High Levels of Vitamin B12 and Ferritin: Any pointers?

Posted by cocoa @annieecruz, Apr 29, 2018

What type of doctor handles test like the MMA Urine test and the HoloTC? Test related to how your body breaks down/absorbs and transport/bonds B12? My B12 test came back extremely abnormal.

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Interesting thread. I’ve had rising ferritin levels for 4 years with monitoring every 3 mos. It’s gone from 230 to now over 560. This last time my B12 was over 2000. Hit and miss, I take a B12 supplement. My iron stores are normal. No inflammation markers. Negative for hemochromatosis . I’m not obese, I do have medication controlled HBP and lipid levels as well as under control hypothyroidism which my PCP attributes that condition to having had Covid 3 times despite being fully vaccinated.
Has anyone had a similar situation? I’m not sure the high ferritin and high B12 are related.
Thanks in advance for any insights!

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Do you mind me asking the dose of b12 you take. I am similar high b12 ,normal iron

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Has anyone had physical symptoms when they take B12? I started out taking injections due to a deficiency and did fine. Later, my neurologist said I needed a sustained regimen and prescribed 1000 units sublingual per day. I continued on that awhile and then reduced to 1000-3000 per week Dr. said that’s fine. He said no need to test levels now. It will be high, but that’s whats in my blood not my nerves. Just stay on it indefinitely. I’m fine with that. However…..

My curiosity is why each time I take it I have similar symptoms for several days. It then settles down and I won’t get them again until I take another sublingual dose. It’s making me dread taking it. Overall, I’m better, but these recurring symptoms freak me out. My neurologist was great, but he has moved to another state. Sigh. My symptoms include tingling, cold sensations, and intermittent burning skin.

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Have u been checked for hemachromotosis ?

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Have u been checked for hemachromotosis ?

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I doubt it, but I’ll have to check my labs. Last year I had multiple labs, and had these symptoms then too. It must have been normal if it was checked.

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Its not routinely checked. Its called the Irish Curse.
People of nw European decent are suscepible. I am irish/scottish and from a large family. Several cousins and a sister are treated for it. Many are carriers but don't have. If they have children with someone else who is a carrier they can pass it down.
Phlebotomy is sll it takes yo fix.
Men get it earlier than women who can develop it after menopause.

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