stopping Carvedilol (Coreg): When will the effects wear off?

Posted by teatime @teatime, Apr 28, 2016

Hi everyone,

I am glad to be a part of this community. Please foregive the long post. I was wondering if anyone has had a hard time while being on and going off Carvedilol (Coreg).

I am an active 45 year old mom of a young child. I have always tried to eat healthily and keep in shape (I do yoga, pilates and, run about 5k 2x per week). My BP has always been pretty good, but since my 40´s it has gone up a bit (heredity factors play a role). My BP and heart rate also “spike” when I get stressed or anxious, but for the most part are pretty level during normal times. I do have anxious moments, but I would not say anxiety has been a major life problem. At my last check (Feb 2016), and after wearing a 24 hour BP monitor, my cardiologist suggested I start Carvedilol 6.25 1x per day (quite a low dose) for the spikes and to keep the heart from getting too excited. I agreed that maybe it was a good idea and started over two months ago. Other than stimulating rapid bowel movements, I did not notice any side effects at first. I would say about three to four weeks into taking the Carvedilol, I began not sleeping well. I also noticed my heart pounding, like a bass drum, slowly and steadily, at times. Then the heart pounding began to wake me up at night (it turns out my HR was down in the high 40s at night). Some nights I even felt my chest muscles vibrate, as if a phone on silence mode was on top of my chest. I started to notice this more and more and then I would have a few normal nights, so I figured I would just talk about this at my next cardio check (booked out in June). I also noticed I was getting more and more anxious. I wasn’t too sure why little things were beginning to bother me. I thought it was hormones, PMS, whatever, and started looking for someone like a therapist to talk to.

The previous week was bad. I woke up from a few nightmares and I started to panic in bed, just woken up from sleep. I had three nights of waking up to panic attacks and body shakes. The experiences made me very nervous. At this point I started looking into the side effects of Carvedilol and I was seeing not only chest pounding, but in rare cases reported effects of nightmares, visual disturbances, tremors, anxiety. I also know one does not simply stop a beta blocker, so we talked about tapering down. I tapered down for four days, and then I got in to see another cardiologist on Monday and he said just stop immediately. The effects are rare, but they have been noted. Going off this medication has been frightening. I feel weak and shaky all the time, and I get sporadic periods of pounding and muscle tremors in my legs, anxiety and fuzzy vision. I frequently get so cold I begin to shake. Yesterday I went back to the clinic for an EKG (normal) and some blood tests (including thyroid) and everything was normal. I am just assuming this is my body reacting and readapting itself after being on beta blockers. It has only been five days, but I am wondering if anyone out there has had similar experiences. How long did it take you to feel normal again? I ran a 5k just two weekends ago and yesterday I could hardly take a walk. Thanks for listening.

@doug_58

Forget that. Paper bag did no help. Matter of fact I googled the subject as soon as I pulled off I-85. I was totally out of control. I literally had to count the seconds between breaths, to stop me from passing out from hyperventilation while walking around in the parking lot of the gas station I was at waiting for my son to come get me.

Re-Read what I posted. I didn’t stop taking carvedilol on purpose (well yeah I did). It was merely a convenience issue with the RX. I am a cash payer. I don’t do insurance. So my rx’s aren’t always at the same time every month or whatever. If you re-read my post you will also notice my cardiologist said everything was normal, esp with blood chem’s. My BP was never an issue.

Third, your last paragraph, hyperventilation syndrome – No. This is where one is concerned about being in that condition. Not me. Hell we used to do this crazy hyperventilation stuff as kids just for fun.

Thanks for the response, but I highly recommend that if you ever stop taking this high level of Carvedilol (like we do), that it be done in stages. I am pretty sure this is what is causing my psychosis with these driving situations. It is not good. That said, Carvedilol has been a LIFE SAVER!
I’m back on it asap. I screwed up by not being smart.

Just my opinion.

Jump to this post

@doug_58, I guess the only thing I’ll add is that I don’t just accept what a cardiologist tells me. I get a second opinion every time — from another cardiologist or another specialist, depending on what seems uncertain. In your case, it seems unusual that your BP was never an issue, especially since the paper bag wasn’t of any help. I have been advised that hyperventilation generally means hyperoxygenation and raising the level of CO2 in the blood is the antidote. Did your cardiologist address those issues? Or whether stopping Carvedilol might have caused your hyperventilation?

