Mayo Clinic Connect
Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂
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I have taken both Forteo & Prolia. I have necrosis of the jaw probably from years of Fosomax, Boniva etc. Had my 1 st Prolia injection 6 mos ago & may discontinue d/t significant constipation. Had some back pain in the first month or so. Both of these symptoms are a puzzle to my MD as she has never heard of anyone having these although the Prolia website says these are the two most common reasons people discontinue. All this is very discouraging.
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Since I 've been on Prolia, (2 injections, 1 full year) my longstanding irritable bowel-C (constipation) has become quite dreadful. Coincidental? My followup appt is next week, so I will let the endocrinologist know and see what she says. I also noticed that constipation is listed as a common side effect.
Hello members of the Bones, Joints & Muscles group. I think it's safe to say that everyone sharing in this group has been greeted by @lioness. She seems to always be online to offer information, give support, connect you with others, and to share a laugh of two. Ever wonder what makes lioness tick and whats she does when she's not on Connect? Now you can.
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Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, gloriajean, jmanj
@JustinMcClanahan Thank you Justin for the nice words I have enjoyed your help and comments
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You can cure osteoporosis in several ways. The protein, calcium, vitamin D and exercise can treat your osteoporosis.
Liked by John, Volunteer Mentor, lioness
@johnduo32 cure and treat are two very different words.
Liked by John, Volunteer Mentor, lioness, sue225
Hi @johnduo32, welcome to Connect. I see that you attempted to post a link with your message. You will be able to post links in a few days. New members have brief period where they are not allowed to post links. We do this to prevent spammers from posted unwanted links and selling things. Clearly the link you were trying to post was not spam. Allow me to post it for you.
Osteoporosis from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/osteoporosis/symptoms-causes/syc-20351968
@bonnieh218, you are quite right. There is an important distinction between words like cure, treat and manage.
Liked by John, Volunteer Mentor, JK, alumni mentor, lioness, gloriajean
that's what I am taking Forteo for 18 to 24 Mo. then to Prolia. I am 60.
Just noticed your posting. I started Forteo four months ago (with no side effects so far). Did you experience good increase in your bone density after you completed the 24-month Forteo regimen?
I have osteopenia but am currently only taking calcium supplements. I ran across this interesting article from Mayo Clinic on Osteoperois.
Make No Bones About It: Despite Medical Advances, Osteoporosis on the Rise
Good article, and especially the other one (from Readers Digest) that is linked to it.
Liked by John, Volunteer Mentor, jmanj
I think your advice is well taken if you have been diagnosed with Osteopenia, and don’t have other health complications that impact your ability to absorb calcium, or prevent you from exercising. I did all that for 20+ years and held Osteoporosis at bay until I hit my mid-60’s. At that point … it became clear I was going to need “more”. I had to overcome the feeling of “failure”, because all the steps I had taken hadn’t prevented me from progressing into Osteoporosis, and make the decision to take meds. I chose Forteo (daily injections for two years, and then move to something else), which I am tolerating well. Everyone is unique and we all need to encourage each other to do what you can to educate yourself (which this Forum really helps with) and then make the best personal decision based you can for your health needs.
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, sue225
Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?
I have severe osteoporosis. I am on my 3rd year of seeing a wellness coach at a local physical therapy place. I started doing an hour twice a week of strength and resistance training. Then I dropped to an hour a week and Medicare will pay for physical therapy for resistance training. So I do an hour with a wellness coach (individual training) and intense. Then 40 minutes with a physical therapist. Not on the same day. After 1 1/2 years with the wellness coach and a year with the physical therapist, it stopped the osteoporosis in my spine but not my hips. I cannot take the Boniva, Fosamax of the world. My only resort now is for Prolia. But my first bone scan was in 1999, the year I turned 50 and my spine scan was -1.44 then. . It took until 2018 to get to -2.5 in my spine. My total left hip was scanned in 2008 at -2.5 and in 2019 it was -3.4. I am still weighing whether I want Prolia at 70 years old.
Liked by jmanj
So, I am almost 65 and have been on Prolia for 21 months. My hip score was almost as bad as yours. My fear of a hip fracture and loss of independence (I know someone who never got out of her wheelchair), outweighed my fear of Prolia. (I have posted on this blog before but one more time, my hip score improved by 6.5 % and spine by just under 12% after 1 year.
Liked by JK, alumni mentor, jmanj
Have you considered Forteo or Tymlos. Both of these meds actually build bone.
Forteo was my doctor's first choice because the bone density increase is significant and fast. Believe the maximum amount of time to be on it is 18 months.
Here is an article Re: Forteo
I don’t know anything about it but thought this article was thought provoking.
Liked by JK, alumni mentor, sue225, jmanj
Although Forteo was my doctor's first choice, I did not like the black box warning about osteosarcoma. That definitely factored into my decision to go with Prolia. (history of a variety of different types of cancer in my family including blood and bone cancers.)
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