I have been going through auto immune pain for 3 years. I was seeing one rheumotologist when I have a positive ana (1:160 homogeneous). I have swelling, joint and muscle pain, brain fog, exhaustion (also have mild apnea), I get redness on my cheeks and nose especially in the sun or flourscent lighting, I also have vertigo, ulcerative colitis (in remission) poly cystic ovaries, reflux,. This rheumotolgsit has not diagnosed me since all my other labs have come back normal but says it is inflammatory since I respond well to prednisone. I decide to get a second opinion. This pa at the rhuemotologist office says I have fibro and not an autoimmune issue. She said since I am not swollen all the time it does not sound like inflammatory. Responding to prednisone is the only question for her. She made me stop taking arava (which helped about 60%. She put me on amatriptyline (75 mg). I don’t feel relief and it is going on a couple of months. I started aqua therapy for the past month. I do notice that the therapy seems to be getting harder and harder to do and my exhaustion is so high. I also have been getting a feeling of swelling on my legs from the knee down, (worse on right leg) that makes it hard to walk and it tingles. I get numbness and tingling in both hands and feet. I feel so lost and confused. I foresee a third opinion in my future. I am sick of feeling like a hamster running in circles around the wheel and getting no where.
Liked by John, Volunteer Mentor