REPLY

I was recently put on Carvedilol for high blood pressure by my primary doctor. She started me out on a low dose and kept increasing it because my bp was not going down. At a check-up at the ER, it was increased also to 25mg in am and 12.5 in pm. I was actually found to have a really bad bladder infection going on for 2 weeks before it was found which is what I believe drove my bp up drastically and had a really bad case of gerd. Even though I had a heart attach in 2005, (a minor one) I have never had an issue with blood pressure. After I was on the carvedilol for a couple weeks, I started feeling very anxious and having tremors. It got to the point where I thought I was having a nervous breakdown. I went back to the dr. and she prescribed Zoloft and Ativan to help until the Zoloft kicked in. She also said to continue the Carvedilol 12.5 in am and 6.25 in pm. About 4 days into the Zoloft, I really thought I was going to have to be hospitalized. I stopped taking it but I continued with the anxiousness and tremors and continued to take the lorazepam .25 a couple times a day. Occasionally I would take 12.5 mg of benadryl to also help. I would then feel somewhat normal again and tell myself that it’s just the medications making me feel this way. I don’t believe I needed to be on a psych med but thought I’d try to see if it would help since it’s used for anxiety also. It only made it worse. I am currently weaning myself off the carvedilol. I am going to make an appointment with a cardiologist to see what they would recommend. This has been an extremely difficult 2 months. I am 62 and never in my life have I had anxiety issues or panic attacks like I have since being on this medication.

REPLY
@lola63

I was recently put on Carvedilol for high blood pressure by my primary doctor. She started me out on a low dose and kept increasing it because my bp was not going down. At a check-up at the ER, it was increased also to 25mg in am and 12.5 in pm. I was actually found to have a really bad bladder infection going on for 2 weeks before it was found which is what I believe drove my bp up drastically and had a really bad case of gerd. Even though I had a heart attach in 2005, (a minor one) I have never had an issue with blood pressure. After I was on the carvedilol for a couple weeks, I started feeling very anxious and having tremors. It got to the point where I thought I was having a nervous breakdown. I went back to the dr. and she prescribed Zoloft and Ativan to help until the Zoloft kicked in. She also said to continue the Carvedilol 12.5 in am and 6.25 in pm. About 4 days into the Zoloft, I really thought I was going to have to be hospitalized. I stopped taking it but I continued with the anxiousness and tremors and continued to take the lorazepam .25 a couple times a day. Occasionally I would take 12.5 mg of benadryl to also help. I would then feel somewhat normal again and tell myself that it’s just the medications making me feel this way. I don’t believe I needed to be on a psych med but thought I’d try to see if it would help since it’s used for anxiety also. It only made it worse. I am currently weaning myself off the carvedilol. I am going to make an appointment with a cardiologist to see what they would recommend. This has been an extremely difficult 2 months. I am 62 and never in my life have I had anxiety issues or panic attacks like I have since being on this medication.

Jump to this post

@lola63, it is regrettable that you have had to move through a bramble-patch of medications to deal with your hypertension over two months. Do I understand that your experience with Carvedilol came from prescriptions by two doctors — one your primary care physician and the other an ER physician — but not from specialists with more advanced knowledge of your symptoms?

I have been on Carvedilol for over a year and am now taking 25 mg tablets twice daily without apparent side effects. This is the latest in a string of 15 different medications for hypertension — almost all of which were prescribed by a nephrologist. My HMO’s standard treatment of hypertension is assigned to nephrologists because the kidneys are organically central to the problem. I also had the good fortune to find a nephrologist who is devoted to finding essential causes rather than managing symptoms with a fusillade of medications (which I had endured in years past). My initial treatment 20 years ago by cardiologists, as well as their return two years ago to my medical team, had no apparent effect on my blood pressure; their focus now is on atrial fibrillation which developed in 2015.

I know it’s reassuring when you can identify a single cause of medical symptoms. Your primary physician seems to feel that you are beset by a complex of symptoms that a complex of medications could address. Would you feel even better if your condition were described by a specialist and confirmed in a second opinion by a team of specialists, such as you can engage at the Mayo Clinic? Let us know how we can help you think through finding a map to diagnosing and treating your condition.

