High calcium score: I'm in shock
Hi everyone... just wanted to share my last few days - I'm scared and lost and was just hoping to hear from some people who have been in my place. Long story short - I went in for a "routine" checkup at age 50 to make sure my heart was okay. I had a stress test two years ago that was fine. But I do have a family history, and somewhat high LDL and blood pressure so the doctor sent me for a cardiac calcium score. It came back at 407 at age 50!!! That's like the 98th percentile for my age, which is shocking. I do Crossfit and have done half marathons so it was totally unexpected. Now I'm going for another stress test in two weeks to make sure no blockages are over 70%, and I'm not sure of the steps after that.... I'm terrified of needing open heart surgery - I've gotten myself into a place of being okay with a stent if needed. I know it's better to know than not know, but I just feel like my life was suddenly ripped out from under me and to be honest I'm spinning right now... every waking second I feel like I'm going to drop over..
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@helpfull You're saying your doc doesn't want do the angiogram because of risk of something bad happening is not worth upside in his opinion?
Also, what's happened since this post? (Forgive me if this is answered elsewhere in this lengthy thread and I missed it.)
@mayoconnectuser1
No per say, more about perfusion and heart function. Just a clearer image vs. a Nuclear Stress Test...but same principal of using a radioisotope (tracer) to detect abnormalities of the heart. The added feature if a true PET/CT is the CT component that can in fact see calcium.
It is a bit overkill IMHO---but obviously less risky than a catherization.
Poor you. I can certainly understand your feelings.
I had a CT scan for my lungs 6 weeks ago. Lungs OK, but I have a severe problem with calcium build up on my arteries.
I never have pain in my chest. I am extremely active but now I am expecting to have a heart attack any day. I am in the UK and waiting for a referral but if this takes time I will go private for the first appointment.
Thanks for reading this
@beaverstreefarm
It is confusing. My scan showed calcification along LAD.
However, a cardiac cath this year showed clear coronary arteries. Explanation was calcification on the outside.
You have good test results- that’s reassuring.
Recently had my second coronary calcium scan. It was in the mid 2200’s. Five years ago it was in mid 1800’s. I had a nuclear stress test after each coronary calcium scan. It show no significant abnormalities both times. The doctor said calcium buildup outside arteries. Confused!
I am 79 years old and my Cardiologist had me take most of the above tests for a base line a year ago. I have no heart problems. I did have AFIB 1.5 years and Mayo Clinic did an Ablation Surgery in 2020 and I woke up fine and still am. I am glad to take most any test ordered by my Doctors at Mayo Clinic because they can find a problem early or a problem I didn’t know I had.
Normally, a regular stress test is combined with a echocardiogram (not electrocardiogram or EKG) - you lay on your side for a echo prior to the stress test, then after exercising on the treadmill (walking or running) in order to elevate your heart rate sufficiently, you immediately lay on your side, again, for another echo. These two combined constitute a stress test with echo. An echo by itself is not as useful in diagnosis of asymptomatic patients. Again, I am not a medical professional.
Many cardiologists do not think a CT works well as the calcium causes blooming on the imagery which makes it difficult to assess arterial conditions.
I may need new cardiologist. First meeting on Monday and he wants three tests:
1. Nuclear Stress Test
2. Echocardiogram
3. CT scan with dye
I found out the nuclear stress test was four hours and required I take a drug to simulate exercise.
I called to question why and office said I mentioned I had a hurt knee. I explained i hurt my knee and gained 30 pounds a year ago but I'm back to walking and running 4 miles. They missed that part and assumed I couldn't exercise (how did he miss that part?).
So they cancelled my nuclear pharma test and setup a stress test. I looked online at my charts and it's scheduled for 45 minutes - stress test. Is that worth getting or should I get a nuclear exercise stress test? So why didn't they schedule a nuclear exercise test? Assume that would be 4 hours not 45 minutes.
Or are 2 and 3 above good enough?
Does this cardiologist seem good?
Yep - I recall a dual PET/CT system being used in pancreatic cancer diagnosis - but, using it to assess calcium?
@mayoconnectuser1
You are correct about PET utilized to detect, monitor a cancer diagnosis, but PET technology (usually PET/CT) is used beyond that....Neurology, Cardiac etc. and yes they are expensive. Cardiac MRI is also making strides as well, definitely expensive. I have worked in this field for 20 years. IMO--a bit of overkill, but everyone is different.
https://link.springer.com/article/10.1007/s11883-023-01107-0#:~:text=Results%20showed%20PET%20to%20have,PET%20as%20a%20confirmatory%20test.