High calcium score: I'm in shock

Posted by sjy70 @sjy70, Jun 14, 2021

Hi everyone... just wanted to share my last few days - I'm scared and lost and was just hoping to hear from some people who have been in my place. Long story short - I went in for a "routine" checkup at age 50 to make sure my heart was okay. I had a stress test two years ago that was fine. But I do have a family history, and somewhat high LDL and blood pressure so the doctor sent me for a cardiac calcium score. It came back at 407 at age 50!!! That's like the 98th percentile for my age, which is shocking. I do Crossfit and have done half marathons so it was totally unexpected. Now I'm going for another stress test in two weeks to make sure no blockages are over 70%, and I'm not sure of the steps after that.... I'm terrified of needing open heart surgery - I've gotten myself into a place of being okay with a stent if needed. I know it's better to know than not know, but I just feel like my life was suddenly ripped out from under me and to be honest I'm spinning right now... every waking second I feel like I'm going to drop over..

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@helpfull

74 years old, received CAC score 6 months ago 1,328. Using web, I entered numbers and found my coronary arteries are equivalent to a 92-year-old, and 10-year risk of heart event or stroke is 39%. Immediately went on very strict raw vegetables diet. This diet is very hard to maintain. I had to back off, adding only fish, but as time goes by, it’s only been 6 months, I cheat. Sugar free chocolates, KETO cookies, but these put pounds back. I am 5’6” and my weight went down from 160 to 134. Was on a low dose statin for decades, but primary care physician (PCP) immediately put me on Rosuvastatin 40mg and ordered Stress Test with Echocardiogram. This stress test produced a Duke Score saying my risk was "only" 10%, walls and muscles are fine, injection great. So high CAC Score, low Duke score. PCP said I was doing everything I could, so don't worry, eat well, exercise, end enjoy remaining life. Few months later, I had to see a cardiologist. First meeting was perfunctory BUT HE DID order LIPOPROTEIN FRACTIONATION MOBILITY, and carotid arteries intima thickness MRI, because, “There is correlation between plaque in carotid arteries and plaque in coronary arteries” whatever that means. This test showed plaque blockage in lowest 10% risk category. So now, 95% risk based on CAC and 10% risk based on other two tests. My LDL went from 50’s to 19 on Rosuvastatin 40mg. Now it’s 27. I read over 100 scholarly papers and started to beg for PCSK-9. Cardiologist said no because diet plus Rosuvastatin 40mg tested at an LDL of 19. Great, yes? Well, wait. The fractionation mobility test came back, with small, medium and large particle sizes and risk panel B - not good at all. Since the particle labs are absolute measurements, not the LDL-C which is calculated, my cardiologist now says my REAL LDL is 110 and I will be on the PCSK9 Inhibitor immediately to get my “real” LDL-P (particle) lower than 40. I will soon go on Zetia in 6 weeks after I have another fractionation mobility test done. I am willing to share any numbers about my chemistry if you ask. I am still alive, happier that I have a much better hold on my numbers. Risk is still 39%. I begged for an invasive cardiology and doc doesn’t want to do it because risk of shedding a clot is 1 in 1,000. He WILL do it if I beg for it. There is so much knowledge I have now, would like to refresh this thread and get it going again. Ask me questions, there is supplements, for one thing, to talk about.

Jump to this post

@helpfull You're saying your doc doesn't want do the angiogram because of risk of something bad happening is not worth upside in his opinion?

Also, what's happened since this post? (Forgive me if this is answered elsewhere in this lengthy thread and I missed it.)

REPLY
@mayoconnectuser1

Yep - I recall a dual PET/CT system being used in pancreatic cancer diagnosis - but, using it to assess calcium?

Jump to this post

@mayoconnectuser1

No per say, more about perfusion and heart function. Just a clearer image vs. a Nuclear Stress Test...but same principal of using a radioisotope (tracer) to detect abnormalities of the heart. The added feature if a true PET/CT is the CT component that can in fact see calcium.

It is a bit overkill IMHO---but obviously less risky than a catherization.

REPLY

Poor you. I can certainly understand your feelings.
I had a CT scan for my lungs 6 weeks ago. Lungs OK, but I have a severe problem with calcium build up on my arteries.
I never have pain in my chest. I am extremely active but now I am expecting to have a heart attack any day. I am in the UK and waiting for a referral but if this takes time I will go private for the first appointment.
Thanks for reading this

REPLY
@beaverstreefarm

Recently had my second coronary calcium scan. It was in the mid 2200’s. Five years ago it was in mid 1800’s. I had a nuclear stress test after each coronary calcium scan. It show no significant abnormalities both times. The doctor said calcium buildup outside arteries. Confused!