REPLY

The Carvedilol was prescribed by my primary. When I went to the ER because I was having other issues, he saw my BP was still high and said I could increase it to 25mg in am and stay at 12.5 pm. Like I mentioned, I believe my high bp was d/t my body fighting an infection but at the time it was not known I had the infection. (bladder) It was missed at my very first UC visit which was 2 weeks until it surfaced. I have since weaned myself off the carvedilol but am still having some tremors and anxiety but less hopefully each day. I am going to set up an appt. with a cardiologist as I really haven’t seen one in several years. He basically gave me the all clear a couple years after my heart attack. This has been a terrible med for me physically and psychologically and I don’t think I should have been put on it in the first place. I have had many blood tests since then, an upper gi, bladder checks, and everything is coming out good so far. I just need to shake this feeling I have. It does get relieved if I take the .25 of lorazepam. Hopefully that will lessen each day. Not sure how long the carvedilol can stay in the body. And my blood pressure seems to be coming back down to somewhat normal.

REPLY
@lola63

The Carvedilol was prescribed by my primary. When I went to the ER because I was having other issues, he saw my BP was still high and said I could increase it to 25mg in am and stay at 12.5 pm. Like I mentioned, I believe my high bp was d/t my body fighting an infection but at the time it was not known I had the infection. (bladder) It was missed at my very first UC visit which was 2 weeks until it surfaced. I have since weaned myself off the carvedilol but am still having some tremors and anxiety but less hopefully each day. I am going to set up an appt. with a cardiologist as I really haven’t seen one in several years. He basically gave me the all clear a couple years after my heart attack. This has been a terrible med for me physically and psychologically and I don’t think I should have been put on it in the first place. I have had many blood tests since then, an upper gi, bladder checks, and everything is coming out good so far. I just need to shake this feeling I have. It does get relieved if I take the .25 of lorazepam. Hopefully that will lessen each day. Not sure how long the carvedilol can stay in the body. And my blood pressure seems to be coming back down to somewhat normal.

Jump to this post

@lola63, I think you’d feel better with second opinions from medical specialists rather than speculating about what’s caused your symptoms. I hope your cardiologist can be helpful. I’d suggest you discuss possible nephrology care with the cardiologist and your primary care physician, and if you can, get a comprehensive diagnosis of your complex of symptoms as soon as you can.

REPLY

Update: Got back on Carvedilol last week and the crazy anxiety symptoms went away. Since then I’ve also figured out that the Carvedilol was masking the symptoms of a psychological issue that I didn’t even know I had developed. The issue was that I had sub-consciously lost confidence in high speed high volume traffic over a short period of time. That has since been addressed – now all my anxiety/hyperventilation crap is gone. It never was the meds. The anxiety issue was with me.
Thanks all!

REPLY
@doug_58

Update: Got back on Carvedilol last week and the crazy anxiety symptoms went away. Since then I’ve also figured out that the Carvedilol was masking the symptoms of a psychological issue that I didn’t even know I had developed. The issue was that I had sub-consciously lost confidence in high speed high volume traffic over a short period of time. That has since been addressed – now all my anxiety/hyperventilation crap is gone. It never was the meds. The anxiety issue was with me.
Thanks all!

Jump to this post

I’m glad you came back to update the community Doug. What a discovery. How did you manage the anxiety?

REPLY
@lola63

I was recently put on Carvedilol for high blood pressure by my primary doctor. She started me out on a low dose and kept increasing it because my bp was not going down. At a check-up at the ER, it was increased also to 25mg in am and 12.5 in pm. I was actually found to have a really bad bladder infection going on for 2 weeks before it was found which is what I believe drove my bp up drastically and had a really bad case of gerd. Even though I had a heart attach in 2005, (a minor one) I have never had an issue with blood pressure. After I was on the carvedilol for a couple weeks, I started feeling very anxious and having tremors. It got to the point where I thought I was having a nervous breakdown. I went back to the dr. and she prescribed Zoloft and Ativan to help until the Zoloft kicked in. She also said to continue the Carvedilol 12.5 in am and 6.25 in pm. About 4 days into the Zoloft, I really thought I was going to have to be hospitalized. I stopped taking it but I continued with the anxiousness and tremors and continued to take the lorazepam .25 a couple times a day. Occasionally I would take 12.5 mg of benadryl to also help. I would then feel somewhat normal again and tell myself that it’s just the medications making me feel this way. I don’t believe I needed to be on a psych med but thought I’d try to see if it would help since it’s used for anxiety also. It only made it worse. I am currently weaning myself off the carvedilol. I am going to make an appointment with a cardiologist to see what they would recommend. This has been an extremely difficult 2 months. I am 62 and never in my life have I had anxiety issues or panic attacks like I have since being on this medication.

