, your body & brain have been through a lot. Be gracious to yourself. The struggles are real

Jump to this post

Yes, it is a struggle. My eyes are also very light sensitive, and also sore. I have very little peripheral vision and trip over my dogs, and other things all the time.
I cannot handle the day to day things required to care for my home anymore. My hearing is shot, and my bowel doesn’t work properly. I do still see a variety of doctors, but they have not been able to help me.
I hope that over time (it’s already been three years) I may finally start to improve, but maybe not possible.
Good luck to you.

REPLY

Haha - I have more doctors than friends these days....
Take good care!

REPLY

I wish, 4 years 9 months of LC and what used to be a very good memory re.names has been shot to pieces… its names, not just people’s or place’s, but a conversation can result in a everyday words reinacted like a game of charades or a thesaurus of alternatives. I had read about wasabi, but not surprisingly forget to investigate/ purchase when shopping! I do a lot more writing down of things to say/ do than I ever used to, but am still the one to ask when someone has mislaid something. Odd how bits of the brain just go ga-ga!

REPLY

LC since 09/2020. Brain Fog since day-one. BF remains my most persistent, debilitating symptom (of many others…) I went through Speech Therapy, not to cure, but to find ways to accomodate it. I am in process of applying for federal disability primarily for Brain Fog/Dizziness.

REPLY
@wilsonanderson

I wish, 4 years 9 months of LC and what used to be a very good memory re.names has been shot to pieces… its names, not just people’s or place’s, but a conversation can result in a everyday words reinacted like a game of charades or a thesaurus of alternatives. I had read about wasabi, but not surprisingly forget to investigate/ purchase when shopping! I do a lot more writing down of things to say/ do than I ever used to, but am still the one to ask when someone has mislaid something. Odd how bits of the brain just go ga-ga!

Jump to this post

!!!!! Exactly

REPLY
@wilsonanderson

I wish, 4 years 9 months of LC and what used to be a very good memory re.names has been shot to pieces… its names, not just people’s or place’s, but a conversation can result in a everyday words reinacted like a game of charades or a thesaurus of alternatives. I had read about wasabi, but not surprisingly forget to investigate/ purchase when shopping! I do a lot more writing down of things to say/ do than I ever used to, but am still the one to ask when someone has mislaid something. Odd how bits of the brain just go ga-ga!

Jump to this post

Same here with memory ! Brilliant memory for some things piercing through the fog.

REPLY

@dh524 - Absolutely! It is so bad that I have abandoned reading instructions that are more than 3 steps and/or point and click. I was having an unusually bad day on the Corona Coaster - unable to name objects , etc. during my "LC" plumonary rehab appt. last week. I tried to explain the brain fog to the pulmonology physical therapist but she still looked puzzled after my attempt. You hit the nail on the head with your explanation! I am going to use that one.

REPLY
@jrg200911

LC since 09/2020. Brain Fog since day-one. BF remains my most persistent, debilitating symptom (of many others…) I went through Speech Therapy, not to cure, but to find ways to accomodate it. I am in process of applying for federal disability primarily for Brain Fog/Dizziness.

Jump to this post

"LC" pulmonologist wanted to put in a referral to Speech Therapy for me. Don't know if it's helped others, but for me NO! Had to push back and let her know it does not/did not help me. And that the brain fog and verbal missteps will improve whenever the Long Covid Demon releases his grip on me. She relented.

REPLY
@dloos

Yes, it is a struggle. My eyes are also very light sensitive, and also sore. I have very little peripheral vision and trip over my dogs, and other things all the time.
I cannot handle the day to day things required to care for my home anymore. My hearing is shot, and my bowel doesn’t work properly. I do still see a variety of doctors, but they have not been able to help me.
I hope that over time (it’s already been three years) I may finally start to improve, but maybe not possible.
Good luck to you.

Jump to this post

The LC Demon loves me. Eye issues here. I have it on my LC Symptom Tracker as "LC Eyes". Not so much sensitivity to light, but blurred vision. It happens intermittently but usually later in the day. Everything becomes blurry. I find it's exacerbated by stress. It started happening while I was hospitalized for Covid and recovering so I know this is directly related to the Covid Monster and his cousin the LC Demon.

REPLY
@iamawriter

The LC Demon loves me. Eye issues here. I have it on my LC Symptom Tracker as "LC Eyes". Not so much sensitivity to light, but blurred vision. It happens intermittently but usually later in the day. Everything becomes blurry. I find it's exacerbated by stress. It started happening while I was hospitalized for Covid and recovering so I know this is directly related to the Covid Monster and his cousin the LC Demon.

Jump to this post

I know what you mean. My eyes cannot re-focus. If I have been trying to read (very difficult) then switch to watching TV, it will take 15-20 minutes for the blurry, double vision to clear a bit.

I do pretty well with contact lenses, but my eyes have gotten so dry that I can only wear them for short periods of time.

My optometrist has me on steroid drops now, and the pain is better. Vision is still pretty bad.
I am still firmly in the grip of LC (three years). I wonder if I will ever recover, or even improve?!

REPLY
Please sign in or register to post a reply.