Help me please only 27!!!

Posted by 10987654321 @10987654321, Sep 29 1:31pm

Help, I feel like I’m slowly dying. My vision is blurry me left eye is not focusing and has pressure. Pain in nose. I have hearing loss and ringing. My head is cognitively impaired and fogged. I’m extremely dizzy and fatigue. I constantly feel like I’m going to pass out. I have neuropathy and numbness in my extremities. I’m nauseous all the time. I’m short of breath. My face is swollen.

What is wrong? Been dismissed as anxiety. I had to quit my job over this and lay down most of the day. Please help me please.

Liked by Leonard, HankB

@10987654321 Are these new symptoms? This makes me think about a possible stroke. You probably need a different opinion than you had before. Have you been seen in an emergency room?

Liked by lioness, Leonard

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@10987654321
Good afternoon,
I felt pressure in my eyes long ago so I went to see an ophthalmologist and he didn’t believe that I was actually feeling pressure even though my interocular pressures were high. As far as your eyes are concerned I wonder if you have ocular hypertension. If it’s too high it could’ve actually do damage to your optic nerve causing changes in your vision which could be Glaucoma or a myriad of other diseases. If you have any eye disease it’s important to get treatment started as quickly as possible to prevent further damage. But only a GOOD doctor is going to be able to differentiate if there is an a problem or another health issue that's manifesting itself in your eyes as one of the symptoms.
I suppose my main question would be, do you believe you have any degree of depression or anxiety? Anxiety is a frequent diagnosis from doctors when they don’t know what else to blame it on. I have epilepsy and doctors frequently diagnose serious orders as anxiety, it’s sad but it’s true.
You have so many different symptoms it would make one wonder if you’re having multiple problems which would make an accurate diagnosis all the more difficult.
Obviously you’ve been to the doctor since they diagnosed you with anxiety. What kind of doctor gave you that diagnosis was it at an emergency room physician or your primary care doctor or was it a PA or Nurse Practitioner? Did they do any blood work or other tests? Did they provide you with any medication or advice/suggestions. Did they tell you all your symptoms would disappear? Reverse able to justify their diagnosis? I’m really curious what type of advice if any they gave you other than just saying anxiety. Did they refer you to a specialist?
I am obsessed with taking good care of my eyes so if I were in your shoes I’d concentrate on my eyes first. GOOD Ophthalmologists are often good diagnostic and.
Hope you’re feeling better soon,
Jake

Liked by HankB

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@10987654321 I'm so sorry you are having all these symptoms .You need a good Dr . for a 2nd opinion. With all you have described have you seen a Ear Dr. ,with ear problems and dizzeness you have The ears,nose,throat are all connected.Then a good Opthalmologist I know all these will take time .

Liked by Leonard

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@10987654321
I am just seeing your posts again since I last responded to you in August. You sound very desperate in all of your posts, yet it's not clear what medical people you are seeing. Did you get tested for covid after @jenniferhunter suggested that? Did you try to self refer to Mayo as @colleenyoung suggested? If so, what was the response? Leonard @jakedduck1 asked a lot of good questions in his post, like about your anxiety. I think everyone here is empathetic with your situation. Besides a diagnosis of sensory polyneuropathy what exactly has been done for you so far, what kind(s) of doctors you have been to and are now seeing, and what you feel you need at this point. Back on 8/29 you said you had had no treatment besides b12 injections. What you describe sure sounds like it needs more attention than just that. Have you seen anyone since?

Are there any issues (such as insurance) which prevent you from getting enough help?

There was another person a couple of months ago, @brayimee Aimee, who had just a wildly divergent array of symptoms, just as you do. Terrible pain in her left torso, severe GI and bowel issues, severe anxiety and much more as well. You may want to compare her situation to yours.

Here is one of her old posts: https://connect.mayoclinic.org/discussion/internal-vibration-with-nerve-firing/

She had absolutely zero idea what was wrong with her. Hers began with a surgical procedure I believe as well, back in January. She finally got an unusual diagnosis of a "slipping rib". Recently she got a doctor to fix this rib issue and now she seems to be improving. My point being that like Aimee, most of your issues may be related to one underlying problem, you obviously have to connect with someone who can figure it out.

I find many of your posts heart rending and sincerely hope you get some relief and an accurate diagnosis. Best, Hank

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No one will help me they tell me it’s nothing wrong I’ve been to ent neurologists had Kris idk what else to do

I was told it might be mold poisoning/lymes…?

Liked by HankB

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@10987654321

No one will help me they tell me it’s nothing wrong I’ve been to ent neurologists had Kris idk what else to do

I was told it might be mold poisoning/lymes…?

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@10987654321
Hi. Who won't help you? Who did you see? What did they do, did they do any tests? What exactly did they say and what exactly did they recommend? Your posts are not giving enough information to allow anyone to be of help to you. I think you would benefit yourself to calmly sit and write out in detail what exactly has happened to you since your last post. Personally I am very interested. I am dying to be of more service to you if you can just be more descriptive. With all sincerity and my best to you, Hank

Liked by lioness, Leonard

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@10987654321

No one will help me they tell me it’s nothing wrong I’ve been to ent neurologists had Kris idk what else to do

I was told it might be mold poisoning/lymes…?

Jump to this post

Have you taken any vaccines lately?