Jump to this post

Hi @lola63, Should you wish to look into getting at second opinion at Mayo Clinic, here are the contact numbers you can call http://mayocl.in/1mtmR63

Liked by lola63

REPLY

Thanks for the interest Colleen,
The same way I went after my manic-depression issues in the late 90’s. I thought about it a CRAP-TON every day and took meds to help me thru work. That was then and I had a friend helped me with zoloft while I worked through it.

But not this time.
I am in really heavy traffic and fast moving thru atlanta every day, like all day. The back story is this: Every day for the last few years every time I got on the freeway (which here is MASSIVE and fast and crazy), I asked myself, at what age and when will I have to quit doing this because it just becomes too scary and ridiculous for me to handle it? I mean, you never see elderly people driving on these mega roads… This was a mental issue with me. Take it one step further, and age-versus-competence thing. It’s like… Can you drive forever in these conditions as you get older? (Question to self). Apparently, I’ve not been paying attention that much, and as the calming effect of (25/50mg) Carvedilol wore off (because I didn’t refill it), the symptoms that I were really feeling started to show up in true form in sub-consciously going into hyperventilation when I was driving! This was one of the most difficult things I have ever had to handle in my life.

This is such a new thing for me. I had no idea that the brain had ‘switches’ that could be turned off and on like this so quickly as I have done. To stop driving here would have taken me out financially and I would have become destitute.

To reiterate – and to acknowledge @predictable ‘s support of using Carvedilol, I gotta say – this drug, for all I can tell is one of the best things for CHF patients, but in this dosage, is very powerful, and has side effects. I take like 10 different things for my condition, most are supplements like potassium, magnesium (usual stuff for diuretics), and if you met me you would never know I was living with chf. It’s a testament to my cardiologists and medical tech these days. 20 years ago I figure people like me would be half dead already. I’m not and I work my ass off every day. I enjoy it.

As an example my daily dose of 50mg which is 2 x 25mg Carvedilol, literally makes my stomach muscles want to churn/spasm or tighten up. I used to think it was the hydralazine doing this, but now I know better. It also put a huge clamp on my psycho-issues with driving fear. I am so used to this, since 2015.

Honestly, I am so lucky I think. I have spent the last week talking with other ppl that deal with panic and anxiety attacks and stuff, none which take the meds that I do – and I figured out that this kind of thing can happen to anyone.

For me, and I must say it was awesome that I figured this out so quick!

It almost sounds stupid! Yesterday I changed my habits in driving and I started bitching at the other cars and trucks on the freeway thru atlanta like I’m a Rock God on the road and everybody else sucks, are immature, and is probably texting and doing facebook, like I’m better than they are. Crap this worked. I drove 60 miles through heavy crap traffic and never had a single episode of fear, or even impending hyperventilation.

Today did it again – only this time, I paid much less attention to being an alpha male ass (I wanna kick trucker butt), and thought about other things. Drove 120 miles round trip through atlanta. My confidence was back. Not even a hint of stress doing my usual thing.

There is a lot to process here. 1 week ago I was passing out on the side of the road – either that or having to stop because I was hyperventilating. Today I’m back to normal. I thank God for the revelations that have enabled me to gain control of my life again.

At 58 years old, this is the most insane thing I have ever dealt with.

Thanks for listening. Hope everyone is well.

REPLY

@predictable I had an ICD/(wannabe pacemaker) installed Nov 2015 for tachycardia. For all I can tell it’s triggered once and I never knew it. I guess the meds are doing their job.

REPLY

@lola63 If you have issues with BP – A few years ago I was on Lisinopril 20mg plus Bisoprolol, and that worked GREAT, with no side effects. My BP has always been very difficult to manage. My family history is horrible with BP and heart disease.

