High Coronary Calcium Score: How do others feel emotionally?

Posted by mcphee @mcphee, Dec 14, 2016

I have a calcium score of 1,950 which is extremely high which means I am at a very high risk for a cardiac event,heart attack,stroke or sudden death.

I take a statin and baby aspirin. I have never been sick, have excellent cholesterol, low blood pressure and I am not overweight. I have no other health problems and I have never been sick. But I feel like a walking time bomb which has caused me a lot of stress. I am 70 yrs old.

I wonder how others with this condition feel emotionally?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@bigbern

I’m not sure how this forum works as to protocol so.. apologies in advance .. I too have elevated cac score. Last year 714 this year 1200, I’m on 80mg statin , baby aspirin. My blood work is all good, nuclear good, stress no problem. My doctor says live your life , have a burger once a month , continue running if you feel like a heart attack is coming get to the hospital. Geez! There’s an unsettling feeling every day I wake up as I’m sure everyone else feels. So do we wait around for a particle of plaque to break off and go upstream or downstream? I told my guys I’m open to anything catherization anything they say it’s too risky . Everything I read seems to lead to same ending.. this is a big a symptomatic waiting game . Best to all if you .

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@bigbern- I have always watched what I have eaten and did a hr. of cardio and a 1/2 hr. of resistance training 3 times a week for years. I had blood lipid work-ups yearly as part of my physical and was aware of higher colesterol and was on a statin for years that helped quite a bit with that. Even with all of that back in 2014 after a typical afternoon workout I came home for a light lunch ready to head back to work. After cleaning up, I came downstairs and all of a sudden I was feeling faint and although I did the same workout I wondered had I over did my workout? I sat for a moment and my wife asked was I OK. I thought for a moment and by then I was experiencing the typical symtoms we've all read about heart attacks. I asked my wife to grab the bottle of baby asperin and I threw about a 1/2 doz. into my mouth and I decided we should run up to the hospital to get this checked out. Although it was only a 20 min. ride, halfway there I had wished I had my wife call the ambulance. Once we arrived they rolled me into the business office even though I told them I think I'm having a heart attack. By then I was experiencing extreme pain and finally spoke up and said Mam, I am having a heart attack! They zipped me in the ER and for some reason after several tests they were not convinced I was having a heart attack. They were talking about keeping me overnight for a stress test in the morning so my wife decided to head home to pick up my PJ's & toiletry bag. I was still in lots of pain and keep complaining about the pain. The cardiologist had a tech come in to do a Echo and after a few minutes he left the room quickly returning with the cardiologist and things were ramped up quickly! I had a chance to call my wife to tell her they were going to roll me into the Cath lab stat! From the time I arrived to taking me into the Cath lab was over 3 1/2 hrs. and amazingly after receiving a single stent for a 100% blocked LAD (aka The Widow Maker) I was wheeled out to my room when I finally got to see my wife.
I have no history in my family of any of this and I believe because I was healthy and more importantly God was not ready for me to check in that I survived that. I'm back to were I started and incrediably thankful, but you never know. The only thing the cardiologist could think of is that I had a small piece of plaque break off and lodge in a narrow spot in my artery. Wow, my recommendation, call the ambulance! I was very fortunate! Jim @thankful.

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Hello @bigbern and welcome to Connect!

I appreciate you sharing your story about your elevated CAC score. I can understand your concern when you say, "There’s an unsettling feeling every day I wake up as I’m sure everyone else feels." I am sure that any of us in this situation would feel the same.

Have you just been aware of this for the past year? How do you cope with this feeling of uncertainty? Do you have any special coping techniques that you have developed?

Teresa

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I’m not sure how this forum works as to protocol so.. apologies in advance .. I too have elevated cac score. Last year 714 this year 1200, I’m on 80mg statin , baby aspirin. My blood work is all good, nuclear good, stress no problem. My doctor says live your life , have a burger once a month , continue running if you feel like a heart attack is coming get to the hospital. Geez! There’s an unsettling feeling every day I wake up as I’m sure everyone else feels. So do we wait around for a particle of plaque to break off and go upstream or downstream? I told my guys I’m open to anything catherization anything they say it’s too risky . Everything I read seems to lead to same ending.. this is a big a symptomatic waiting game . Best to all if you .

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I just got my bloodwork results back after doubling my Crestor since my cardiologist wanted to get my LDL down from 50 to 20 after my 1014 calcium score.. The good news is that I'm now down to LDL of 38, but my liver enzymes which have always been in the normal range are off the charts - AST of 148 and ALT of 232 (both should be under 40). I feel like I can't win! I'm sure I'll have another interesting conversation with my doctors tomorrow.

