High Coronary Calcium Score: How do others feel emotionally?

Posted by mcphee @mcphee, Dec 14, 2016

I have a calcium score of 1,950 which is extremely high which means I am at a very high risk for a cardiac event,heart attack,stroke or sudden death.

I take a statin and baby aspirin. I have never been sick, have excellent cholesterol, low blood pressure and I am not overweight. I have no other health problems and I have never been sick. But I feel like a walking time bomb which has caused me a lot of stress. I am 70 yrs old.

I wonder how others with this condition feel emotionally?

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@bluesdoc

Hight dose K2 had no effect on my CAC score. I'm almost mid-way through a chelation protocol (eventually 40 infusions) and we'll see. Clearly, as I've said before, there does NOT seem to be any sort of linear relationship from low to VERY high CAC scores. Too many have these shockingly high scores with wide open vessels. I suspect this is calcification (without, or with minimal actual atheroma) from endothelial inflammatory disease - possibly stealth infection (ie Bartonella). But, who tf knows??

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Thank you for your prompt reply, Bluesdoc. Comforting to have an answer from someone in the same circumstance as I am, even though it looks like the road to redemption may not exist. I will ask my cardiologist about chelation.

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@mark430

Hello. New to this group. Asked my cardiologist several times for a stress test and a look at how my arteries are doing. He consistently refused until I had what looked like a cardiac event last year (at 74). Turned out to not be an MI. Had the stress test and the result was good. I again requested a better look into my arteries and he adamantly refused, saying I was doing just fine. Change in cardiologist and she recommended CAC, which showed I am in the high risk group. Life changing in an instant. Cardiac catheterization showed no significant blockage in the lumens of my arteries, so no stent or bypass. I have read almost all posts here, but see little in the way of actual reversal. In looking at the Rotterdam study, it would appear that vitamin K2 was successful in reducing calcium scores within three years, with resulting more supple blood vessels. Am I mistaken? Are there other supplements that have been shown to be helpful? What about chelation? I know that diet and exercise may slow progression, but is there absolutely no way to diminish the level of plaque in arteries? I am so thankful for every day that I am alive and able to live an energetic life at my age, but I feel like my time may be very limited. Not normally anxious or depressed, but I am considering both of those options.

Jump to this post

Hight dose K2 had no effect on my CAC score. I'm almost mid-way through a chelation protocol (eventually 40 infusions) and we'll see. Clearly, as I've said before, there does NOT seem to be any sort of linear relationship from low to VERY high CAC scores. Too many have these shockingly high scores with wide open vessels. I suspect this is calcification (without, or with minimal actual atheroma) from endothelial inflammatory disease - possibly stealth infection (ie Bartonella). But, who tf knows??

REPLY

Hello. New to this group. Asked my cardiologist several times for a stress test and a look at how my arteries are doing. He consistently refused until I had what looked like a cardiac event last year (at 74). Turned out to not be an MI. Had the stress test and the result was good. I again requested a better look into my arteries and he adamantly refused, saying I was doing just fine. Change in cardiologist and she recommended CAC, which showed I am in the high risk group. Life changing in an instant. Cardiac catheterization showed no significant blockage in the lumens of my arteries, so no stent or bypass. I have read almost all posts here, but see little in the way of actual reversal. In looking at the Rotterdam study, it would appear that vitamin K2 was successful in reducing calcium scores within three years, with resulting more supple blood vessels. Am I mistaken? Are there other supplements that have been shown to be helpful? What about chelation? I know that diet and exercise may slow progression, but is there absolutely no way to diminish the level of plaque in arteries? I am so thankful for every day that I am alive and able to live an energetic life at my age, but I feel like my time may be very limited. Not normally anxious or depressed, but I am considering both of those options.

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fwiw, not all statins induce the same reactions. When I took atorvastatin, my liver and muscle enzymes went up, although I had no symptoms. A few years later I started pitavastatin (Livalo) and had no problem. ymmv......

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@lolagrey

I cannot tolerate statins either. Have you tried PCSK(? My docs want me to try that but I am hesitant. Thanks for your info.

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Have not tried yet. Trying to get insurance approval as they are terribly expense. Have really avoided due to neuro muscular effects with statins. But I’m at point where I MUST do something. My son is doctor and he believes they are safe BUT everyone reacts differently. Putting it in God’s hands.

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I cannot tolerate statins either. Have you tried PCSK(? My docs want me to try that but I am hesitant. Thanks for your info.

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@wilsopr

I can certainly relate. My life has been turned upside down last two weeks. All my relatives had high cholesterol but all lived into late 80s and 90s. Now I find a CAC of 1800 at 62 and doctor is begging me to do pcsk9 inhibitor as I'm severely statin intolerant. Finally had to stop, take a deep breath, and remember God is in control of all things. Doesn't mean things will always work out like we hope, but He Will walk the path with us. My prayers are fot you and all struggling to find peace.

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@wilsopr Hi I dont know if this will help All my life I let God take over In 1998 I had a triple by pass its been over20 yrs dealing with a high cholesterol problem Been on every statin you can think of .Drs arent happy I cant get it under control ,diet didnt make any difference so I just let God take care of me and go about living my life

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@snakebyte1

Hey everyone. I had an EKG, Stress Test, Echo that were all fine, but I asked for additional test and my score came back at 1460. I feel fine and everything but of course now I feel like a ticking time bomb. I'm only 47 yrs old. My issue is came from Hypertrigliceridemia. At my age and having this I dont know what to do, my doctor has me taking natural supplements called Coratin, K-2 and Nattkinese with Crestor 5mg every other day. Plus working out, which has been tough to do. Is there anyone with any other suggestions?

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@snakebyte1 Welcome and a suggestion is stay of sugar hard to do but triglycerides love sugar I need to take my own advice

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Once again, our super high CAC scores are NOT understood by cardiologists. Clearly there's no linear relationship if folks in the low hundreds are considered at high risk and we are many multiples of that, we should all be 6' under. As as doc and owner of vessels turning to stone, I sure wish I knew the answer. I have excellent exercise tolerance but who knows where our tipping point is.... My cardiologist wants to do a treadmill this summer, taking me off my beta blocker to get my heart rate up there. I can't deny a level of anxiety about what might happen. I can burn 8 METS on an elliptical at the gym, but my heart rate never goes above 100 on the beta blocker. If I get it up to 150 or so, might a rigid vessel crack? I know, that's just anxiety talking (coming from a usually very low anxiety guy), but damn, we just don't know. If I weren't dreadfully allergic to contrast, I'd lean on my cardiologist to do an angio, but I am, so I can't. Should I have a coronary event requiring angiography, I'd have to have a very large loading dose of steroid, with its attendant risks. Rock and a hard place. Sucks - after living my life in a way to NOT become like my patients. sheesh...... jon

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I can certainly relate. My life has been turned upside down last two weeks. All my relatives had high cholesterol but all lived into late 80s and 90s. Now I find a CAC of 1800 at 62 and doctor is begging me to do pcsk9 inhibitor as I'm severely statin intolerant. Finally had to stop, take a deep breath, and remember God is in control of all things. Doesn't mean things will always work out like we hope, but He Will walk the path with us. My prayers are fot you and all struggling to find peace.

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