Liked by lola63

REPLY
@doug_58

Thanks for the interest Colleen,
The same way I went after my manic-depression issues in the late 90’s. I thought about it a CRAP-TON every day and took meds to help me thru work. That was then and I had a friend helped me with zoloft while I worked through it.

But not this time.
I am in really heavy traffic and fast moving thru atlanta every day, like all day. The back story is this: Every day for the last few years every time I got on the freeway (which here is MASSIVE and fast and crazy), I asked myself, at what age and when will I have to quit doing this because it just becomes too scary and ridiculous for me to handle it? I mean, you never see elderly people driving on these mega roads… This was a mental issue with me. Take it one step further, and age-versus-competence thing. It’s like… Can you drive forever in these conditions as you get older? (Question to self). Apparently, I’ve not been paying attention that much, and as the calming effect of (25/50mg) Carvedilol wore off (because I didn’t refill it), the symptoms that I were really feeling started to show up in true form in sub-consciously going into hyperventilation when I was driving! This was one of the most difficult things I have ever had to handle in my life.

This is such a new thing for me. I had no idea that the brain had ‘switches’ that could be turned off and on like this so quickly as I have done. To stop driving here would have taken me out financially and I would have become destitute.

To reiterate – and to acknowledge @predictable ‘s support of using Carvedilol, I gotta say – this drug, for all I can tell is one of the best things for CHF patients, but in this dosage, is very powerful, and has side effects. I take like 10 different things for my condition, most are supplements like potassium, magnesium (usual stuff for diuretics), and if you met me you would never know I was living with chf. It’s a testament to my cardiologists and medical tech these days. 20 years ago I figure people like me would be half dead already. I’m not and I work my ass off every day. I enjoy it.

As an example my daily dose of 50mg which is 2 x 25mg Carvedilol, literally makes my stomach muscles want to churn/spasm or tighten up. I used to think it was the hydralazine doing this, but now I know better. It also put a huge clamp on my psycho-issues with driving fear. I am so used to this, since 2015.

Honestly, I am so lucky I think. I have spent the last week talking with other ppl that deal with panic and anxiety attacks and stuff, none which take the meds that I do – and I figured out that this kind of thing can happen to anyone.

For me, and I must say it was awesome that I figured this out so quick!

It almost sounds stupid! Yesterday I changed my habits in driving and I started bitching at the other cars and trucks on the freeway thru atlanta like I’m a Rock God on the road and everybody else sucks, are immature, and is probably texting and doing facebook, like I’m better than they are. Crap this worked. I drove 60 miles through heavy crap traffic and never had a single episode of fear, or even impending hyperventilation.

Today did it again – only this time, I paid much less attention to being an alpha male ass (I wanna kick trucker butt), and thought about other things. Drove 120 miles round trip through atlanta. My confidence was back. Not even a hint of stress doing my usual thing.

There is a lot to process here. 1 week ago I was passing out on the side of the road – either that or having to stop because I was hyperventilating. Today I’m back to normal. I thank God for the revelations that have enabled me to gain control of my life again.

At 58 years old, this is the most insane thing I have ever dealt with.

Thanks for listening. Hope everyone is well.

Jump to this post

Thanks for sharing details of your history and recent resurgence of dealing with anxiety pre and post heart issues. Interesting that this manifested itself while driving. @thankful shares a similar story in this post, describing a panic attack that “came out of nowhere one day driving back from the OR coast over the Yaquina bridge of Newport.”… Read more here: http://mayocl.in/2k9T8hz

Your method of taking control by talking (yelling 🙂 at the other drivers is truly creative. Whatever it takes to break the pattern, right? Good for you!

REPLY
@doug_58

Thanks for the interest Colleen,
The same way I went after my manic-depression issues in the late 90’s. I thought about it a CRAP-TON every day and took meds to help me thru work. That was then and I had a friend helped me with zoloft while I worked through it.

