High Coronary Calcium Score: How do others feel emotionally?

Posted by mcphee @mcphee, Dec 14, 2016

I have a calcium score of 1,950 which is extremely high which means I am at a very high risk for a cardiac event,heart attack,stroke or sudden death.

I take a statin and baby aspirin. I have never been sick, have excellent cholesterol, low blood pressure and I am not overweight. I have no other health problems and I have never been sick. But I feel like a walking time bomb which has caused me a lot of stress. I am 70 yrs old.

I wonder how others with this condition feel emotionally?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Well, It's been almost a month since my test revealed my white knuckle inspiring 6451.12. I have seen the Cardo and in the morning I am going in for a CIMT, a heart ultrasound and a nuclear stress test tomorrow. I am on 20mg Rosuvastation and a baby aspirin. I am down 10 lbs solid and totally off carbs. I am hoping to get released to exercise so I can start building collateral circulation. I have ubiquinol on the way. It would be here but Costco put the wrong bottle in the envelope. I am attacking the disease on all fronts I can think of. Wish me luck and say a prayer if you are so inclined as I gather more information about where I'm at.
Thanks,
Bill

REPLY
Profile picture for snakebyte1 @snakebyte1

Hey everyone. I had an EKG, Stress Test, Echo that were all fine, but I asked for additional test and my score came back at 1460. I feel fine and everything but of course now I feel like a ticking time bomb. I'm only 47 yrs old. My issue is came from Hypertrigliceridemia. At my age and having this I dont know what to do, my doctor has me taking natural supplements called Coratin, K-2 and Nattkinese with Crestor 5mg every other day. Plus working out, which has been tough to do. Is there anyone with any other suggestions?

Jump to this post

Sounds like when you said’working out is tough to do’ that you won’t be doing it often enough or for long. You need to make the time to work out at least 4 days a week as if your life depends on it.

REPLY
Profile picture for mcphee @mcphee

My high calcium score if from the calcium heart scan.(scan of coronary arteries.)
I take a baby aspirin and Crestor 40 mg.
Dr wants me to do a lot of aerobic exercise and limit red meats to twice a month.

Jump to this post

Hey everyone. I had an EKG, Stress Test, Echo that were all fine, but I asked for additional test and my score came back at 1460. I feel fine and everything but of course now I feel like a ticking time bomb. I'm only 47 yrs old. My issue is came from Hypertrigliceridemia. At my age and having this I dont know what to do, my doctor has me taking natural supplements called Coratin, K-2 and Nattkinese with Crestor 5mg every other day. Plus working out, which has been tough to do. Is there anyone with any other suggestions?

REPLY

From my understanding there are ways to slow plaque progression through diet, supplements, exercise. Plaque can increase as much as 40% per year and keeping progression to a minimal will lower the chances of an event. The only way to do this is through a CAC retest, radiation exposure is minimal. Although high CAC Score means risk is increased, there are probably many other factors involved in having an actual event. Lowering stress, meditation, mindfulness are probably all beneficial. I want to monitor my plaque progression percentage, so I plan to retest after a two year period.

REPLY

Once you have been diagnosed with a high calcium score I think there is little merit in further scans (you already know you are at high risk) and you add another risk since you are exposing yourself to additional radiation.

You should take steps to modify your lifestyle but be aware that while you can reduce the risk a little you are always going to be at high risk. Most major studies put the risk of having a major cardio event or stroke at 20--25% within a year with a CAC over 1000 (and asymptomatic!), and a likelihood that an event is probable in 3-5 years.

In addition to lifestyle modifications I think that cognitive behavior treatment can be helpful to help you understand and cope with the stress that such a diagnosis can cause.

Good luck!

REPLY
Profile picture for wilsopr @wilsopr

I can certainly relate to the anxiety. I am 62 with score of 1771. Life long high cholesterol but unfortunately can not take statins. Now PCP is urging me to take REPATHA I am terrified of the high score but also terrified of drugs due to the statins that caused severe neurological muscular issues. Totally asymtomatic, BP under control. Have had hypothyroidism for 30 years. Would be interested in anyone taking REPATHA and their experiences.

Jump to this post

Are you monitoring plaque progression? What do you feel is the cause of a high calcium score? I'm also 62 with a CAC of 979, asymptomatic. I'm moving forward with diet modification, supplementation, increased exercise.

REPLY
Profile picture for tim1028 @tim1028

I can relate to your anxiety. I'm in a similar situation with a CAC score of 1562 with no symptoms. I had a stress test with echocardiogram, which was normal, i.e., no blockages above 70%. I am now on a daily aspirin and a high dose statin. I have no risk factors other than a low HDL. I am currently trying to exercise and eat according to health-heart guidelines. Simply because 4 months has passed since I was tested and I am a lot more knowledgeable about coronary artery atherosclerosis, I am less anxious than I was, but there is still a low-volume steady anxiety that underlies daily life. I'm 70 and still hope live another 10 to 20 years.

Jump to this post

I can certainly relate to the anxiety. I am 62 with score of 1771. Life long high cholesterol but unfortunately can not take statins. Now PCP is urging me to take REPATHA I am terrified of the high score but also terrified of drugs due to the statins that caused severe neurological muscular issues. Totally asymtomatic, BP under control. Have had hypothyroidism for 30 years. Would be interested in anyone taking REPATHA and their experiences.

REPLY
Profile picture for jimk849 @jimk849

New study out questioning usefulness of low dose aspirin therapy. I take 40 mg. atorvastatin and 81mg. aspirin. I don't know if I should continue or not. I had a very high cc score and that's when I started this regimen. Had a nuclear stress test in Nov. 2018 came back normal.??????

Jump to this post

I am in similar situation. Taking 20mg rosuvastatin and 81mg aspirin. My calcium score was only 99 but have heart valve issues. I'm going to ask Dr. about it on next visit in April. Until then, I won't make changes on my own. Curious to hear what your dr. thinks.

REPLY
Profile picture for carlreisen @carlreisen

I showed a calcium score of 1588 2 months ago. 2 arteries were above the 400 level. My PCP ordered a consultation with a cardiologist and this led to an angiogram performed in February. At my follow-up visit with the cardiologist the test results showed blockages no higher than 20%. I am 70, and he adjusted my medications, especially doubling the Lipitor dosage; took me off Tenormin, reduced the Cardura by half, and added Lisinopril and 81 mg aspirin tab. I am curious as to the high score and the relationship to the thyroid. Any experiences that are similar?

Jump to this post

New study out questioning usefulness of low dose aspirin therapy. I take 40 mg. atorvastatin and 81mg. aspirin. I don't know if I should continue or not. I had a very high cc score and that's when I started this regimen. Had a nuclear stress test in Nov. 2018 came back normal.??????

REPLY

Hi. I am a 64 yo male. I have miled hypertrophic cardiomyopathy and medium MVP. LDL 111, triglicerides 91, HDL 55. was having some symptoms, some shortness of breath at times, some chest discomfort on left side. Dr. suggested having a calcium score scan. It came back with a score of 99. Not bad I thought but he put me on 20mg rosuvastatin. Started last week and many symptoms have subsided. Will check bloodwork in about 6 weeks. Blood pressure and pulse have calmed down too. I'm guessing it must be the rosuvastatin. Some of my cousins have had heart bypass surgery and heart attacks and I want to avoid that. Have refined diet and trying to lose about 10 pounds.

REPLY
Please sign in or register to post a reply.