Holidays Greetings - To all who are touched by Organ Donation

Posted by Rosemary, Volunteer Mentor @rosemarya, Dec 16, 2018

May love be with you as you celebrate the traditions of the season.
May you be blessed with a new year of peace and joy.
And may the message of hope sustain you throughout your transplant journey and guide you for the rest of your life.

What holiday message would you like to share?

Wishing all of you peace, love and joy this holiday season and health, wealth and happiness in the new year.

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@rosemarya @jodeej Thank you, Rosemary and JoDee.

I too wish all a happy and healthy holiday season and a joyful New Year. I hope and pray that all who are still waiting will have their hopes fulfilled in the coming year, and that those of us who have had transplants continue to be healthy with our beautiful new organs.
JK

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Greetings! In my nightly prayer, I ask that He provide a clear path for all patients and thank Him for the progress we have at UCSF with Dr. Shuvo Roy’s “kidney “project”. It does appear to me, to be a miracle. Bless everyone.

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May you all be touched by Christmas peace, love, joy and hope for the future.

DCA836EB-919F-4CE0-8727-F5D71405E3BB

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@cmael Beautiful thoughts, thank you, and same to you.
JK

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@rosemarya Thank you for this sentiment. I am the wife of a kidney recipient. To all those waiting for an organ, may you have peace in heart that "the right one" is out there for you. To those who are living donors, thank you for the gift you unselfishly gave. To those who lost a friend or family member, and people received organ or tissue donations as a result, please know that we understand the pull of feelings in time of grief. To those who received an organ, may you have love in your heart for the gift, and strive to honor it each day.
Ginger

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Holiday greetings to all of you as well! This group really helped me through my donation journey. I just passed my six month follow up check up with flying colors. My husband (and recipient) is experiencing rejection issues however, and that is very stressful. The Mayo doctors are adjusting his meds, and we pray that the changes will help. Thanks for all the support these last 6 months!

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@triciaodonnell

Holiday greetings to all of you as well! This group really helped me through my donation journey. I just passed my six month follow up check up with flying colors. My husband (and recipient) is experiencing rejection issues however, and that is very stressful. The Mayo doctors are adjusting his meds, and we pray that the changes will help. Thanks for all the support these last 6 months!

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@triciaodonnell Tricia, that's wonderful that you were a donor for your husband, but I am sure quite distressing that he is experiencing rejection issues. I hope they manage to get that under control. When I questioned my surgeon about what would happen if rejection occurred, he just told me not to worry, that they would take care of it, so I trust that they would. What were your husband's symptoms that led them to discover that he was having issues? It's been two years and three months for me now and no problems but they say that no matter how long it has been, rejection can occur. At this point, I worry more about catching something than I do rejection.
JK

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@triciaodonnell

Holiday greetings to all of you as well! This group really helped me through my donation journey. I just passed my six month follow up check up with flying colors. My husband (and recipient) is experiencing rejection issues however, and that is very stressful. The Mayo doctors are adjusting his meds, and we pray that the changes will help. Thanks for all the support these last 6 months!

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@triciaodonnell So sorry to hear of this concern. It must be scary! My husband is 26 months out from kidney transplant. I worry more than he does, about rejection. Keeping you both close in prayer.
Ginger

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@contentandwell

@triciaodonnell Tricia, that's wonderful that you were a donor for your husband, but I am sure quite distressing that he is experiencing rejection issues. I hope they manage to get that under control. When I questioned my surgeon about what would happen if rejection occurred, he just told me not to worry, that they would take care of it, so I trust that they would. What were your husband's symptoms that led them to discover that he was having issues? It's been two years and three months for me now and no problems but they say that no matter how long it has been, rejection can occur. At this point, I worry more about catching something than I do rejection.
JK

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I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are good “detectives”, and hopefully will solve the mystery. My husband’s symptoms are unusual fatigue and some muscle aches. The biopsy showed some inflammation in his kidney, but they also wanted to tweak the cholesterol and blood pressure meds. It’s only been a few days…so we are still waiting to see improvement.

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@gingerw

@triciaodonnell So sorry to hear of this concern. It must be scary! My husband is 26 months out from kidney transplant. I worry more than he does, about rejection. Keeping you both close in prayer.
Ginger

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Thanks you so much!!

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@triciaodonnell

I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are good “detectives”, and hopefully will solve the mystery. My husband’s symptoms are unusual fatigue and some muscle aches. The biopsy showed some inflammation in his kidney, but they also wanted to tweak the cholesterol and blood pressure meds. It’s only been a few days…so we are still waiting to see improvement.

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@triciaodonnell I think it is really key to have confidence in your doctors. I am sure they will, as you say, "solve the mystery". I have that confidence too in my doctors at MGH (Mass General). I am surprised that blood pressure is an indicator. I think I am about to go on blood pressure medication, I'm sort of borderline and my PCP wants me to wear a 24-hour monitor. UGH, another medication.
JK

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@triciaodonnell

I think it’s smart to leave the worrying to our wonderful Mayo doctors- as they are good “detectives”, and hopefully will solve the mystery. My husband’s symptoms are unusual fatigue and some muscle aches. The biopsy showed some inflammation in his kidney, but they also wanted to tweak the cholesterol and blood pressure meds. It’s only been a few days…so we are still waiting to see improvement.

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I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute rejection. I was given steroid infusion for about 5 days. It solved the problem and my creatinine levels have been right on since then. I was told the cause was that they misjudged how much immunosuppressants I needed. People my age usually have lower immune systems and can get by with lower levels of immunosuppressants. I’m in the 17% who don’t.
Wishing your husband good results.🙏🏻

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@cmael

I’m 8 mos out from transplant. Shortly after transplant, one or two wks, I had acute rejection. I was given steroid infusion for about 5 days. It solved the problem and my creatinine levels have been right on since then. I was told the cause was that they misjudged how much immunosuppressants I needed. People my age usually have lower immune systems and can get by with lower levels of immunosuppressants. I’m in the 17% who don’t.
Wishing your husband good results.🙏🏻

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Thanks, he had the infusions as well a few weeks out. But now at 6 mos. out, they are trying other things. His function went from 40% to 20% in 6 weeks…so we are sure hoping for a turnaround soon.

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