But not this time.
I am in really heavy traffic and fast moving thru atlanta every day, like all day. The back story is this: Every day for the last few years every time I got on the freeway (which here is MASSIVE and fast and crazy), I asked myself, at what age and when will I have to quit doing this because it just becomes too scary and ridiculous for me to handle it? I mean, you never see elderly people driving on these mega roads… This was a mental issue with me. Take it one step further, and age-versus-competence thing. It’s like… Can you drive forever in these conditions as you get older? (Question to self). Apparently, I’ve not been paying attention that much, and as the calming effect of (25/50mg) Carvedilol wore off (because I didn’t refill it), the symptoms that I were really feeling started to show up in true form in sub-consciously going into hyperventilation when I was driving! This was one of the most difficult things I have ever had to handle in my life.

This is such a new thing for me. I had no idea that the brain had ‘switches’ that could be turned off and on like this so quickly as I have done. To stop driving here would have taken me out financially and I would have become destitute.

To reiterate – and to acknowledge @predictable ‘s support of using Carvedilol, I gotta say – this drug, for all I can tell is one of the best things for CHF patients, but in this dosage, is very powerful, and has side effects. I take like 10 different things for my condition, most are supplements like potassium, magnesium (usual stuff for diuretics), and if you met me you would never know I was living with chf. It’s a testament to my cardiologists and medical tech these days. 20 years ago I figure people like me would be half dead already. I’m not and I work my ass off every day. I enjoy it.

As an example my daily dose of 50mg which is 2 x 25mg Carvedilol, literally makes my stomach muscles want to churn/spasm or tighten up. I used to think it was the hydralazine doing this, but now I know better. It also put a huge clamp on my psycho-issues with driving fear. I am so used to this, since 2015.

Honestly, I am so lucky I think. I have spent the last week talking with other ppl that deal with panic and anxiety attacks and stuff, none which take the meds that I do – and I figured out that this kind of thing can happen to anyone.

For me, and I must say it was awesome that I figured this out so quick!

It almost sounds stupid! Yesterday I changed my habits in driving and I started bitching at the other cars and trucks on the freeway thru atlanta like I’m a Rock God on the road and everybody else sucks, are immature, and is probably texting and doing facebook, like I’m better than they are. Crap this worked. I drove 60 miles through heavy crap traffic and never had a single episode of fear, or even impending hyperventilation.

Today did it again – only this time, I paid much less attention to being an alpha male ass (I wanna kick trucker butt), and thought about other things. Drove 120 miles round trip through atlanta. My confidence was back. Not even a hint of stress doing my usual thing.

There is a lot to process here. 1 week ago I was passing out on the side of the road – either that or having to stop because I was hyperventilating. Today I’m back to normal. I thank God for the revelations that have enabled me to gain control of my life again.

At 58 years old, this is the most insane thing I have ever dealt with.

Thanks for listening. Hope everyone is well.

Jump to this post

Well I had no choice. It was like a last resort for me bc I had to drive 60 miles home thru insane traffic. and I’m like FU people I am NOT gonna go hyperventilating out of FEAR of YOU assholes! hahaha. (That’s the internal me fighting back). In previous days I would just get angry and ask myself “WTF is going on? This is not ME?!!! I’m angry at myself!”. This time I changed the focus of anger from myself to everyone else and rebuilt my manhood on the spot. Yes that’s what it was. A very debilitating situation but it is, what it was.
Thanks for the link.
🙂

REPLY
@doug_58

Thanks for the interest Colleen,
The same way I went after my manic-depression issues in the late 90’s. I thought about it a CRAP-TON every day and took meds to help me thru work. That was then and I had a friend helped me with zoloft while I worked through it.

But not this time.
I am in really heavy traffic and fast moving thru atlanta every day, like all day. The back story is this: Every day for the last few years every time I got on the freeway (which here is MASSIVE and fast and crazy), I asked myself, at what age and when will I have to quit doing this because it just becomes too scary and ridiculous for me to handle it? I mean, you never see elderly people driving on these mega roads… This was a mental issue with me. Take it one step further, and age-versus-competence thing. It’s like… Can you drive forever in these conditions as you get older? (Question to self). Apparently, I’ve not been paying attention that much, and as the calming effect of (25/50mg) Carvedilol wore off (because I didn’t refill it), the symptoms that I were really feeling started to show up in true form in sub-consciously going into hyperventilation when I was driving! This was one of the most difficult things I have ever had to handle in my life.

This is such a new thing for me. I had no idea that the brain had ‘switches’ that could be turned off and on like this so quickly as I have done. To stop driving here would have taken me out financially and I would have become destitute.