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@10987654321
My friend, I sure hope we hear back from you again. We want to help, just need a fuller picture from you (see my previous post from yesterday). Best, Hank

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@10987654321

No one will help me they tell me it’s nothing wrong I’ve been to ent neurologists had Kris idk what else to do

I was told it might be mold poisoning/lymes…?

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@10987654321 Take a deep breath. When I was 27, I didn't understand how medicine worked and medicine was not as advanced as it is today. I know living with uncertainty can be worrisome, and I've been there too and over several years of wondering why doctors didn't know why I had my symptoms. I've been misdiagnosed and even blamed for inventing a problem when my thoracic outlet syndrome was missed by the surgeon who operated on my carpal tunnel. He took my pulse and told me I was fine. When I came back to him with a proper diagnosis, he turned me away and would not authorize the physical therapy that I needed. Sure, that was hard to live with, and I didn't know where to get help, so I had to find doctor in a specialty that understood TOS and how to treat it. Those were stressful days, but I got through it. That is how medicine is… it's a process of elimination of ruling things out. You will need to advocate for yourself and provide information that will help your doctors help you. Doctors are not comfortable with problems outside of their specialty, so they don't take on something that they wouldn't fully understand. You are better served by finding the right specialty for your issues, and there may be more than one answer if there are multiple causes. If a neurologist suggested Lyme or mold toxicity, they would not be the doctor to treat this because they focus on nerve issues, but that is a clue as to what they think and it could be right or wrong. Start with a new doctor and just talk about your symptoms. When you say no one will help you, you've raised some red flags in their minds and you might be giving the impression that you have anxiety and are diagnosing yourself from information on the internet and they don't want to be backed into a corner in a disagreement.

The problem with possible Lyme or mold toxicity is that it is poorly understood by mainstream medicine. A lot of tests for this are unreliable, and because they don't render a measurable fact, it's hard to diagnose a patient when you can't prove the disease exists. These inaccurate tests can give a false negative, and the patient doesn't get antibiotic treatment and lives with Lyme in their body for years. It's harder to treat if it isn't caught right away. There are other physicians in functional medicine and in the ILADS group speciallty who do understand what is currently known about Lyme or mold. Are you aware of mold exposure in your home and have you spent time outdoors in the woods or walked through tall grass or brush? You can have a tick bite without knowing it and it doesn't always produce the bull's eye rash for Lyme Disease. The nymph ticks are the size of a poppy seed and may not be recognized as ticks, but they also carry disease, and they don't need to attach for a period of time to transmit disease because they inject an anesthetic in their saliva so the victim doesn't feel the bite, like a mosquito does. Lyme disease is just one bacteria, but along with it come co-infections of other bacteria that cause overlapping symptoms and these bugs can hide under biofilms inside the body. Keep a journal of your symptoms of what, when and how the symptoms happen and if it seems to be related to something else.

This is a lot of information to absorb and please use it as a guide and don't let this stress you out. It is the job of the medical provider to figure out what is wrong and this could lead you to the doctor who will understand the problem. There could be other physical reasons for nerve problems and a physical therapist may be able to figure out if you have body alignment issues that could cause nerve entrapment. Disease and infection can also be causes as well.

For mold related issues, you can find information at the Environmental Health Center in Dallas. https://www.ehcd.com/

Here is a lot of Lyme information.
https://www.vox.com/the-highlight/2019/6/18/18677511/lyme-disease-diagnosis-health
https://www.lymedisease.org/lyme-basics/co-infections/babesia/
Here are some links that describe the challenges with testing for Lyme disease which isn't just one specific organism causing an infection, but many. The accuracy of a blood test is also affected by how long it has been since exposure to infection, and if the body has mounted an immune response against it, and how that would change over time. The Igenex test covers more bands in comparison which you can read about from the link below. The best answer to your question would be from an ILADS doctor who could explain the limitations of testing. For some of the co-infections that accompany the Lyme bacteria, there are no diagnostic tests and the doctor evaluates the patient physically in addition to testing they do. They might test to see how many specific white blood cells are responding to an infection because Lyme can destroy the white cells that are trying to protect the body by fighting it, and the test would show a reduction in the white cells.
https://www.ilads.org/research-literature/controversies-challenges/
https://iladef.org/education/lyme-disease-faq/
https://igenex.com/the-igenex-advantage/
The Western Blot test is not very accurate and does miss diagnosing Lyme Disease. That is a costly mistake to make if Lyme Disease goes un-diagnosed for years. The doctors who are the experts at treating Lyme are in the ILADS group. The Igenex lab has more accurate tests. https://igenex.com/ Lyme destroys white blood cells that are your immune system.

Lab in Germany https://www.arminlabs.com/en

Here is a link to ILADS (International Lyme Disease Association). https://www.ilads.org/patient-care/ilads-treatment-guidelines/

Here is the Lyme treatment guideline
https://lymediseaseassociation.org/wp-content/uploads/2009/08/BurrGuide200810.pdf
There is an educational documentary call "Under Our Skin" which profiles several patients and their treatment and controversy about Lyme. https://underourskin.com/

Here is a link that discusses ILADS antibiotic recommendations and for recommended number of days, scroll until you find it.
https://www.tandfonline.com/doi/full/10.1586/14787210.2014.940900
Exercise helps because it raises the effective oxygen perfusion rates in your tissues, and oxygen can be toxic to bacterial infections. Getting your Vitamin D levels optimized helps because that increases your immune system response.

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Have you recently been on any antibiotics?

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