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@dpframing

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2960 and I am past being saddened by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb.

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@dpframing its always good to get a 2nd opinion . Losing weight will bring down B.P.Cholesterol and make you feel better but if your gut is telling you get a 2nd opinion

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@dpframing

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2960 and I am past being saddened by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb.

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He put me 4 medications: a BP medication, a statin, a calcium absorption drug, aspirin, and vitamin B2. I am thinking of getting a 2nd opinion for more extensive testing. The main thing he stressed was to lose weight. I have to lose 40 lbs.

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@dpframing

Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2960 and I am past being saddened by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb.

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Welcome to Connect @dpframing
You'll notice that I moved your message to an existing and active discussion where members are talking about having a high calcium score. Click VIEW & REPLY in the email notification to scroll through past messages, ask questions and read what others have written like @botexas and @luckyg who had a score as high as yours.

You may also wish to view some of the conversations taking place in this other discussion on Connect:
– High Calcium CT Scan Score of 1925 – Anyone Else Experience This? https://connect.mayoclinic.org/discussion/high-calcium-ct-scan-score-of-1925-anyone-else-experience-this/

Here is a great journal discussion by Mayo Clinic cardiologists about the basics and significance of coronary calcium score: https://www.medscape.com/viewarticle/842348

DPFraming, Has your doctor suggested any "next steps" to help lower the calcium score?

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Just joined the site and I'm looking to share with others who have had a high calcium score. I found out today that mine is 2960 and I am past being saddened by this. I am 61 and I am totally asymptomatic. Now I feel like a walking time bomb.

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@nyartist

I've been an athlete all my life and have been exercising vigorously for over 55 years (I'm 74) my HDL has been very good, I always surpassed the benchmarks for my age in all the stress tests I've taken over the years, my diet is healthy and I have no other risk factors and am asymptomatic. So imagine my surprise and shock to find a calcium score of 2300! My cardiologist put me on 20 mg Lipitor and baby aspirin a week ago and I have been in touch with a reputable herbalist (the same herbalist my wife has used since her ovarian cancer diagnosis 4 years ago - and she's doing absolutely great). I'm going to start on his program of supplements to go along with the statin and aspirin. I've read conflicting facts. For example one states that anyone with a score of over 1000 has a 25% chance of having a major cardiac event within a year. I've also read that because the calcium has most likely been developing over many many years the score might not be a true indication of risk. What I would love to know and will ask my doc when I see her next week is how do we know how much blockage I have? They say stress tests results will show blockages if the blockages are over 70%. The score might not necessarily reflect the severity of narrowing. Maybe I oughta stop reading about all this and just get to the gym!

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Got my results back and was generally good news. No blockages with mild stenosis.Flow rates were good at .91,.87 and.87. They start to worry at .75. May put me on
Crestor rather than Zocor to try and get my ldl down to below 50. Took more blood test to measure sizes of LDL and HDL and to check a certain protein in blood. Said to keep exercising and eating plenty ol tuna and salmon. No fried food or red meat. An eat elk in moderation. Avoid sugar as it is toxic and a major player in CAD. Hear results from blood test in a week.

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@nyartist

I've been an athlete all my life and have been exercising vigorously for over 55 years (I'm 74) my HDL has been very good, I always surpassed the benchmarks for my age in all the stress tests I've taken over the years, my diet is healthy and I have no other risk factors and am asymptomatic. So imagine my surprise and shock to find a calcium score of 2300! My cardiologist put me on 20 mg Lipitor and baby aspirin a week ago and I have been in touch with a reputable herbalist (the same herbalist my wife has used since her ovarian cancer diagnosis 4 years ago - and she's doing absolutely great). I'm going to start on his program of supplements to go along with the statin and aspirin. I've read conflicting facts. For example one states that anyone with a score of over 1000 has a 25% chance of having a major cardiac event within a year. I've also read that because the calcium has most likely been developing over many many years the score might not be a true indication of risk. What I would love to know and will ask my doc when I see her next week is how do we know how much blockage I have? They say stress tests results will show blockages if the blockages are over 70%. The score might not necessarily reflect the severity of narrowing. Maybe I oughta stop reading about all this and just get to the gym!

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Hello,Bo from Texas. In same boat as you. 2400 calcium score but did great on stress test. I had another 256 k heart scan two weeks ago that my Doc. Says will show blockages. Going to him for results next Wednesday. Have not stopped exercising about 75 minutes every day. Will post my results and recommendations next week.

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