To reiterate – and to acknowledge @predictable ‘s support of using Carvedilol, I gotta say – this drug, for all I can tell is one of the best things for CHF patients, but in this dosage, is very powerful, and has side effects. I take like 10 different things for my condition, most are supplements like potassium, magnesium (usual stuff for diuretics), and if you met me you would never know I was living with chf. It’s a testament to my cardiologists and medical tech these days. 20 years ago I figure people like me would be half dead already. I’m not and I work my ass off every day. I enjoy it.

As an example my daily dose of 50mg which is 2 x 25mg Carvedilol, literally makes my stomach muscles want to churn/spasm or tighten up. I used to think it was the hydralazine doing this, but now I know better. It also put a huge clamp on my psycho-issues with driving fear. I am so used to this, since 2015.

Honestly, I am so lucky I think. I have spent the last week talking with other ppl that deal with panic and anxiety attacks and stuff, none which take the meds that I do – and I figured out that this kind of thing can happen to anyone.

For me, and I must say it was awesome that I figured this out so quick!

It almost sounds stupid! Yesterday I changed my habits in driving and I started bitching at the other cars and trucks on the freeway thru atlanta like I’m a Rock God on the road and everybody else sucks, are immature, and is probably texting and doing facebook, like I’m better than they are. Crap this worked. I drove 60 miles through heavy crap traffic and never had a single episode of fear, or even impending hyperventilation.

Today did it again – only this time, I paid much less attention to being an alpha male ass (I wanna kick trucker butt), and thought about other things. Drove 120 miles round trip through atlanta. My confidence was back. Not even a hint of stress doing my usual thing.

There is a lot to process here. 1 week ago I was passing out on the side of the road – either that or having to stop because I was hyperventilating. Today I’m back to normal. I thank God for the revelations that have enabled me to gain control of my life again.

At 58 years old, this is the most insane thing I have ever dealt with.

Thanks for listening. Hope everyone is well.

Jump to this post

Thanks for the link. Holy cow, these ppl are like my condition times 10! Yikes, this is scary stuff!

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@lola63

The Carvedilol was prescribed by my primary. When I went to the ER because I was having other issues, he saw my BP was still high and said I could increase it to 25mg in am and stay at 12.5 pm. Like I mentioned, I believe my high bp was d/t my body fighting an infection but at the time it was not known I had the infection. (bladder) It was missed at my very first UC visit which was 2 weeks until it surfaced. I have since weaned myself off the carvedilol but am still having some tremors and anxiety but less hopefully each day. I am going to set up an appt. with a cardiologist as I really haven’t seen one in several years. He basically gave me the all clear a couple years after my heart attack. This has been a terrible med for me physically and psychologically and I don’t think I should have been put on it in the first place. I have had many blood tests since then, an upper gi, bladder checks, and everything is coming out good so far. I just need to shake this feeling I have. It does get relieved if I take the .25 of lorazepam. Hopefully that will lessen each day. Not sure how long the carvedilol can stay in the body. And my blood pressure seems to be coming back down to somewhat normal.

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Thank you for all the feedback. It has now been two weeks since I stopped the Carvedilol and I am probably 90 % better in how I feel. I check my bp every AM and it has been around the 120’s over 70-80’s. (low 80’s). Occasionally it’s a little higher than I think it should be (130-140’s over 70-80’s) I also haven’t needed to take the lorazepam since 2/12. I have a cardiology appt. set up for 4/3. I’m a little reluctant to even call my gp doctor to tell her I stopped the Carvedilol and the Zoloft. I think she should have probably suggested to me to see a cardiologist to begin with instead prescribing heart meds herself. And I’m somewhat irritated that she thinks all my symptoms were classic of “anxiety” and that’s why she prescribed the Zoloft. And not only that, she started me out on a 50mg dose instead of starting lower. I know some meds work with some people, but the Carvedilol and Zoloft just were not the ones for me. They both really messed with my body and my head. I had all the same symptoms @teatime had except I was able to sleep ok d/t the fact that I was taking benadryl and melatonin, until I would wake and then feel the “surge of adrenaline” like feeling run through my body. Also, I did have kidney function tests done which came back normal, however I was found to have a kidney stone. Hopefully this will all be figured out when I see the cardiologist.

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