Jump to this post

@beaverstreefarm
It is confusing. My scan showed calcification along LAD.
However, a cardiac cath this year showed clear coronary arteries. Explanation was calcification on the outside.
You have good test results- that’s reassuring.

REPLY
@jdyment

Relax. Mine at 55 was 2,845. Plus I have the beginning of an aortic aneurysm. Countless tests later and I’m popping 40 mg of statins and we are wait and watch. Once a year I’ll go in for a test. So relax. Get your MRI echo and stress test. The key is how well your body and your heart is pumping blood. You can have arteries that are 95% blocked, but still ample floods flow gets through the opening that exists.

Jump to this post

Recently had my second coronary calcium scan. It was in the mid 2200’s. Five years ago it was in mid 1800’s. I had a nuclear stress test after each coronary calcium scan. It show no significant abnormalities both times. The doctor said calcium buildup outside arteries. Confused!

REPLY
@mayoconnectuser1

Normally, a regular stress test is combined with a echocardiogram (not electrocardiogram or EKG) - you lay on your side for a echo prior to the stress test, then after exercising on the treadmill (walking or running) in order to elevate your heart rate sufficiently, you immediately lay on your side, again, for another echo. These two combined constitute a stress test with echo. An echo by itself is not as useful in diagnosis of asymptomatic patients. Again, I am not a medical professional.

Many cardiologists do not think a CT works well as the calcium causes blooming on the imagery which makes it difficult to assess arterial conditions.

Jump to this post

I am 79 years old and my Cardiologist had me take most of the above tests for a base line a year ago. I have no heart problems. I did have AFIB 1.5 years and Mayo Clinic did an Ablation Surgery in 2020 and I woke up fine and still am. I am glad to take most any test ordered by my Doctors at Mayo Clinic because they can find a problem early or a problem I didn’t know I had.

REPLY

Normally, a regular stress test is combined with a echocardiogram (not electrocardiogram or EKG) - you lay on your side for a echo prior to the stress test, then after exercising on the treadmill (walking or running) in order to elevate your heart rate sufficiently, you immediately lay on your side, again, for another echo. These two combined constitute a stress test with echo. An echo by itself is not as useful in diagnosis of asymptomatic patients. Again, I am not a medical professional.

Many cardiologists do not think a CT works well as the calcium causes blooming on the imagery which makes it difficult to assess arterial conditions.

REPLY

I may need new cardiologist. First meeting on Monday and he wants three tests:
1. Nuclear Stress Test
2. Echocardiogram
3. CT scan with dye

I found out the nuclear stress test was four hours and required I take a drug to simulate exercise.
I called to question why and office said I mentioned I had a hurt knee. I explained i hurt my knee and gained 30 pounds a year ago but I'm back to walking and running 4 miles. They missed that part and assumed I couldn't exercise (how did he miss that part?).
So they cancelled my nuclear pharma test and setup a stress test. I looked online at my charts and it's scheduled for 45 minutes - stress test. Is that worth getting or should I get a nuclear exercise stress test? So why didn't they schedule a nuclear exercise test? Assume that would be 4 hours not 45 minutes.
Or are 2 and 3 above good enough?
Does this cardiologist seem good?

REPLY
@jasper1072

@mayoconnectuser1

You are correct about PET utilized to detect, monitor a cancer diagnosis, but PET technology (usually PET/CT) is used beyond that....Neurology, Cardiac etc. and yes they are expensive. Cardiac MRI is also making strides as well, definitely expensive. I have worked in this field for 20 years. IMO--a bit of overkill, but everyone is different.
https://link.springer.com/article/10.1007/s11883-023-01107-0#:~:text=Results%20showed%20PET%20to%20have,PET%20as%20a%20confirmatory%20test.

Jump to this post

Yep - I recall a dual PET/CT system being used in pancreatic cancer diagnosis - but, using it to assess calcium?

REPLY
@mayoconnectuser1

I'm getting confused ...

PET scans are to detect cancers and are very expensive.

Echos are ultrasound assessments before a stress test and immediately afterward and provide very detailed video and imagery of your heart operating normally and following stress. The imagery is quite good.

Jump to this post

@mayoconnectuser1

You are correct about PET utilized to detect, monitor a cancer diagnosis, but PET technology (usually PET/CT) is used beyond that....Neurology, Cardiac etc. and yes they are expensive. Cardiac MRI is also making strides as well, definitely expensive. I have worked in this field for 20 years. IMO--a bit of overkill, but everyone is different.
https://link.springer.com/article/10.1007/s11883-023-01107-0#:~:text=Results%20showed%20PET%20to%20have,PET%20as%20a%20confirmatory%20test.

REPLY
Please sign in or register to post a reply.